October 27, 2014
CanChild Today

We are delighted to distribute our CanChild Today newsletter featuring recently published articles by CanChild scientists, research associates, international collaborators, post doctoral fellows, and PhD students. As well, we have provided links to new resources on the CanChild website (www.canchild.ca).
Check our 'What's New' page for more postings and announcements. Feel free to share CanChild resources and this newsletter with family, friends and colleagues. They can subscribe to CanChild Today for free by registering here. Our past issues are archived on the CanChild website and can be accessed here


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CanChild Announcements!
Remember to join us at McMaster in Hamilton, ON, on Saturday November 22, 2014 for a 25th anniversary celebratory Family Engagement Day - CanChild: What we "CAN" Do Together! The event will also be streamed live worldwide. Activities include live entertainment, food, family/youth panel, "hot topic" roundtable engagement sessions, posters and networking. Registration closes on November 7th and child care spaces are almost full, so please register soon! Also check out our Photo Contest and "LIKE" your favourite! There is still time to send us photos of your families and friends portraying inclusion and participation. Read more and submit your photos here! 

Quality FM and Challenge Module training courses offered for Physical Therapists!
Registration is now open for training courses on the Quality FM and Challenge Module at Holland Bloorview Kids Rehabilitation Hospital in Toronto, Canada. The Challenge Module course will take place on Nov 29, 2014 and the Quality FM course will take place on Nov 30 and Dec 1, 2014. You can sign up for one or both courses. A second course is being planned for May 2015 with information coming out in December 2014. More details about the measures and the course are contained within the link
New resources on the CanChild website (www.canchild.ca)!

CanChild is proud to announce the PEM-CY!

The Participation and Environment Measure for Children and Youth (PEM-CY) is an innovative parent-report measure that evaluates participation in the home, at school, and in the community, alongside environmental factors within each of these settings. The PEM-CY can be utilized for children and youth between the ages of 5 to 17 years-old, with or without disabilities. The PDF version is now available in the CanChild e-store and includes the PEM-CY evaluation form, a user's guide, scoring recommendations, as well as comparative data for children with and without disabilities. Purchase your copy of the PEM-CY today!  


Considerations for Pediatric Physical Therapy curriculum based on the findings of the Move & PLAY Study
The Move & PLAY Study Team has developed a document that may be useful to faculty to frame how to teach pediatric physical therapy clinical decision making for preschool children with cerebral palsy (CP). This template may also be helpful for clinical decision making for children with a variety of diagnoses. For more information on the Move & PLAY study, including presentations of the measures and main study results, knowledge translation summaries, and additional references, please refer to the Move & PLAY Study page. Click here to view 'Considerations for Pediatric Physical Therapy Curriculum'.
Recent Publications by CanChild Members
Engaging stakeholders in rehabilitation research: A scoping review of strategies used in partnerships and evaluation of impacts
A scoping review of published literature was conducted to describe how stakeholder engagement has been undertaken and evaluated in rehabilitation research. The research team included a parent stakeholder. Within the retrieved studies, stakeholders were often involved in planning and evaluating service delivery. Individuals with disabilities and their families were more frequently involved compared to other stakeholders such as policymakers. Communication, power sharing and resources influenced how stakeholders could be engaged in the research. Further research evidence is needed to identify effective strategies for significant stakeholder engagement and to formally evaluate the strategies and outcomes leading to research that can positively influence practice. Published in Disability and Rehabilitation. Authors: C Camden, K Shikako-Thomas, T Nguyen, E Graham, A Thomas, J Sprung, C Morris, DJ Russell. Abstract. Click here to read a 'Reflections on' piece that came from the Integrated Knowledge Translation or iKT work at CanChild.

A retrospective study of past graduates of a residential life skills program for youth with physical disabilities
The Independence Program (TIP) is a short-term residential life skills program that prepares youth with physical disabilities with the life skills required to assume adult roles. This study examined the achievements, and skills acquired of youth who took part in this program over a 20 year period. Respondents reflected positively on the opportunities provided by TIP to develop their independent living and life skills. Most respondents reported using the skills they learned in their lives afterwards and attributed the acquisition and consolidation of core life skills to participating in this program. Published in Child: Care, Health and Development. Authors: S Kingsnorth, G King, A McPherson, K Jones-Galley. Abstract.

Development and implementation of a paediatric rehabilitation care path for hard-to-reach families: A case report
Published in Child: Care, Health and Development, this case report describes the development of a care path to promote engagement with 'hard-to-reach families' (defined as families who are eligible for service, but are difficult for service providers to engage). The care path (called MATCH: Making Alternative Therapy Choices Happen) was developed and implemented at a children's rehabilitation centre using clinician input. The MATCH care path illustrates a practical application of the principles of best-practice for engaging 'hard-to-reach families'. Continued evaluation is planned to determine the effectiveness of MATCH implementation in reducing missed appointments and promoting family engagement. Authors: M Phoenix, P Rosenbaum. Abstract.

Art�culo relevante para el desarrollo de la especialidad by P Rosenbaum, JW Gorter (this is the F-words Paper translated into Spanish)
Recursos para facilitar la pr�ctica basada en las evidencias en rehabilitaci�n pedi�trica by P Rosenbaum, C Camden
Two articles were recently published in Revista Colombina de M�dicina F�sica y Rehabilitaci�n. The first article relates the concept of 'disability' to the International Classification of Functioning, Disability and Health (ICF) of the World Health Organization, in a series of "F words" - function, family, fitness, fun, friends, and future. The second article is a reflection paper that lists resources to facilitate evidence-based practice in paediatric rehabilitation. Full access (in Spanish). 

Partnering for Change: An innovative school-based occupational therapy service delivery model for children with developmental coordination disorder
This paper is now available to access free as one of the top-read articles in the Canadian Journal of Occupational Therapy (CJOT)! The article describes Partnering for Change (P4C), an innovative school health service delivery model for children with developmental coordination disorder (DCD). The model emphasizes the partnership of the occupational therapist with educators and parents to change the life and daily environment of a child. The P4C partnership focuses on capacity building through collaboration and coaching in context. Authors: CA Missiuna, NA Pollock, DE Levac, WN Campbell, SD Sahagian Whalen, SM Bennett, CA Hecimovich, R Gaines, J Cairney, DJ Russell. Access full article!

A qualitative analysis of information sharing for children with medical complexity within and across health care organizations
The purpose of this study published in BMC Health Services Research was to identify the barriers to and facilitators of information sharing for children with medical complexity across providers, care settings, and families. Three major themes emerged related to barriers to information: 1) the lack of an integrated, accessible, secure storage of health care information, 2) fragmentation of the current health system, and 3) lack of consistent policies, standards, and priorities across organizations for information sharing. Facilitators of information sharing were:  improving accessibility to a common document, expanding the use of technology, and structuring a communication plan. Authors: L Quigley, A Lacombe-Duncan, S Adams, CM Hepburn, E Cohen. Full Access!
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