September 2020
Greetings!

Welcome to the Back to School edition of CanChild Today! In this issue, we are excited to invite you to CP-NET Science and Family Day! We will also share our back to school resource for clinicians, a research opportunity, #MyCOVIDDisabilityQ campaign and recent publications by some of our members.

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CP-NET Science & Family Day: Register now for free!
7th Annual CP-NET Science and Family Day 
October 6, 2020 | 10:00 AM - 4:00 PM

CP-NET is excited to invite families, caregivers, clients, healthcare professionals, and researchers to join us for a day of research and celebration in recognition of World Cerebral Palsy Day.

What to expect:
  • Discover the latest Cerebral Palsy (CP) research and new thinking around CP.
  • Learn more about the CP-NET clinical database, roles of genes in CP, and physical activities and technologies that will help improve the lives of children and youth with CP.
  • Gain a better understanding of CP from those with lived experience and families.
  • Participate online and join from anywhere around the world.

Everyone is welcome to attend! All presentations will be in plain language with a family audience in mind.

Network, have fun, and celebrate all that we can do together to improve the lives of children and youth living with CP and their families!

Please note that this is an online event. The deadline for registration is September 22, 2020

For more information, please visit the CP-NET website or contact dmccaul@mcmaster.ca
"If I knew then what I know now"
One of the exciting highlights of CP-NET Science and Family Day is the "If I knew then what I know now" Panel Discussion. Youth with Cerebral Palsy and family members will talk about what they have learned throughout the years, and you can share yours too!

Using the survey link below, share the things you wish you knew earlier and give some advice to children or youth with CP and their families. You can also upload photos, videos or artworks! The last day of submission is September 4, 2020.

CanChild's Back to School Resource for Clinicians!
As students gear up for going back to school, what better time to check out the McMaster Handwriting Assessment Protocol! The 3rd Edition of the Protocol provides a structured framework for assessing the handwriting of school-aged children in Kindergarten to Grade 6. The Protocol identifies the specific areas where a child is having difficulty with handwriting and helps occupational therapists in knowing whether and where to intervene.

Participate in Research!
Better Nights, Better Days for Children with Neurodevelopmental Disorders (BNBD-NDD)
Is your family preparing for #BacktoSchool? Are you struggling to resume your child’s sleep schedules and routines? Sleep can have a big impact on children’s behaviour, learning and attention.

Better Nights, Better Days is an evidence-based program tailored for parents of children with neurodevelopmental disorders to help parents help their kids sleep better. 

We are looking for just 18 more families of children ages 4-12 years old from across Canada with a diagnosis of Attention-Deficit/Hyperactivity Disorder, Autism Spectrum Disorder, Fetal Alcohol Spectrum Disorder, or Cerebral Palsy who have #insomnia (i.e., difficulties falling and staying asleep) to participate in this completely online research study! 


Interested in participating? Visit http://ndd.betternightsbetterdays.ca/ to get started!
#MyCOVIDDisabilityQ Twitter Campaign!
Do you have questions related to both disabilities and COVID-19? You can ask experts from CanChild, Kids Brain Health Network and CHILD-BRIGHT using #MyCOVIDDisabilityQ! Fill out the question form below and follow @mycovidquestion on Twitter to see the answers! Visit our website for more information.
Recent Publications by CanChild Members!
This study explored the application of the Gross Motor Function Classification System (GMFCS) in children and adolescents with CP in low-income countries like Brazil. PartiCipa Brazil will be a multi-centre, longitudinal, prospective cohort study, in which Brazilian children and adolescents with CP (1 to 14 years of age) will participate. Results are expected to guide clinical decision-making, describe activities and participation of children and youth with CP in Brazil, and propose evidence-based public policies to improve services for this population from childhood to adulthood. Authors: Chagas PSC, Drumond CM, Toledo AM, de Campos AC, Camargos ACR, Longo E, Leite HR, Ayupe KMA, Moreira RS, Morais RLS, Palisano RJ, Rosenbaum P; on Behalf of PartiCipa Brazil Research Group. BMC Pediatr. 2020 Aug 20. doi: 10.1186/s12887-020-02279-3.
Cognitive Orientation to Occupational Performance (CO-OP) is a client-centred treatment approach that focuses on skill acquisition through cognitive strategy use. This study examined the types of goals that are meaningful to children with Developmental Coordination Disorder (DCD) and the CO-OP strategies used to achieve these goals. Findings showed that the most common goal type is leisure activities, and frequently used strategies include supplementing task knowledge, body position, and task modification. By understanding the common types of goals and strategies, occupational therapists and parents gain greater knowledge of how to best support children with DCD to achieve their chosen motor goals. Authors: Schwartz SP, Northrup SRK, Izadi-Najafabadi S, Zwicker JG. Can J Occup Ther. 2020 Aug 20. doi: 10.1177/0008417420941980
Children with autism spectrum disorder (ASD) often experience impairments in adaptive behaviour or the skills needed to achieve independence. To examine the developmental trajectories of adaptive behaviour in ASD, siblings of children with ASD and those without a family history of ASD participated in this study. Results showed that impairments in adaptive behaviour appear by the first year of life in toddlers who will later be diagnosed with the disorder. In addition, early signs of ASD, developmental delays, and diagnostic measures influence adaptive behaviour. Parents are an important source of early behavioural information on ASD and adaptive skills. Authors: Sacrey LR, Zwaigenbaum L, Bryson S, Brian J, Smith IM, Raza S, Roberts W, Szatmari P, Vaillancourt T, Roncadin C, Garon N. J Child Psychol Psychiatry. 2019 Jun. doi: 10.1111/jcpp.12985
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