June 2019  


Welcome to the June edition of  CanChild Today! In this issue, we are excited to share the 2018 Annual Report, research training opportunities, webinars, news and  publications by some of our  CanChild  members !
 
2019 marks the 30th anniversary of CanChild -  use the hashtag  #CanChild30  on social media and celebrate with us!

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CanChild 2018 Annual Report


CanChild is proud to present another year of accomplishments! The 2018 Annual Report highlights some of our research, publications, impacts and achievements. This report shows how a network of researchers, health professionals, students, families and youth can work together to generate knowledge and transform lives!

SRS & CanChild celebrate 30 years!


CanChild and the School of Rehabilitation Science (SRS) celebrated its 30th Anniversary on June 19th.
Dr. Mary Law  (Co-founder of CanChild) and Dr. Patty Solomon (former Associate Dean of SRS) shared some of the milestones of the institutions. The highlight of the event was the cake-cutting ceremony followed by a keynote speech from Dr. Barbara Gibson (title: Regarding Dependence: Disability and the Logics of Rehabilitation). The celebration ended with closing remarks from Dr. Paul O'Byrne (Dean and Vice-President of the Faculty of Health Sciences).

CanChild attends the 31st EACD Conference!

2019 EACD Conference
2019 EACD Conference Video
The  31st European Academy of Childhood Disability (EACD) Conference  was held on May 23-25 in Paris, France. The annual meeting provides a platform for researchers to showcase their work and address changes in care, rehabilitation, and views on childhood disability.  In line with the Innovation for Participation theme of this year's conference, attendees from CanChild presented a keynote message, instructional courses, publications and posters.
CanChild members of the international network, including scientists/associate members, staff, youth and family members.
Tracking the Future of Children with Cerebral Palsy!
 

McMaster University Health Sciences Newsletter featured the work of Dr. Jan Willem Gorter and an international team of researchers on tracking the future of children with cerebral palsy (CP).

The study assessed the movements of individuals with CP using the Gross Motor Function Classification System (GMFCS)Although motor skills are different across GMFCS levels, it is now possible to describe the future mobility and self-care capabilities of children, teens, and young adults with CP.

The developmental trajectories for each GMFCS level can also help set realistic goals, customize intervention activities, provide specialized treatment, and monitor the progress of children with CP.

Register now: Family Engagement in Research Training!
 

Registration is now open for the Family Engagement in Research Certificate Program! The ten-week online course includes topics about  the importance of family and researcher partnerships, barriers or facilitators and ethics on engagement, and resources to support participation. Learners will have the opportunity to join live online discussions, analyze case studies and participate in group exercises.  All researchers and family members are welcome to apply!

The program is a collaborative effort of McMaster University, Kids Brain Health Network & CanChild.  

To learn more, visit the CanChild website
or contact Andrea Cross: crossac@mcmaster.ca
Current Projects are Now Online!

Check out the new study pages for C-BiLLT and ENVISAGE, plus find updates on the ApplyIT and On-Track studies! Each page provides a study overview, project updates, ways to participate and much more! 
Click the study logos for more details!


F-Words Webinars!

CanChild has partnered with Child Development Resource Connection Peel (CDRCP) to develop a series of six webinars on each one of the 'F-words' in Childhood Disability (Function, Family, Fitness, Fun, Friends & Future). Each webinar describes how the 'F-words' can be used with children from 0-6 years old and their families to provide a broad strengths-based approach to child development. The webinars are for health service providers, parents, educators, siblings, and anyone who is interested in learning more about the 'F-words' and how they apply to young children!

You can watch the webinars at the  CanChild  or  CDRCP  websites!

Introducing the New GMFM App!


The GMFM APP   is user-friendly software designed to make gross motor assessment more accurate and efficient!

Features:
  • Allows user to enter item scores for the GMFM-88, GMFM-66, GMFM Item Sets, and GMFM Basal and Ceiling 
  • Shows GMFM-88 dimension and total scores 
  • Calculates GMFM-66 scores using the GMAE-3, the most up to date scoring algorithm 
  • Creates spider charts of GMFM-88 scores
  • Displays data of Individual item scores and GMFM-66 scores with 95% Confidence Intervals on item maps
  • Graphs GMFM-66 scores on Motor Growth Curves to illustrate patterns of motor development classified on the Gross Motor Function Classification System levels 



The  GMFM  is a clinical assessment tool designed and validated to evaluate change in gross motor function in children with cerebral palsy. Considered a gold standard measure, it is used worldwide for clinical and research purposes. 

The GMFM-66 relies on statistical programming known as the Gross Motor Ability Estimator (GMAE) to convert individual item scores to an interval level total score; an updated GMAE scoring algorithm (GMAE-3) is embedded in the application. 

The GMFM App is now available in Single User version for Windows PC. The Single User version (Mac OS), Multi-User versions (Windows PC and Mac OS) and the mobile versions (iOS and Android devices) are coming soon!

Recent Publications by CanChild Members!
The 'F-Words in Childhood Disability' (Function, Family, Fitness, Fun, Friends, and Future) puts into practice the World Health Organization's International Classification of Functioning, Disability and Health (ICF) framework. The aim of this paper is to analyze the uptake of the six 'F-Words' in research. Database searches from Google Scholar, Wiley Online and Web of Science show that 157 sources from 26 countries cited the original paper by Rosenbaum and Gorter (2012) entitled "The F-words in childhood disability: I swear this is how we should think!" Results of the citation analysis indicate that researchers are predominantly using the 'F-Words' to operationalize the ICF, support a holistic approach to childhood disability, and guide physical activity and rehabilitation interventions.  AuthorsSoper AKCross ARosenbaum PGorter JWChild Care Health Dev . 2019 April 25. doi:  10.1111/cch.12680

Autism Spectrum Disorder (ASD) affects the communications skills, play and behaviour of children. To determine the factors that limit the social interaction of children with ASD, 26 respondents, including parents, youths, and clinicians participated in focus groups and interviews. Results show three barriers to a child's communication: they find it difficult to understand social situations, control behaviours (e.g., impulse control or preoccupations), and conflicting priorities and restricted nature of training.  AuthorsGhanouni PJarus TZwicker JGLucyshyn JChauhan SMoir CJ Autism Dev Disord. 2019 May 2. doi:  10.1007/s10803-019-04036-7

Children who participate in a lot of physical activities during childhood are more likely to have better cardiovascular health. The Health Outcomes and Physical Activity in Preschoolers (HOPP) Study assessed the heart rate, arterial stiffness, and blood pressure of 418 children over a span of three years. Results show that being physically active has positive effects on the cardiovascular health of children regardless of their age, height, and Body Mass Index (BMI) AuthorsProudfoot NAKing-Dowling SCairney JBray SRMacDonald MJTimmons BWPediatrics. 2019 Jun 11. doi: 10.1542/peds.2018-2242

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