Greetings!

Welcome to the June 17th edition of CanChild Today! We are excited to share our upcoming events, a research update, and recent publications by some of our members.

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October 23: CP-NET Science and Family Day!
Mark your calendars! You are invited to the
8th Annual CP-NET Science and Family Day
on Saturday, October 23, 2021.

Join us to discover the latest research and innovation on Cerebral Palsy (CP), learn from presentations of internationally renowned scientists and those with lived experience, and connect with the CP community.

You can check out our past events on the CP-NET website or visit the CP-NET Facebook page for more information. We will update you with the registration details soon, stay tuned!
Congratulations!
Congratulations to CanChild Scientist Dr. Brian Timmons who had his Canada Research Chair in Child Health and Exercise Medicine renewed. The Canada Research Chair is a prestigious honour created to promote Canada’s world-class research and development.

Dr. Timmons is the Research Director and Clinical Development Lead of the Child Health & Exercise Medicine Program (CHEMP) that aims to explore the roles of physical activity in advancing children's health and generate knowledge to promote exercise as medicine.
Self-expressed stories of non-speaking youth!
For the next Luke's Legacy Family Research Rounds, Sam Noyek will talk about Youth Telling Their Stories in Research: the self-expressed stories of non-speaking youth.

Sam Noyek is a Ph.D. Candidate at Queen's University in Rehabilitation Science, supervised by CanChild Associate Member Dr. Nora Fayed. Her research explores patient-reported outcome measures for medically complex children.

For questions or more information, please contact Kinga Pozniak or Rachel Martens at fer@mcmaster.ca.

Wednesday, June 23, 2021 | 7:00 to 8:00 pm ET (Ontario Time) | Online via Zoom or Facebook Live
CP-NET Meet the Expert Series!
CP-NET is hosting a Meet the Expert Series with Dr. Peter Rosenbaum! Join him LIVE on Monday, June 28, to ask your questions from his Science and Family Day (2020) presentation about new ways to think about cerebral palsy through the perspective of the World Health Organization's International Classification of Functioning, Disability and Health (ICF). Watch his talk here and register today!
Update: READYorNot™ Brain-Based Disabilities Project!
At the CHILD-BRIGHT Virtual Symposium on May 26, 2021, the research team shared a video update about the READYorNot™ Brain-Based Disabilities Project.

The project is developing and testing an e-health tool (app) to help youth, parents, and families transition from pediatric to adult healthcare. "As a person who is navigating the healthcare system myself, I can tell you this App is fantastic to help people with disabilities take that next step towards greater independence," says Nathan Tasker, a young adult member of the Patient and Family Advisory Council.
Recent Publications by CanChild Members!
Act Early Autism Project: The Feasibility of an Early Pathway to Care for Toddlers at Risk of Autism Spectrum Disorder
The Act Early Autism Project explored the possibility of a quick pathway to important early intervention for two-year-old toddlers at risk of Autism. The study was in three parts: 1) educating Ottawa about early signs of Autism; 2) screening toddlers for Autism; 3) providing three months of in-home parent-coached early intervention for toddlers who screened positive for Autism. Comparing before and after scores showed that the toddlers progressed in understanding and using words. Therefore, this study demonstrates a trustworthy way to get families on the right track to positive development for their toddlers and highlights the value of early intervention.
Authors: Gaines R, Korneluk Y, Quigley D, Delehanty A, Vismara L. Can J Speech-Lang Pathol Audiol. 2021;45(2):113-130. Available from: https://cjslpa.ca/files/2021_CJSLPA_Vol_45/No_2/CJSLPA_Vol_45_No_2_2021_1201.pdf
Cohort Profile: Multimorbidity in Children and Youth Across the Life-course (MY LIFE) Study
MY LIFE study aims to provide new information for understanding multimorbidity (co-occurrence of physical and mental illness) in children. This manuscript outlines the methods of the study, sample characteristics of the cohort, and baseline estimates to measure changes in the mental health of children with physical illness over time. The study design includes a multi-level, multi-method, and multi-informant approach to data collection. The cohort consists of 263 children, their primary caregiving parent, and data from siblings within three years old. The three-year age-gap criterion was chosen to ensure that the developmental periods of the two siblings are similar. The researchers presented the baseline data in a descriptive format with the hopes of fostering collaboration to forward the agenda in child multimorbidity research. Authors: Ferro MA, Lipman EL, Van Lieshout RJ, Timmons B, Shanahan L, Gorter JW, Georgiades K, Boyle M. J Can Acad Child Adolesc Psychiatry. 2021 May;30(2):104-115. Epub 2021 May 1. PMID: 33953762; PMCID: PMC8056956.
Reliability of Speech-Language Pathologists' Categorizations of Preschoolers' Communication Impairments in Practice
To assess the interrater reliability of speech-language pathologists' (SLPs) categorization of communication impairments in preschoolers, six SLPs at three community sites assessed 38 children aged 1-5 years using a clinical consensus document. Percent agreement and kappa coefficients were substantial to almost perfect when SLPs judged children to have age-appropriate communication, speech sound delay/disorder, or language difficulty/disorder. Findings are consistent with studies reporting SLPs can reliably categorize children’s impairments and abilities after clinical assessments. Future research may focus on confirming reliability for some less commonly occurring and broadly focused impairment categories. Authors: Cunningham BJ, Oram Cardy J. Am J Speech Lang Pathol. 2021 Mar 26;30(2):734-739. doi: 10.1044/2020_AJSLP-20-00239.
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