Caregiving: Guiding Care

June 2024

In this edition of Fresh Takes, we’re continuing to share stories about caregiving at every stage of life – from young children to older adults. We hope that this discussion can carry the conversation forward, and we are honored to feature the voices of people who work – on the ground and around the clock – to make New Hampshire a state where everyone is cared for, where everyone is heard, and where everyone belongs.

Guiding Care at the Mount Washington Valley Adult Day Center


Inside the Mount Washington Valley Adult Day Center, guests create art. Linda works on a block print. Marie works on a collage. Jerry paints a colorful sunset that, smirking, he titles “A Bad Saturday Night.” They sing together as they work, integrating music with their art: You Are My Sunshine, This Little Light of Mine.


The MWV Adult Day Center – located in Conway, New Hampshire – is a non-profit that provides care and resources for people with dementia and their caregivers. It is one of three New Hampshire providers selected to pilot a national program called Guiding an Improved Dementia Care Experience (GUIDE). The program, facilitated through the Centers for Medicare & Medicaid Services, helps pay for dementia care and caregiver respite as well as care coordination among medical providers. The GUIDE pilot will help expand adult day care coverage to 62 New Hampshire towns (up from 35) and serve an additional 63,000 people across the Lakes Region and North Country.


Lynn Coyle is the Director of the Center. She says that GUIDE will be crucial in providing care for the “whole family unit,” not just the individual with dementia. That includes caregivers and families, too. Those caregivers, she says, desperately need breaks from providing 24/7 care. They need time to care for themselves, to go grocery shopping, to have lunch with a friend. GUIDE will help provide that respite.

The GUIDE program aims to enhance the quality of life for individuals with dementia and lessen the strain on their caregivers by coordinating the proper care and resources. The GUIDE Model will include 24/7 access to a support line and caregiver training, education, and support services. This approach will allow people with dementia to remain safely in their homes for longer by preventing or delaying nursing home placement and improving the quality of life for both them and their unpaid caregivers. Learn more by vising the Center for Medicaid Services explainer of the GUIDE program.

If you live an hour or more away from a person who needs care, you are a long-distance caregiver. This kind of care can take many forms — from helping with money management and arranging for in-home care to providing respite care for a primary caregiver and planning for emergencies. With advance planning and organizing, caregivers can still provide support and assistance despite being long-distance. Watch the video below for a few tips for long-distance caregiving, or read more about long-distance caregiving here.

Resources:





  • Portraits of Caregiving in the U.S.: The National Alliance for Caregiving (NAC) is focused on translating the lived experience of caregivers into policy and innovation efforts to build health, wealth, and equity for America’s 53 million family caregivers. As part of this work, NAC has created a hub that showcases the stories of caregivers across the country to increase the visibility of Caregiving in the U.S. – the joys, challenges, and opportunities associated with caregiving. Click here to learn more or submit a story.
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