October 1, 2014
CanChild Today

This issue of CanChild Today is being distributed in conjunction with World CP Day (Oct 1st, 2014). We have highlighted recent publications written by CanChild members about cerebral palsy (CP). Please also visit the CP-NET subsite on CanChild's website for a description of research projects and investigators and other great resources on CP.  


Feel free to share these resources and this newsletter with family, friends and colleagues! They can subscribe to CanChild Today for free by registering here. You can view previous issues of CanChild Today here.


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CanChild Announcements!
Family Engagement Day at CanChild: Come have your say! 
CanChild is celebrating 25 years! Join us at McMaster in Hamilton, ON, on Saturday November 22, 2014 for a celebratory Family Engagement Day - CanChild: What we "CAN" Do Together! Activities include live entertainment, food, family/youth panel, "hot topic" roundtable engagement sessions, posters and networking. The event will also be streamed live worldwide. Save the date and check our website, Facebook and Twitter pages regularly for more information. It will be a fun and engaging event that you won't want to miss!  Register here! 
The "CanChild: What we 'CAN' do together" Photo Contest is intended to profile children and youth with disabilities and their families. We are particularly interested in showcasing photos which portray good examples of inclusion and participation. As indicated in the name of the contest, the theme of this contest is "What we 'CAN' do together". Read more and submit your photos here!
Resources on the CP-NET Subsite!
The Childhood Cerebral Palsy Integrated Neuroscience Discovery Network (CP-NET) is an initiative funded by the Ontario Brain Institute. CP-NET brings together scientists and health professionals from institutions across Ontario to collaborate and accelerate discoveries in cerebral palsy (CP). The CP-NET subsite features exciting resources about CP. Here are some topics you might find interesting:
  • Information about CPCP-NET and the CP-NET team, and current research projects
  • A section called 'Learn More About...'. Click on the various tabs (Keeping Current, In Brief.., Reflections On.., and Educational Materials). In these sections, you will find evidenced based information about therapies, study results, and tip sheets for families
  • Ways for children and youth with CP and their families to become involved with CP-NET

The content on the CP-NET subsite will continue to evolve. We suggest that you bookmark the site and come back often!

Recent Publications by CanChild Members
Measuring postural stability in young children with cerebral palsy: A comparison of 2 instruments
This study published in Pediatric Physical Therapy evaluated the reliability of the Pediatric Reach Test (PRT) and the Early Clinical Assessment of Balance (ECAB), measures of postural stability of young children with cerebral palsy (CP), and their construct validity. Twenty-eight children with CP, 2 to 7 years old, across all functional ability levels participated in 2 assessments over 2 weeks. Results: Both tests demonstrated strong psychometric properties. On comparison, the ECAB demonstrated stronger validity and reliability than the PRT, with lower measurement error and the potential to be the better measure to detect change over time. Authors: E Randall, DJ Bartlett, SW McCoy. Abstract

An innovative cycling exergame to promote cardiovascular fitness in youth with cerebral palsy: A brief report
The purpose of this study published in Developmental Neurorehabilitation was to evaluate the effects of an internet-platform exergame cycling programme on cardiovascular fitness of youth with cerebral palsy (CP). Eight youth with CP, Gross Motor Functional Classification System (GMFCS) level III, completed a six-week exergame programme. Cardiovascular fitness was tested pre and post intervention using the GMFCS III-specific shuttle run test (SRT-III). Other secondary outcomes were also measured. Results: There were significant improvements in the SRT-III post-intervention indicating that an exergame cycling programme may lead to improvement in cardiovascular fitness in youth with CP. Authors: S Knights, N Graham, L Switzer, H Hernandez, Z Ye, B Findlay, WY Xie, V Wright, D Fehlings. Abstract.

Use of the Child Engagement in Daily Life and Ease of Caregiving for Children to evaluate change in young children with cerebral palsy
The Child Engagement in Daily Life and the Ease of Caregiving for Children are brief parent report measures developed by the Move & PLAY research team to measure participation in family and recreational activities, self-care, and parent ease of caregiving. This study published in Physical and Occupational Therapy in Pediatrics examined the use of these measures to evaluate change over time for young children with cerebral palsy. Conclusion: The Child Engagement in Daily Life and Ease of Caregiving for Children measures are recommended for use in developmental surveillance. Responsiveness to change following intervention requires further research. Authors: RJ Palisano, LA Chiarello, SW McCoy, D Bartlett, M An. Abstract. 

Evidence-based diagnosis, health care, and rehabilitation for children with cerebral palsy
The aims of this article were to survey the questions parents of children with cerebral palsy are asking neurologists, and provide evidence-based answers using effective knowledge translation techniques. The survey was administered via social media. Questions included: (1) What is wrong with my baby? (2) What is cerebral palsy and what online resources are current? (3) What is the prognosis of cerebral palsy? (4) What interventions offer the most evidence-supported results? (5) What can we expect? This article provides an overview of up-to-date diagnostic practices and intervention options based on best available evidence. Published in Journal of Child Neurology. Author: I Novak. Abstract.
Health-related physical fitness for children with cerebral palsy
Children with cerebral palsy (CP) have lower physical activity levels than their typically developing peers. Low levels of physical activity, and an increased risk for related chronic diseases, are associated with deficits in health-related physical fitness. This article reviews the present state of evidence about 3 health-related physical fitness attributes for children with CP: cardiorespiratory endurance, muscle strength, and anaerobic fitness. Future research is required to determine the best ways to evaluate health-related physical fitness in non-ambulatory children with CP and promote long-term changes in physical activity behavior in all children with CP. Published in Journal of Child Neurology. Authors: DB Maltais, L Wiart, E Fowler, O Verschuren, DL Damiano. Abstract.
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