January 2019  


Welcome to the January edition of  CanChild Today! In this issue, we are excited to share updated protocols, opportunities to participate in research, and highlight recent publications by  CanChild members

2019 marks the 30th anniversary of CanChild - use the hashtag #CanChild30 on social media and celebrate with us! Stay tuned for future newsletters that will highlight our success in the past three decades.

Please feel free to share CanChild resources & newsletter with family, friends and colleagues. 
They can subscribe to the  CanChild Today! Newsletter for free by registering   here .  
Our past issues are archived on the CanChild website and can be accessed  here.   
Concussion Management for Children Has Changed!
They are FINALLY here, the New and Improved CanChild Concussion Protocols ar e r eady!  The  CanChild  child-specific Return to Activity and  Return to School protocols h ave been updated  with the latest scientific evidence to guide management when children or youth sustain a  concussion. They are in agreement with the recent Berlin Consensus for  worldwide  standard of concussion care.  We encourage children and families to use the new CanChild
protocols as they are more conservative than adult guidelines.

To find out more about concussion and to download the full version of the NEW protocols for FREE, click here
You can also answer  the short  survey  for feedback and suggestions.
Concussion Awareness Video!

The Concussion Research Team at CanChild also developed a video on lived-experience of concussion and what you should do if you sustain a concussive injury.  Watch the video  here !
For comments and suggestions, please take the  survey  and let us know what you think!
Congratulations!


Congratulations to Dr. Peter Rosenbaum for receiving the  Distinguished Service Award for External Advocates from the American Physical Therapy Association, Academy of Pediatric Physical Therapy.

Dr. Rosenbaum continually advocates for providing evidence-based  services for children, youth, and adults with developmental disabilities and their families. He is recognized for his support and assistance to a multitude of therapists with his work and advocacy. "We believe the world of physical therapy is better because of you" says Executive Committee Vice President, Dr. Lynn Jeffries. 

Visit the  Academy of Pediatric Physical Therapy website   here !
Graduate Student Opportunity! 

Are you a French speaking rehabilitation professional wishing to undertake graduate studies (Master, PhD, or PostDoc)? 

Become a part of a telerehabilitation study to support families of children with motor difficulties from ages three to eight years old. The team from Universit√© de Sherbrooke is recruiting rehabilitation professionals interested in providing an intervention one day a week and doing their study-work on a related project. Students should have a functional level of French and be willing to spend at least a year in Sherbrooke, Quebec, but can complete some of their studies at distance. 

For more information, please contact Chantal Camden:  chantal.camden@usherbrooke.ca


Participate in a Research Study!

Physiotherapist  and  Occupational Therapist colleagues, w e are inviting you to take part in a  research study  that consists of a  free  training course  to learn how to administer and score  the  updated  Community Mobility Assessment  (now known as the  CMA-2 )!

What: CMA-2 training (on-line modules plus simulation-based [SIM] training at no registration cost!), as well as completion of study questionnaires as you go through the training that will let you evaluate our on-line and SIM training

Who OTs/PTs  who have worked  with youth with Acquired Brain Injury, and who have never done any formal CMA/CMA-2 training ( it is OK though  to have attended a CMA-2 outing as an observer only)
WhenOnline module access will be provided for 6 - 8 weeks prior to the SIM training. SIM training will be held on Monday, March 25th, 2019

Where SIM training will be at  Holland Bloorview  Kids Rehabilitation Hospital  Conference Centre

Why To see whether a new CMA-2 online training program is effective in improving accuracy and confidence in scoring the CMA-2. 

If you are interested in participating, please contact Amie Kron, the study research coordinator for details at akron@hollandbloorview.ca or 416-425-6220 ext. 3342. 

The deadline for application   is  February 11th, 2019 .


Become Involved in the Latest F-Words Project!

We are currently conducting a study exploring the perspectives and experiences of international service providers who are using the 'F-words in Childhood Disability' (i.e., function, family, fitness, fun, friends, and future). This study will involve completing a 10-15 minute online survey about your perspectives and experiences using the 'F-words' in practice, education, or research. For more information please visit the  F-words Research  webpage or you can go directly to the survey here.


Calling all Metaphors and Analogies!

Healthcare providers, we are asking if you are willing to share 2-3 of your favourite metaphors or analogies on how to explain children's health conditions (e.g., diagnoses or underlying challenges faced by children) to parents, family members or the general public in layman's terms. We are hoping to compile these narratives into a plain language resource and share it on the CanChild website. All participants who agree to receive attribution will be listed in the acknowledgements at the end of resource. Read this editorial to find out more about our idea!

To participate, please contact Randi Mao: maoq@mcmaster.ca

Recent Publications by CanChild Members!
This study shows that adding physical exertion tests to concussion protocols can prevent nearly 15 percent of high-risk athletes from returning to sport too soon. Making Return to Play (RTP) decisions based on only symptoms could be inadequate. 111 concussed athletes in the study - who had completed a standard protocol and were asymptomatic - demonstrated symptom recurrence during the test, potentially indicating incomplete recovery. As a result, these athletes were required to take the test again at a later date, which delayed their return, but more importantly, may have protected them from further injury. These results illustrate that RTP clearance decisions based on self-reported asymptomatic status at rest may be inadequate. Instead, monitored, intensive, sport-specific, physical exertion testing should be utilized to inform clinical RTP decisions.  Authors: Marshall CM, Chan N, Tran P, DeMatteo CPhys Sportsmed. 2018 October 29. doi:  10.1080/00913847.2018.1542258  

The 'F-words' Knowledge Hub hosts a variety of tools and resources on the 'F-Words in Childhood Disability' (Function, Family, Fitness, Fun, Friends and Future). In 2017, a pilot study was conducted to evaluate the usability and utility of the Knowledge Hub through an anonymous web-based survey. Out of 87 participants, 92% said the Knowledge Hub is user-friendly, with the majority stating the 'F-words' videos and tools are its best features. The CanChild team is continuing to add new resources to the hub, and we hope it will become a go-to resource for knowledge sharing and exchange.  Authors:  Cross A, Rosenbaum PGrahovac D, Brocklehurst J, Kay D, Baptiste S, Gorter, JW. JMIR Rehabil Assist Technol. 2018 December 21. doi:  10.2196/10439

Promoting capacities for future adult roles and healthy living using a lifecourse health development approach
Young adults with cerebral palsy experience everyday life in a continuously changing context. In order to promote capacities for health development in the future, preparation for adulthood should begin in childhood. Interviews from 23 participants, ages 25-33 years old, generated key messages to inform pediatric health service providers. The themes aim to help children prepare for future adult roles and healthy adult living. The findings provide initial steps toward lifecourse health development for individuals with CP that concentrates on physical, mental, and emotional wellbeing as well as social participation. Authors: Palisano RJ, Di Rezze B, Stewart D, Freeman M, Rosenbaum P, Hlyva O, Wolfe L, Gorter JW. Disabil Rehabil. 2019 January 08. doi:  10.1080/09638288.2018.1544670

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