Greetings!

Welcome to the June 3rd edition of CanChild Today! We are excited to share our annual report, workshop and course updates, research opportunity, and recent publications by some of our members.

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CanChild Annual Report 2020!
We are pleased to present CanChild's 2020 Annual Report, highlighting the research, grants, publications and other accomplishments of our members throughout 2020. Our sincerest gratitude to all the scientists, researchers, health professionals, staff, students, children and youth with disabilities, and families who contributed to CanChild's success.

"I want to thank our whole team... who have all worked together so hard over the last year, in a challenging year, to deliver on CanChild's mandate: making a difference in the lives of children with disabilities and their families." - Dr. Jan Willem Gorter, CanChild Director
Register for F-Words Foundations I Workshop!
Thanks to your interest and enthusiasm, we will conduct another F-Words Foundations I Workshop! Join us on Monday, June 21, 2021, from 12:00 pm to 3:00 pm ET to learn about the practical application of the F-Words, discover tools and resources, and connect with other service providers and families.
What's new?
  • Service providers who will invite a parent or family member to join the workshop will get a $25 discount!
  • More interactive sessions and time to engage with other participants.
  • New case scenarios to explore.
How to register?
Service providers: register via Eventbrite. Invite a parent/family member and enjoy $25 OFF.
Family members: email fwords@mcmaster.ca to join for FREE.
For questions or more information, please visit our website or contact fwords@mcmaster.ca.
FER Course: Apply by June 16!
A friendly reminder that the application for Family Engagement in Research Course (FER) will close on June 16, 2021. Family members and researchers who are interested in child neurodevelopmental research are welcome to apply.

Successful applicants will receive a full scholarship from Kids Brain Health Network and will be notified by July 31, 2021 regarding acceptance into the program.

Course Dates:
Fall 2021 Cohort: September 20 - November 28
Winter 2022 Cohort: January 17 - March 27
Interested in learning more about the FER course? Visit our website or contact fer@mcmaster.ca.
Pain, Sleep, and Mental Health of Kids with CP!
Do you have a child with Cerebral Palsy (CP) between the ages of 8 and 18?

We are looking for kids with CP and one of their parents to participate in a new research study. Help us understand how pain and sleep impact the mental health of kids with CP!

You can now participate in this study entirely from your home!
  • Kids will wear an Actigraph (small device) around their wrist and around their waist to measure their sleep and physical activity, as well as report on their pain, sleep, and mood each day for 7 days and nights.
  • Kids and their parents will complete a mental health interview (over the phone), and fill out online questionnaires related to mental health, pain, sleep, and energy levels.
Participants will receive a $50 gift card.

For more information, please contact the
Child Health, Exercise and Rest (CHEaR) Lab: chearlab@uwo.ca.
Recent Publications by CanChild Members!
Environmental factors associated with participation and its related concepts among children and youth with cerebral palsy: a rapid review
This study reviewed 34 articles to identify knowledge gaps about environmental factors and participation outcomes in children and youth with Cerebral Palsy (CP). The most common factors associated with participation are family ecology (i.e. family relationships, interactions, and functioning), parental stress, and type of school. Family ecology is associated with participation attendance and participation involvement. Parental stress is related to participation involvement, activity competence, and children/youth's sense of self. Type of school is also associated with participation attendance; children with CP who attended special schools scored lower on participation measures than those attending regular schools. Future research should focus on modifiable factors that can provide insights for possible intervention to increase the participation of children and youth with CP. Authors: van der Kemp J, Ketelaar M, Gorter JW. Disabil Rehabil. 2021 May 30:1-12. doi: 10.1080/09638288.2021.1923839.
Early identification of children with/at risk of developmental coordination disorder: a scoping review
Developmental Coordination Disorder (DCD) is a neurodevelopmental condition that impacts the ability of children to learn new motor skills, care for themselves, and perform activities in school. To date, no systematic or scoping reviews are available to comprehensively inform early identification and intervention practices for DCD. This study reviewed 103 internationally based articles and found that evidence is emerging about the early identification of DCD in children before entry to formal schooling. Healthcare providers should use the term 'at risk of DCD' in conversations with parents and health care teams to increase awareness about this under-recognized disorder. Authors: Lee EJ, Zwicker JG. Dev Med Child Neurol. 2021 Jun;63(6):649-658. doi: 10.1111/dmcn.14803.
Advancing social inclusion of people with disabilities through awareness and training activities: A collaborative process between community partners and researchers
Both researchers and community partners were involved in all stages of this study that aims to map disability-related activities in Quebec, Canada and co-develop a five-year strategic plan. The environmental scan provided a general overview of existing activities for disability awareness and fostered discussions between participants. Using a combination of in-person and virtual meetings was also effective for involvement. Although this study focused on one Canadian province, results may apply in other contexts when co-creating a strategic plan for social transformation. The most compelling strategy for sustainable development would be a social learning process with full involvement of community partners, researchers, and external facilitators. Authors: Rochette A, Roberge-Dao J, Roche L, Kehayia E, Ménard L, Robin JP, Sauvé M, Shikako-Thomas K, St-Onge M, Swaine B, Thomas A, Vallée-Dumas C, Fougeyrollas P. Patient Educ Couns. 2021 May 23:S0738-3991(21)00387-6. doi: 10.1016/j.pec.2021.05.032.
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