Highlights eNewsletter
September 2015

* CVSA * 
Contact Info

Cyclic Vomiting Syndrome Association
P.O. Box 925
Elkhorn, WI 53121

Phone #: 414-342-7880
Website:   www.cvsaonline.org
Email:  cvsa@cvsaonline.org

Mark Your Calendar!



October 10, 2015 -

Golf for Awareness

Fundraiser Event 

Tampa, Florida 

Hosted by:

Danielle Campbell



October 23-24, 2015 - 

Biology and Control of Nausea and Vomiting Conference

Pittsburgh, Pennsylvania



November 8, 2015 - 

Silent Auction & Dinner

8th Annual CVSA

Minnesota Fundraiser 

Hosted by:

Maria Buhl



March 5, 2016 - 

CVS International 

Awareness Day



June 4, 2016 -

CVSA 10th Annual

'Run for the Bucket' 5K Event

Waukesha, Wisconsin 




June 24-26, 2016 - 
CVSA International Adult & Family Conference 
Sheraton Brookfield
Milwaukee, Wisconsin  


CVSA Facebook Page has 90 NEW Likes 
since last month -
We are now at 8,001 

Please visit our page,
help us to raise awareness
and 'Like' us today! 

CVSA Membership Info

Check out our membership page to view our benefits!


Please contact our office to renew your membership to continue to take advantage of all the benefits CVSA has to offer.  Take a moment to update your address, phone number and email as well.  Ruth, our Program Director will be happy to help you with renewal along with any questions you may have about our organization.  


Reminder - Donate $500.00 to the CVSA or hold a fundraiser that exceeds $500.00, and your annual membership fee will be waived the following year!




Shop Amazon Smile
All Year Long!

Visit:   www.smile.amazon.com to sign up and list CVSA as your charity of choice.  
.5% of all proceeds will be donated back to our organization.  
Share this information with your friends and family as it's a great way to give back to the CVSA!  


Member Resources


Visit our website to stay connected!  


* CVSA Blog 

* CVSA Facebook Page

* CVSA College Facebook Page

* CVSA Message Board

* Support Group Phone Calls

* Media Links

* 2014 CVSA Conference      Power Point Presentations

* Stories of Hope 


Code 'V'  Newsletter
Members Only

Summer Issue -
Coming Soon! 


Gabriel Hoyos, PhD, MD, passed away on June 28th in Houston, Texas.  Our thoughts are prayers go out to the Hoyos Family. 
In lieu of flowers, Dr. Hoyos had requested donations be made for medical research to the CVSA in honor of his daughter, Christina.  It was important to him to find a treatment for CVS as Christina has struggled with this disease her entire adult life.  
Memorials coming in have totaled:  $525.00.  

Thank you for honoring 
your loved ones and 
supporting the 
Cyclic Vomiting Syndrome 

Welcome to the September 2015 issue of Highlights!

The Fall season is upon us and September has arrived. Hope you all had an enjoyable summer! 

We have just a few updates for you here at the CVSA, so please take a few moments to read our latest issue, and mark your calendars for the upcoming dates listed below.  
Wishing all of you a nice relaxing Labor Day weekend!  

Go Fund Me Project to Raise $ 
for the Adult Guidelines for Diagnosing and Treating CVS - 

It is so exciting that the CVSA and the American Neurogastroenterology and Motility Society (ANMS) will partner to develop Adult Guidelines!  

When CVSA was founded in 1993, it was thought that CVS was a condition of childhood and adolescence.  We now know that adults also suffer from CVS.  CVS may begin in childhood, and can extend into adulthood.  There is also adult onset CVS.  As so many adults can attest, the condition causes untold suffering and disability, and often leads to family, school and career upheaval.  

With Children's Guidelines already in place thanks to CVSA fundraising, and our strong team of medical advisors, we are embarking on a partnership project that will help adult sufferers around the world.  When completed, these guidelines will help doctors and ER personnel know how to better care for CVS patients.

Creating medical guidelines is expensive....and that is where you come in.  CVSA is the financial sponsor for these guidelines, but we are asking for your help to join us in funding this project.  All donations are greatly appreciated!  We will keep you posted with more information on the progress of this project as we move forward.  

Please visit our page at: 

Total Amount Raised to Date:  $ 5183.00

Thank you from the Board of Directors 
at the Cyclic Vomiting Syndrome Association! 
TPC Tampa Bay 
Golf for Awareness 
Fundraiser Event 
Saturday, October 10, 2015


One of Danielle's greatest passions is golf.  She would like to raise awareness and money for the Cyclic Vomiting Syndrome Association by using her passion of golf to make a difference in the lives of sufferers. Danielle has struggled with CVS since she was a toddler.  


Please join in and attend the 2nd CVSA charity golf tournament on Saturday, October 10, 2015.   The scramble shotgun will begin at 9:00am.  Invite friends and family to attend! 


If you would like to participate, or give a monetary or prize donation, please contact one of these individuals below for more information:  


Dani Campbell:  dnc218@lehigh.edu

Scott Campbell:  scampbell1014@gmail.com

Andrea Campbell:  andrea@customescapes.com





Event to be hosted by:  

Danielle Campbell 


Look to read more of Danielle's story in 

CODE 'V' - arriving in your mailbox soon! 


Biology and Control of Nausea
and Vomiting Conference -
Pittsburgh, Pennsylvania
October 23-24, 2015 

CVSA is happy to announce that the Second "Biology and Control of Nausea and Vomiting Conference 2015" will be held on October 23rd and 24th (Friday and Saturday), at the University of Pittsburgh at The University Club.  

This conference is designed for clinicians and basic scientists who are interested in the biology of control of nausea and vomiting.  

Full details of the event can be found at:  www.emesis2015.org.  Please take a few minutes to visit this site to read about the Conference Objectives, Target Audience and the Schedule.  

Course Directors:  
Charles Horn, PhD, University of Pittsburgh 
       School of Medicine
Bill Yates, PhD, University of Pittsburgh
       School of Medicine 

Planning Committee:  
Richard Gralla, MD, Albert Einstein College of Medicine
Kenneth Koch, MD, Wake Forest School of Medicine
B.U.K. Li, MD, Medical College of Wisconsin
Charles Oman, PhD, Massachusetts Institute 
       Of Technology
Henry Parkman, MD, Temple University School of         
Thangam Venkatesan, MD, Medical College of Wisconsin
Susan Wesmiller, PhD, University of Pittsburgh
       School of Medicine 

Sponsored by:
* National Institute of Diabetes and Digestive and 
       Kidney Diseases (NIDDK)
* Cyclic Vomiting Syndrome Adult Guidelines Session
       sponsored by the CVSA in partnership with the 
       American Neurogastroenterology & Motility Society
*  University of Pittsburgh School of Medicine Center for 
       Continuing Education in the Health Sciences

Minnesota Silent Auction
and Dinner - Fundraiser Event
November 8, 2015 
Membership Renewal Letters

If you have received a renewal letter in the mail we would love to hear from you!  Please contact our Program Director, Ruth Novak
to renew your membership.  You may also visit our website.   This information can be found under the 'Get Involved' section, and just takes a moment to fill out.  

Thank you so much! 




 Do you have any Stories of Hope to share?

We all love to read stories that inspire us, and would like to hear from you.  

Visit our website at:  www.cvsaonline.org 

and share your story with us today!  



Code 'V' Newsletter
Members Only Benefit
(3) Issues Mailed Out Per Year


Featured Articles In Our Summer Issue: 


CVS and Personalized Medicine - Genetic Testing

CVSA Adult and Family Conference 

Biology & Control of Nausea and Vomiting Conference

Run for the Bucket 

Froedtert Staff Attend Nursing Grand Rounds

Adult Guidelines Update

Hiking Towards Serenity - Father/Son Hike in Colorado

Golf for Awareness Charity Event - Tampa Bay, Florida

Back to School Tips

Just for Kids:  What is CVS?

SSA Disability Benefits 

Upcoming Fundraisers