CanChild Website
 
April 4, 2012
CanChild Today
Greetings!
 

This issue of CanChild Today highlights new resources on the CanChild website (www.canchild.ca), recently published articles, and CanChild updates that may be of interest to you. We are delighted to feature a new on-line workshop for parents of children with Developmental Coordination Disorder (DCD), as well as an In Brief about community faculty, and a webinar about a new participation measure!

 

Family, friends and colleagues can also receive the CanChild Today e-Newsletter. They can subscribe for free by registering here. Also, check our 'What's New' page for new postings on our website.  

 

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New Resources
on CanChild's website (www.canchild.ca)

On-line workshop for parents of children with DCD
 
Researchers and graduate students at CanChild worked with parents to develop and evaluate an innovative, online workshop. The workshop provides evidence-informed education, strategies and support for parents of children with DCD and other motor coordination challenges. The workshop is designed to improve parents' understanding of motor development and the impact of motor coordination difficulties on their child's ability to participate at home, in sports, and at school. On-line workshop hosting was made possible by the Hamilton District Society for Disabled Children. Click here to view.

 

Working Together for Change: The role of Community Faculty in education and research
 
Children, youth, and young adults with disabilities and their families play a crucial role in changing the attitudes and expectations of their neighbours, those in the health, social service and education professions, and public policy makers. We believe that they can be important agents of change in influencing the education of health professionals and research conducted at post secondary institutions. This In Brief discusses the Community Faculty role, and how persons with disabilities and their families can provide practical input that can enhance both education and research. Click here to view.

Upcoming Webinar!

The Participation and Environment Measure for Children and Youth (PEM-CY) - An innovative measure for home, school, and community

CanChild is offering a live webinar on April 13th, 2012 from 12 noon to 1 PM EDT (UTC/GMT -4:00 hours). The presenters are investigators from the Participation and Environment Project(PEP) team, including Dr. Mary Law, CanChild, Dr. Wendy Coster, Boston University, Dr. Gary Bedell, Tufts University, Dr. Mary Khetani, Colorado State University, and Dr. Dana Anaby, McGill University. They will share information about a newly developed reliable and valid tool - the Participation and Environment Measure for Children and Youth (PEM-CY) - which has been designed to examine participation and environment across home, school and community settings among children and youth with and without disabilities. The PEP team will address the development, validation, recent applications, implications and future directions of PEM-CY in this webinar. Due to an overwhelming response, the webinar is now full. If you would like to be added to the waitlist, please click here. A recording of this webinar will also be made available on the CanChild website after the live session. 

 

Stay tuned for a new Participation and Environment Knowledge Hub on the CanChild website with many useful resources for families, service providers and researchers! 
 

More Research Grants!

Congratulations to Gabriel Ronen and colleagues Brian Timmons, Steven Bray, David Streiner, Heather Toews, and Peter Rosenbaum on receiving funding from the Ontario Brain Institute. Their study 'Enhanced physical activity in sedentary children and youth with epilepsy: Developing evidence of impacts on health, functioning, psychological wellbeing and quality of life' received funding for three years.

 

Jan Willem Gorter, Brian Timmons, and Maureen MacDonald were awarded funding from the Ontario Federation for Cerebral Palsy to expand the Stay-FIT study to adults. 'Stay-FIT 20 -40 years: A cross-sectional study to determine physical activity and cardiovascular health in adults (aged 20-40 years) with Cerebral Palsy'.

 

The Waterloo Foundation is funding the development of a comprehensive on-line workshop that will assist physicians in identifying, diagnosing and managing children with DCD. Investigators on this project include Cheryl Missiuna (CanChild), Amanda Kirby (University of Wales), Jennifer McLean (Child and Parent Resource Institute, London), Sheila Harms (McMaster Children's Hospital), and John Cairney, Robin Gaines, and Nancy Pollock from CanChild.

Recent CanChild Publications
The Assessment of Preschool Children's Participation: Internal consistency and construct validity
This new measure has been developed to evaluate the participation of children aged 2 to 5.11 years in the areas of play, skill development, active physical recreation, and social activities. Recently e-published in Physical & Occupational Therapy in Pediatrics, this article analyzes data for the APCP from a clinical trial involving 120 children with cerebral palsy. Results indicate that the APCP has potential use for assessment and identification of activity areas in which preschool children are participating and areas in which participation may be restricted. Authors: M Law, G King, T Petrenchik, M Kertoy, D Anaby. Abstract. 

 

Working with immigrant families raising a child with a disability: Challenges and recommendations for healthcare and community service providers
 
The investigators of this qualitative study explored the challenges healthcare and community service providers encounter in providing care to immigrant families raising a child with a disability. This article, e-published in Disability Rehabilitation, concludes that clinicians should be aware of how culture influences the care they provide to clients. Recommendations include providing more training opportunities for enhancing culturally sensitive care. Authors: S Lindsay, G King, AF Klassen, V Esses, M Stachel. Abstract.

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Contact Us: if you have any questions or comments, please contact us at canchild@mcmaster.ca.