Highlights eNewsletter
November 2015

* CVSA * 
Contact Info

Cyclic Vomiting Syndrome Association
P.O. Box 925
Elkhorn, WI 53121

Phone #: 414-342-7880
Website:   www.cvsaonline.org
Email:  cvsa@cvsaonline.org

Mark Your Calendar!



November/December 2015 -

CVSA - Hope Starts Here

with Holiday Cheer 

The Gift of Giving During

the Holidays 



November 8, 2015 - 

Silent Auction & Dinner

8th Annual CVSA

Minnesota Fundraiser 

Hosted by:

Maria Buhl



November 21, 2015 - 

CVSA United Kingdom

Family Day 

20th Anniversary



December 18, 2015 - 

USA Today Newspaper

featuring Digestive Wellness

and CVS



March 5, 2016 - 

CVS International 

Awareness Day



June 4, 2016 -

CVSA 10th Annual

'Run for the Bucket' 5K Event

Waukesha, Wisconsin 



June 24-26, 2016 - 
CVSA International Adult & Family Conference 
Sheraton Brookfield
Milwaukee, Wisconsin  

CVSA Facebook Page has 

Help us to 
Raise Awareness 
around the world 
'LIKE' us today!
Shop Amazon Smile!

As we move into the Holiday Season
sign-up today to list
CVSA as your charity of choice!

Visit:   www.smile.amazon.com 
Here you may list CVSA as your charity of choice.  In return
.5% of all proceeds will be donated back to our organization.  It just takes a minute of your time.  

Share this website with your family and friends as it's a wonderful 
way to support the CVSA this holiday season and all year long!  



Member Resources


Visit our website to stay connected!  


* CVSA Blog 

* CVSA Facebook Page

* CVSA College Facebook Page

* CVSA Message Board

* Media Links

* 2014 CVSA Conference      Power Point Presentations

* Stories of Hope



Check Out the 
CVSA Membership Page to View our Benefits!


Please contact our office to renew your membership to continue to take advantage of all the benefits CVSA has to offer.  Take a moment to update your address, phone number and email as well.  


Reminder - Donate $500.00 to the CVSA or hold a fundraiser that exceeds $500.00, and your annual membership fee will be waived the following year!



Renewal Letters

If you have received a renewal letter in the mail and would like to renew your membership at this time, please contact our 
Program Director - 
Ruth Novak

You may also visit our website.  This information can be found under the 
'Get Involved' section, and just takes a moment to fill out.  

Code 'V'

Next issue of the Code 'V' - 
December 2015 

Members Only Benefit! 

Would you like to receive our newsletter?  Sign up today to receive our next issue.  We would love for you to become a member of the CVSA!  


We want to extend our deepest sympathy to Anthony Destribats, Board of Director member, after the passing of his father, 
Jay Destribats on 
 October 8, 2015.  

The Board of Directors made a contribution to the CVSA in memory of Anthony's Father.  Our thoughts and prayers go out to the entire Destribats Family.  


Thank you for honoring 
your loved ones and 
supporting the 
Cyclic Vomiting Syndrome 


to the November 2015 issue of Highlights!

November has arrived, and the holidays are just around the corner. We hope you are all enjoying this beautiful fall season!

We are so thankful for our membership and appreciate all that you do for the CVSA.  Enjoy this latest issue of Highlights.  

Happy Thanksgiving to you and your family! 

The TPC Tampa Bay 
Golf for Awareness Charity Event 
A Great Success! 

40 Golfers and over 40 Donors participated in this wonderful event on October 10th in Tampa Bay, Florida. We are happy to announce that over $10,000.00 was raised for research to find a new treatment for CVS! 





Way to go Danielle! 

Thank you for supporting the CVSA, and 

for taking the time to host this event with the help of your parents, Scott and Andrea Campbell! 


** CVSA Members **

Look to read the full article in the 

December issue of Code 'V'.  


Medical News! 
Biology and Control of Nausea
and Vomiting Conference - 2015

The 2nd bi-annual NIH sponsored conference on the Biology and Control of Nausea and Vomiting 2015, took place in Pittsburgh, Pennsylvania on October 23rd and 24th.  The CVSA was a major financial sponsor for this meeting.  The funding for the second conference was based on the success of research, connections and projects that started during the 2013 conference.  All measures point to the same success of the 2015 conference.  

The program consisted of science, known and yet unknown, about nausea and vomiting.  CVS was fully featured in two of the six sessions.  The sixth session was devoted to the first in-person meeting of the 12 person committee of clinicians developing the Guidelines for the Diagnosis and Treatment of Adults with CVS.  This is a long and complicated process.  The resulting published document will be circulated widely around the globe.  

Watch for the arrival of the next Code 'V' - CVSA Newsletter to read more details about this leap in progress toward understanding and treating CVS!

Submitted by:
Kathleen Adams - CVSA President

Minnesota Silent Auction
and Dinner - Fundraiser 
November 8, 2015
Maria is hosting this event to honor her son, Brent.
Best of luck to both of you! 
Go Fund Me Project to Raise $ 
for the Adult Guidelines for Diagnosing and Treating CVS - 

It is so exciting that the CVSA and the American Neurogastroenterology and Motility Society (ANMS) will partner to develop Adult Guidelines!  

With Children's Guidelines already in place thanks to CVSA fundraising, and our strong team of medical advisors, we are embarking on a partnership project that will help adult sufferers around the world.  When completed, these guidelines will help doctors and ER personnel know how to better care for CVS patients.

Creating medical guidelines is expensive.  CVSA is the financial sponsor for these guidelines, but we are asking for your help to join us in funding this project.  All donations are greatly appreciated!  We will keep you posted with more information on the progress of this project as we move forward.  

Please visit our page at: 

Total Amount Raised to Date:   $ 16,041!

Thank you from the Board of Directors 
at the Cyclic Vomiting Syndrome Association! 
CVSA - United Kingdom
Family Day! 

The CVSA U.K. invites you to its 20th Anniversary
Family Day!

Date:  Saturday, November 21, 2015
Time:  10:00am to 4:00pm 
Location:  Birmingham Children's Hospital

Speakers include:   
Dr. Thangham Venkatesan & Dr. Sonny Chong

Hope Starts Here 
with Holiday Cheer! 

The CVSA is running our holiday program once again for the second year, and will be accepting donations now through the end of December. We were able to raise
$8,470.00  last year and thank you for your generosity!

Please consider making a charitable donation to the CVSA this holiday season.   You may want to honor a family member or friend who has CVS, or you may want to  donate in lieu of giving a gift to family, friends and co-workers. All donations from our  holiday program will be used to support the CVSA research fund and operations.
This year we will be designating 50% of our fund to the Adult Treatment Guidelines  project. Previous research funds have been used to underwrite the creation of the 
NASPHGAN Guidelines, to fund research symposiums, to grant scholarships  to young clinicians and scientists, and to fund pilot grants.  

If you wish to make a donation on-line please 
click HERE .

If you would prefer to mail a check you may do so to the address below. Please make checks payable to the CVSA, and note: 'Holiday Cheer' in the memo line.

P.O. Box 925
Elkhorn, WI 53121

All donations are tax-deductible!

Thank you so much for your support!
CVSA to be featured in 
 USA Today!
December 18, 2015

Make sure to pick up a copy of the USA Today Newspaper on Friday, December 18th.  Eric Barlow, Senior Publisher at Mediaplanet Publishing, is working on constructing the next edition of Digestive Wellness that will be going out within USA Today.  The goal of this campaign is to educate readers in their importance to healthy digestion, along with new ideas including recent breakthroughs as a part of the wellness theme.  The CVSA will be one of the contributors featured in the article.  

Thank you Eric for helping us to raise awareness of CVS!
CVSA - 2016 
Family & Adult Conference
'Early Bird' Registration Fees
 June 24-26, 2016

Location:  Sheraton Brookfield 
Milwaukee, Wisconsin

Friday, June 24th / 1:00pm Welcome!
Please note:  Our Speed Date with the Doctors
session will be held today.

Saturday, June 25th / 9:00am - 5:00pm 
Dinner and Comedy Sportz Show / 6pm 

Sunday, June 26th / 9:00am - 11:30am 
$125 Individual/$200 Couple/$225 Family

$200 Individual/$275 Couple/$300 Family

* Early Bird Registration is open now until 
February 29, 2016

Please visit the CVSA Website for more information
on all fees and hotel accommodations.  
Thank you!