December 2019    


Welcome to the December edition of  CanChild Today! In this issue, we are excited to feature resources, share an event, and  highlight publications by some of our  CanChild  members !
 
2019 marks the 30th anniversary of CanChild -  use the hashtag  #CanChild30  on social media and celebrate with us!

Please feel free to share CanChild resources & newsletter with family, friends and colleagues. 
They can subscribe to the  CanChild Today! Newsletter for free by registering   here .  
Our past issues are archived on the CanChild website and can be accessed here.
Congratulations!


Congratulations to  Dr. Mary Law, the Co-Founder of CanChild and Professor Emeritus in the School of Rehabilitation Science for receiving a McMaster honorary degree! She received this award at the fall convocation from the Faculty of Health Sciences at McMaster University on November 21st, 2019.

Mary Law's work was pivotal in the advancement of academic rehabilitation science in Canada. Her research at CanChild studied the factors in communities that help or hinder children with disabilities to participate in daily activities.

Read more about the award here !


Additional Awards!



Congratulations to the following individuals for 
receiving CanChild research awards at the 
McMaster SRS Graduation! 

Occupational Therapy: Darren Schutten
Physical Therapy: Tess Kruspe, Anne Stokes, Melanie Lyons, Alexandra Pichler
Speech-Language Therapy: Daniella Manna, Shana Train, Miranda Wayland, Madeeha Wyne




New OBI Report!



The Ontario Brain Institute (OBI)'s Year in Review 
Report has just launched! Learn more about the great work of OBI, and how this organization is improving 
the lives of those living with brain disorders by reading  the report  here!

Make sure to share with your friends and family!

Participate in a Study!
Tecla-e Study!
We invite you to participate in the 'Tecla-e Study: Enhancing self-management of individuals with severe disabilities using a cloud- connected technology'. The study is a pre - market evaluation of a new assistive technology device called the Tecla - e. Tecla - e is a cloud - connected assistive device that provides users with control of their smart devices and environment. It can control up to 8 Bluetooth - compatible devices or internet - enabled appliances.
 
We are looking for participants who:
  • Are 10 - 30 years old
  • Have a motor impairment preventing them from using standard technology interfaces (e.g., mouse, keyboard, touch screen) due to Cerebral Palsy (GMFCS III or greater) or any other condition
  • Have the ability to use single switch scanning or the ability to use multiple switches
  • Have normal or corrected-to-normal vision
  • Are proficient in English
The research team will visit participants in their homes, once a week for 4 weeks. During these sessions a series of questionnaires will be completed to understand the participant's environment, individual goals, and needs that the Tecla-e can help meet. The team will also complete an in-home set-up of the Tecla-e and associated devices.
 
If you are interested to know more, please contact one of the following recruiting sites:

Holland Bloorview Kids Rehabilitation Hospital 
in Toronto
Fanny Hotzé
416-425-6220 ext. 6459
 CanChild at McMaster University 
in Hamilton
Salma ElMansy
905-525-9140 ext. 26852
John McGivney Children's Centre 
In Windsor
Mileva Vuletic
519-252-7281 ext. 232

New Video!
Designing a Participation - Focused Report Yield
Designing a Participation - Focused Report Yield


We have posted a new video on the YC-PEM (Young Children's Participation and Environment Measure) resources page! 

This video describes the process to develop a report for the YC-PEM based on provider and parent input. It was developed by one of Mary Khetani's students.
 
Learn more about the YC-PEM here!

Recent Publications by CanChild Members!
Developmental coordination disorder (DCD) and attention-deficit hyperactivity disorder (ADHD) are highly comorbid in children. There is evidence linking second hand smoke (SHS) exposure in utero to ADHD; however, it's relation to DCD is unknown. The purpose of this study was to examine the effect of SHS exposure in utero in children with and without DCD. 122 children from the District School Board of Niagara participated in this study, and were assessed for motor proficiency and intelligence and were screened for symptoms of ADHD. Their research suggests that exposure to SHS during pregnancy increases the chances of a child developing high risk DCD. Authors: Mahlberg N, James ME, Bulten R, Rodriguez C, Kwan M, Cairney J. Front. Pediatr. 2019 Nov 05. doi: 10.3389/fped.2019.00438

This study explored how individualized health-risk report interventions may affect changes  in perceived disease risk in adults with cerebral palsy (CP). This study had two hypotheses: those at risk for heart disease, obesity, and/or diabetes will face a greater perceived disease risk compared to those not at risk after receiving health-risk information;  and that there is a positive relationship between risk measures of inactivity-related diseases and post-intervention perceived risk.  An individualized health-risk report was delivered to each participant and brief interviews were conducted to measure perceptions of disease risk and physical activity. Authors found that report interventions did not change perceived risk of inactivity-related disease or change physical activity behaviour.  Authors:  McPhee PG, Gorter JW, MacDonald MJ, Martin Ginis KA. Disabil Health J. 2019 Nov 11. doi:  10.1016/j.dhjo.2019.100868 
 
This study explored multimorbidity,  the co-occurrence of a chronic physical condition and mental disorder, and its effects on children and youth. Effects may include a compromised quality of life, hardship for families, and an increased burden on the healthcare system. This study specifically documents the course of mental disorder in children and youth diagnosed with a chronic physical condition by: (1) identifying predictors of child and youth multimorbidity; (2) examining whether the effects of these predictors are moderated by relevant psychosocial and biological factors; (3) exploring potential and relevant inflammatory and stress biomarkers; and (4) assessing whether multimorbidity in children and youth alters patterns of mental health service use.  Authors:  Ferro MA, Lipman EL, Van Lieshout RJ, Gorter JW, Shanahan L, Boyle M,  Georgiades K, Timmons B.  BMJ Open. 2019  Nov 3. doi: 10.1136/bmjopen-2019-034544


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