February 2020    

Welcome to the February edition of  CanChild Today! In this issue, we are excited to feature the latest events, awards, video and publications by some of our CanChild members!

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CanChild Concussion Team in the Community!

The CanChild Concussion Team has been busy running the Concussion Experience Exhibition at various sports events in Oakville, Burlington, and Hamilton. The booth includes concussion games and education for parents, players and coaches.   Please contact us at  concuss@mcmaster.ca  if you want to  learn more or have us at your next event!
Save the Date!

On  April 25th , CanChild will host  Concussion 2020: Let's Play Safely - Prevention and Management
event funded by the Ontario Brain Institute. Join us to learn  from an interactive session on concussion, a keynote speaker and a panel of concussion experts.  Registration will open soon, stay tuned!

You can also access the concussion guidelines and video for free at the CanChild website!

Congratulations to Dr. Dana Anaby and team for receiving the Canadian Institutes of Health Research ( CIHR) Grant. Their project will  examine whether engaging in a self-chosen activity in the community (e.g., sledge hockey, boccia, drawing, playing a musical instrument) can lead to improvements in the motor, cognitive and affective body functions of children with disabilities. More information about the grant is available here.
Finding the Ability in Disability Video Presentation!

L to R: Andre Picard, Dr. Jan Willem Gorter, Dr. Peter Rosenbaum, Dr. Andrea Cross, Julia Hanes, Danijela Grahovac, Vasilije Grahovac

The Ontario Brain Institute hosted a Public Talk on the "F-Words: Finding the Ability in Disability" on February 19th.  Visit  https://braininstitute.ca/resources/obi-public-talks to view the presentation!
Lillie Chair Award Celebration!

L to R: Dr. Mary Law, Dr. Cheryl Missiuna & Dr. Wenonah Campbell
The CanChild team gathered on January 23, 2020 to celebrate the awarding of the  John and Margaret  Lillie  Chair in Childhood Disability Research to Dr. Wenonah Campbell. The celebration also honoured the former holders of the Chair, Dr. Cheryl Missiuna and Dr. Mary Law.

The Chair, supported by the Jack and Ina Pollock Charitable Foundation, will support new discoveries on effective services and interventions for children and youth with disabilities as well as the timely dissemination and use of research information in practice and policy.
Recent Publications by CanChild Members!
The effects of an individualized health-risk report intervention on changes in perceived inactivity-related disease risk in adults with cerebral palsy
Adults with Cerebral Palsy (CP) engage in less physical activity compared to the general adult population. Promotion of physical activity in adults with CP is important to improve the risk indicators associated with cardiovascular diseases. To asses the effects of an individualized health-risk report intervention, 31 adults with CP participated in assessments and interviews. Results indicate that the intervention did not change perceived risk of inactivity-related disease or physical activity behaviour of adults with CP. The health variables that affected perceived disease risk are blood pressure, waist circumference and Body Mass Index. 

Research on Cerebral Palsy (CP) in Africa tends to focus on impairment rather than functioning. A review of 27 articles demonstrates that most studies only focus on the physical movements of the patients without exploring the resources and policies surrounding disability as well as other factors from the International Classification of Functioning, Disability and Health (ICF) Framework. Most research also overlook the perspectives of adolescents and adults with CP. The review shows the need for Knowledge Translation initiatives to promote the ICF Framework within the African context. Authors: Abdel Malek S, Rosenbaum P, Gorter JWChild Care Health Dev. 19 Dec 2019. doi:  10.1111/cch.12733

Participation is essential to consider in the evaluation of pediatric rehabilitation outcomes. As per the family of participation -related constructs (fPRC) framework, participation has two elements: attendance and involvement. This study examined which instruments, used to assess participation of children with Acquired Brain Injury (ABI) and Cerebral Palsy (CP), aligns with the two elements. Results of a database search showed that 12 instruments for children with ABI or CP align with attendance and involvement, seven instruments for children with CP have psychometric evidence supporting their use and only one instrument for children with ABI showed preliminary evidence of measurement properties. The alignment of these measures provides a better understanding of participation. Researchers and clinicians may consider selecting an instrument based on the aim of the assessment. Authors:  Resch CVan Kruijsbergen MKetelaar MHurks PAdair BImms CDe Kloet A,   Piskur BVan Heugten C.   Dev Med Child Neurol. 23 Jan 2020. doi: 10.1111/dmcn.14465

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