Niagara Falls Lights up Blue!
In recognition of International Cyclic Vomiting Syndrome Awareness Day, held on March 5th, 2022, the Niagara Falls Illumination Board has agreed to light up both the U.S. and Canadian sides of Niagara Falls with blue in support of raising awareness of Cyclic Vomiting Syndrome!
Niagara Falls will be illuminated blue at 10:30 pm Eastern Standard time, for a duration of fifteen minutes.
Don't miss this ICONIC event! You can watch it light up live here:
Should you choose to view this event in person, please follow public health guidelines for visiting.
There is more to come! Follow our social media channels to be notified about any updates.

**Please note that all Illumination times are approximate and is subject to change according to light conditions.

Other places lighting up!

  • Zakim Bridge (MA) - 3/5/22
  • Longfellow Bridge (MA) - 3/5/22
  • Fore River Bridge (MA) - 3/5/22
  • Burns Bridge (MA) - 3/5/22
  • Gilbert Water Tower (AZ) - 3/4/22 to 3/6/22

Check this page for more as they are added:
Your participation makes a difference!
Become part of the clinical trials for the first ever medication developed to treat CVS, and help change the future of CVS treatment.
Here are a couple of reasons that you should consider becoming part of the process:
  1. Your involvement helps researchers and scientists gain more of an understanding of cyclic vomiting syndrome and how to help patients.
  2. It gives access to cutting-edge treatment options.
If you would like to participate in this study, please check the clinical trials website
periodically, as additional clinical trial sites will be added as they are ready to start enrolling patients.

**Please note: All requests for more information or questions regarding the trials need to be directed to the trial website listed above.**
How You Can Participate:
  • Change your porch light to blue.
  • Submit requests for buildings, bridges, and other places near you and share them with CVSA.
  • Share this event on your social media channels
  • Get your 2022 IAD Shirts at our bonfire store**Order before February 11th to ensure delivery by March 5th!**
  • Tag CVSA and use the hashtag #LightupCVSAwareness on social media
  • Wear blue: a blue ribbon, shirt, mask, etc.
  • Dye your hair blue.
  • Present information to classes or medical groups, like taking pamphlets or brochures to doctors and ER waiting rooms.
  • Volunteer for groups that are raising awareness and education for CVS.
  • Donate to groups raising awareness and education for CVS.
  • Host a local meet-up or fundraiser with social distancing precautions.

See more things that people have done to raise awareness here.

Do you want to raise awareness of CVS this International Awareness Day?
Get the New 2022 Awareness Day Tee!

**Orders must be placed by February 11th to get it March 5th.**

Grab a shirt and head to one of the locations that will be helping us "Light up Awareness of Cyclic Vomiting Syndrome this March 5th. Don't forget to take pictures.

Join CVSA and...

  • Enjoy discounts on in-person events, such as the CVSA conference
  • Be the 1st to know about clinical trials and other research being done
  • Register for Virtual Expert Presentations 1st
  • Receive the printed Code V newsletter sent to members 3 times/year
  • Pay it forward to allow the office to help those at the beginning of their CVS journey
Join CVSA on Monday, February 14th, at 6 PM PST, for the monthly support call on our new Zoom platform! Have questions?
Newly diagnosed?
‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎Fell like you're alone?
The support call is the place to be.
Thank you to all of whom have set up fundraisers on Facebook with Facebook Donations!

Please note that due to Facebook's algorithms and privacy restrictions, CVSA is unable to determine the dates that fundraisers take place.
If your CVSA fundraiser raised $200 or more, please send a screenshot to the CVSA office to receive your complimentary 1 year membership, please email

Check out our fundraising page for ideas.