May 2019  

Welcome to the May edition of  CanChild Today! In this issue, we are excited to share the latest products, news, research partnership and  publications by some of our  CanChild members !
2019 marks the 30th anniversary of CanChild -  use the hashtag #CanChild30 on social media and celebrate with us!

Please feel free to share CanChild resources & newsletter with family, friends and colleagues. 
They can subscribe to the  CanChild Today! Newsletter for free by registering   here .  
Our past issues are archived on the  CanChild website and can be accessed  here .
New CP-NET Webinar - Posted!

On Thursday April 25th, Donna Thomson and Dr. Lucy Lach discussed the importance of 'attitudes' toward children, youth and adults who live with impairments in physical and/or cognitive function. The record of this webinar is now available on the website!

Family Engagement in Research Training!

Kids Brain Health Network recently featured an article that discusses the Family Engagement in Research Certificate of Completion Program run by CanChild. The second cohort of the program finished in March and there are now 36 graduates including families of children with disabilities and graduate student trainees from across Canada.
The ten-week online course aims to strengthen commitment to family engagement in neurodevelopmental research, create mutual understanding of the research process, and identify best practices in family engagement.
Recruitment for the next two cohorts (Fall 2019 and Winter 2020) will begin in Spring 2019. 

For further information please contact Andrea Cross:

The PREP Online Module is here!

What is Prep?

PREP is an evidence-based intervention that encourages and empowers children, youth and adults with disabilities to participate in any activity they choose, whether at home, school, work or in the community. The PREP intervention focuses on changing the environment (including physical, social, attitudinal 
and institutional elements) to meet the person's abilities and needs, and on building capacity through coaching.

What is included in the PREP Online Module?
  • Videos that explain the PREP intervention approach and show therapists using it with clients!
  • Detailed scenarios that walk you through each of the intervention steps for actual participation goals.
  • Easy-to-download forms to guide your assessment and intervention, plus examples of environmental modifications!

Solutions for Kids in Pain (SKIP)!

Solutions for Kids in Pain (SKIP) is a knowledge mobilization network that aims to improve children's pain management in Canada and around the world. SKIP is collaborating with over 100 institutions, including   CanChild, to put together evidence-based solutions to address pain in children. The network will use the "patients included" approach to produce and promote tools for patients, caregivers, health professionals, administrators, and policymakers.

The SKIP co-directors are Dr. Christine Chambers of Dalhousie University and Doug Maynard of Children's Healthcare Canada. The program received four years of funding from the Government of Canada's Networks of Centres of Excellence.

Research Highlight!

EMPoWER: Early Mobility and Powered Wheelchair Evidence Review

The EMPoWER project examines the cost and benefits of providing powered mobility aids to children under five years old. Teams from  Bangor University and  Newcastle University will combine results of existing research and design a model to predict the cost-effectiveness of mini-wheelchairs or ride-on-cars at a young age.

The celebration of CanChild's 30th Anniversary and F-Words continues! This month is about "Function" and the CanChild staff celebrated with an office cleanup!
Stay tuned to our future newsletters for the remaining F-Words: Friends, Family and Future! You can also check out the previous events here!
CanChild Fun Facts!  
The Gross Motor Function Classification System (GMFCS), created by CanChild in 1997, describes levels of gross motor function of children and youth with cerebral palsy. The Development and reliability of a system to classify gross motor function in children with cerebral palsy has been cited 4,730 times since it was published. The GMFCS was updated in 2008 (GMFCS E&R), it has been translated into 36 languages, and is considered an international gold standard.

Recent Publications by CanChild Members!
Research shows that people with cerebral palsy (CP) are at greater risk for multimorbidity---   the presence of two or more long-term health conditions---    compared to the general population. However, the understanding of multimorbidity in individuals with CP is limited to research within small samples in specific regions that use inconsistent measurement tools. This study proposes a protocol to develop an evidence-informed core outcome set of tools to measure multimorbidity risk in adolescents and adults with CP. The measure includes perspectives from healthcare providers, researchers, and individuals with CP and their families. This is the first step to monitor and prescribe strategies to combat multimorbidity in this population.  AuthorsMcPhee P, Benner J, Balemans A,  Verschuren O, van den Berg-Emon R, Hurvitz E, Peterson M, van der Slot W,  Roebroeck M, Gorter JWTrials. 2019 March 19. doi: 10.1186/s13063-019-3265-z

This paper examines the differences between the daily physical activity of children at risk of Developmental Coordination Disorder (DCD) compared to other children. The participants, ages four to five years old, used a hip-worn accelerometers and performed physical activities for seven days. The results indicate that pre-school children at risk of DCD perform at the same level of physical activity as their peers. However, children at risk of DCD accumulate their moderate-to-vigorous physical activity in shorter bouts. AuthorsKing-Dowling S ,  Kwan MY ,  Rodriguez C ,  Missiuna C Timmons B ,  Cairney J Dev Med Child Neurol. 2019 April 8. doi: 10.1111/dmcn.14237

Focus on the Outcomes of Communication Under Six (FOCUS ©) is a clinical tool designed to evaluate the communication and social interaction of pre-school children at home, school, and community. The original outcome measure contains 50 items and the reduced version includes 34 items. This paper tests the validity and reliability of the reduced version of FOCUS. The analysis of data from 18,931 pre-school children and test of redundancy shows that the 34-item version is equivalent to the 50-item version. AuthorsOddson BThomas-Stonell NRobertson BRosenbaum PChild Care Health Dev. 2019 Apr 15. doi: 10.1111/cch.12669
Canadian Anti-Spam Legislation
You are a member of the CanChild Today electronic newsletter generated by CanChild at McMaster University. If you believe that you should not be a recipient, you may withdraw your consent to receive these messages at any time, in accordance with Canadian Anti-Spam Legislation (CASL) and subject to McMaster University policy, by contacting the sender of this message, or by clicking on the  'SafeUnsubscribe'  link at the bottom of this newsletter.