• YOU DID IT!
  • VIRTUAL CONFERENCE NEWS
  • COVID-19 RESOURCES
  • VOLUNTEER OF THE MONTH
  • TEAMCCF UPDATE
  • CCF AWARENESS STORE
  • VOLUNTEERS NEEDED
  • UPCOMING EVENTS
YOU DID IT!
Thank you for helping us far exceed our goal!
With your generosity CCF far exceeded our $20K goal. Because of you we were able to capture the additional $20K in matching funds from CCF's Board of Directors. A very special thanks to those that made the matching funds available during this campaign!
VIRTUAL CONFERENCE NEWS
SAVE THE DATE
The 2020 Cholangiocarcinoma Foundation Virtual Conference is scheduled for July 22-24, 2020. We recognize these challenging times are requiring us to meet in a new way. However, we are confident this virtual conference will be unforgettable. As always, it is our desire to strengthen,
uplift, and inform every member of our cholangiocarcinoma community. We promise an information packed agenda; featuring interactive Q & A, networking opportunities, and fun.

Registration is required. If you previously registered for the conference, you will need to re-register to our new platform. Your registration will give you access to conference materials, a goodie bag packed with fun swag, and more. The first 500 registered patients and caregivers will receive a swag bag . Although we can’t be together in person, we greatly look forward to gathering and interacting with our CCF community.

Thanks to our sponsors, we are able to bring our conference to you...live and on demand.
COVID-19 RESOURCES
Who is Eligible
Patients with cancer, multiple sclerosis or rheumatoid arthritis who experience difficulty accessing or affording food or other nutritional needs due to COVID-19, with eligibility established at the point of application in most cases.
 
How to Apply and How it Works
Team Rubicon developed a new feature in its Enterprise Management System (EMS) platform to enable a streamlined, web-based application for patients or their advocates.
 
More information, including application instructions can be found here .
VOLUNTEER OF THE MONTH
Each month we will recognize those whose contributions inspire us and who demonstrate excellence in their service to others. This award was created to thank those outstanding individuals and to bring to light the immense efforts, time and resources that are generously given to the Foundation.
Libby Wolfe
Libby serves as a CholangioConnect mentor.
Libby Wolfe is a people person. She enjoys spending time with her grandchildren and is blessed to have them both just minutes away. She loves book clubs, all sorts of exercise (i.e. golf, biking, and yoga to name a few), and socializing. Early childhood education is her love and she made a career in that as she co-owned a Montessori preschool in Wisconsin prior to her retirement.

Nearly five years ago her world was turned upside down with the cholangiocarcinoma (cc) diagnosis. She was originally diagnosed with a urinary tract infection, but further testing uncovered a liver mass. Libby sought a second and third opinion after her cc diagnosis and connected with two patients mentors in 2016. After surgery she’s also had successful immunotherapy, chemo for only a short time as she suffered some adverse reactions, and radiation with little side effects. A retirement, a divorce, healing from a previous heart surgery, and a new cancer diagnosis were all on Libby’s plate in 2015. It was overwhelming and so scary. She felt so alone, burdened with challenge after challenge, and buried in unknowns of what to do for next steps. Today she feels her challenges and growth are experiences she doesn’t want to waste. Although it is so tough to deal with this diagnosis, she shares that the connections she has made with CCF have been so incredibly powerful. She volunteers because she remembers the dark place she was in once and she wants to change that for others. She doesn’t want anyone to feel alone or burdened with overwhelm. She hopes to share a little light at the end of the tunnel. 
TEAM CCF UPDATE
NEW! Join us in
The first inaugural virtual athletic fundraiser will be hosted by the CCF and TeamCCF the week of July 5th - July 11th. Upon registration , each participant will receive a race shirt, bib, a finisher's medal, a personal fundraising page, and a chance for prizes and awards. Participants are asked to raise at least $200 by July 11th.
CCF AWARENESS STORE
CCF Awareness Store has added several new items this month. In addition to the beautiful bracelets and necklaces, we have added TeamCCF gear and a CCF branded Thread wallet. We will also advertise store discounts for Father's Day. Keep a look out for the code June 3 and June 10.
VOLUNTEERS NEEDED
Social Media Influencers

CCF has an immediate need for volunteers participating in Moving for the Cure on July 5th - 11th. CCF wants volunteers to create video content to promote the event, as well as share participation during the campaign. Participants do not need to be marathon runners. People of any athletic ability can participate.
Virtual Marketing Volunteers

CCF is seeking volunteers to promote the upcoming Virtual Annual Conference. Volunteers will share selfies and videos to build excitement and community engagement preceeding the conference on July 22nd -24th. Examples of content:
  • Registration Selfie - "I am registered, are you?
  • AC Attendee Selfie - "I'm excited for the conference! See you there!"
  • Video Content - "Thank you to our sponsors!"
Administrative Volunteer

CCF needs volunteers willing to review various cancer resource links and submit pertinent resources to the IT staff for website publishing.
Patient & Caregiver Support Group Moderators

CCF is seeking moderators for the monthly onlilne support groups currently held 1st and 3rd Thursdays at 2 pm MST.
Administrative Volunteer

CCF is seeking volunteers who would like to share their story in video format. Stories specifically regarding the Annual Conference and its benefits are wanted.
Please email cindy.thomas@cholangiocarcinoma.org to participate in any of the above volunteer work.
UPCOMING EVENTS
New Time Announced for Webinar Series
Thursday afternoons, 2 pm MST, biweekly each month will be dedicated to forums designed to connect patients and caregivers effected by CCA in a safe, moderated, interactive space.

Support Groups will be held the 1st (Patient) and 3rd (Caregiver) Thursday of every month and Educational Webinars will be held on the 2nd and 4th Thursday of each month.
SAVE THE DATE
Aug 8th, Saturday, at Murphy Park

Join us for Michelle's Hot Peeps Beat CC a 5K and Fun Run in Taylor, TX benefitting the CCF while bringing awareness to this insidious, silent killer. 

This race is also in honor of Michelle, who at age 47, was taken in the prime of her life following a heroic five-month battle with this disease, leaving behind a new husband and 2 kids to support those battling CC today and tomorrow.
SAVE THE DATE
Saturday, Aug. 15th, at Union Craft Brewing, in Baltimore, MD
This is the 1st annual " A Matter of Hope " celebration in honor of Matt Sgambato, a 35-year old warrior who beat Cholangiocarcinoma for almost an entire year until the disease took him from us on December 24, 2019. Matt was an amazing husband, father, son, uncle, brother, and friend. He still is. in one word, A FORCE. Matt's tribe is committed to continue his fight in partnership with the CCF by funding research and clinical trials with the hope of ultimately beating CCA.
In true Matt-fashion, we're hosting a summer party to remember. With live music from Time Police and Soundtown Baltimore , a cornhole tournament, silent auction, kids zone, and more for a fantastic cause.
SAVE THE DATE
Long-term survivor, Heidi Rhea, is planning her second annual Oktoberfest 2020 in Covington, LA on September 19th. See details below.
SAVE THE DATE
"The Quack Out Cholangio 5k Run/Walk to Crush Bile Duct Cancer has been rescheduled to Saturday, October 24, 2020, at the Hare Pavilion on the Wilmington Riverwalk in Wilmington, DE. The postponement was disappointing I am sure to you as it was to us, however, we now have even more time to make this event even more incredible.
We have over $1200 in prizes and raffle draws and so much more. Follow us on Facebook on Quack Out for details about the race starting Monday. We can't wait to see you on October 24!!"
Cholangiocarcinoma Foundation | (888) 936-6731 | info@cholangiocarcinoma.org | cholangiocarcinoma.org