March 2018  

Welcome to the March edition of CanChild Today! In this issue, we are excited to share two new CP-NET plain language resources, "Cerebral Palsy and Mental Health" and "Should the Gross Motor Function Classification System Be Used Outside of Cerebral Palsy?". We also invite you to watch the latest CP-NET webinar to learn how families and service providers are using the "F-words" framework at home and in clinical practice, and share recent publications by our CanChild colleagues. 

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New Webinar Recording!

Bringing the 'F-Words' to Life: How are families and service providers using the 'F-words' in practice? 

A CP-NET Webinar presented on February 8, 2018 by Danijela GrahovacPeter Rosenbaum and Rachel Teplicky. Moderated by Andrea Cross

The journey of the "F-words in Childhood Disability" first began in 2012, when CP-NET researchers Peter Rosenbaum and Jan Willem Gorter wrote a paper that integrated research-supported concepts of childhood disability into a series of "F-words" that they believe should be the focus of childhood disability: FITNESS - FUNCTION - FUN - FAMILY - FRIENDS - FUTURE

This holistic approach to life - and especially to childhood disability - has since taken flight with families, researchers and clinicians around the world, while inspiring  a growing list of parent- and clinician-produced resources. This webinar highlights  F-word resources and strategies for implementing the concept at home and in clinical practice. 

New Resources!

"Keeping Current": Cerebral Palsy and Mental Health

In people with cerebral palsy (CP) it is sometimes easy for doctors, caregivers, or the person themselves to overlook the importance of mental health, or assume that any symptoms experienced are  caused by their CP.  However, people with disabilities or chronic health conditions may be as much as 3-4 times more likely to develop depression and anxiety disorders. This "Keeping Current" provides evidence-based information on mental health in the context of CP, a summary of symptoms and treatments for depressive and anxiety disorders, and an update on current research being carried out by the CP-NET MyStory project

Read more.


"Keeping Current": Should the Gross Motor Function Classification System Be Used Outside of Cerebral Palsy?

The Gross Motor Function Classification System (GMFCS) is a classification tool used to describe levels of gross motor functioning of children with CP. Because of the tool's accuracy in classifying children with CP, some researchers have attempted to use the GMFCS to describe functional mobility of people with other conditions. In this "Keeping Current", the authors explain why the GMFCS should not be used outside the domain of CP.

Read more

Recent Publications by CanChild Members
Co-creation of a digital tool for the empowerment of parents of children with physical disabilities.
Supporting a child with special needs can involve many challenges and a range of unmet needs for parents, including the need for information. Having access to the right information at the right time, presented in a format that matches parental questions and preferences, is essential to the empowerment of families and a key aspect of family-centred service. This publication describes the process of developing a digital tool called the WWW-roadmap that aims to help parents formulate questions, find information and take a more leading role in discussions with healthcare professionals. Parents, researchers, IT-specialists and healthcare professionals worked in close collaboration throughout the design and development process. A study has been designed to evaluate how using this tool effects consultations with a rehabilitation physician. The authors expect that using the tool will lead to increased empowerment, satisfaction and family-centred care.  Authors:   Alsem MW van Meeteren KM Verhoef M Schmitz MJWM Jongmans MJ Meily-Visser JM Ketelaar M Res Involv Engagem. 2017 Dec 11;3:26. doi: 10.1186/s40900-017-0079-6. eCollection 2017.

The inclusion of students with special needs in general school settings is widely accepted as a best practice by educators, while health care professionals recognize the need to integrate health support services in schools to support academic functioning and participation. In this study, the authors propose that merging two established health and education conceptual frameworks would better support the goal of inclusion. The International Classification of Functioning, Disability and Health (ICF) and the Universal Design for Learning (UDL) frameworks are first introduced and described, then compared to establish how they complement one another in their purpose and content. A hypothetical case example is then used to demonstrate how merging the ICF and UDL could support inclusive education through increased interprofessional communication and collaboration. Authors:  Tomas V,  Cross A, Campbell WN. Educ., 19 March 2018 |

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