As caregivers, we tend to learn the hard way that we cannot control, reason, sweet talk, or bargain with our loved ones as they experience cognitive decline. We initially hope to affect radical change that will lead them to insight regarding their "behaviors.". Reality is in the mind of the perceiver. What we are perceiving is scary and uncertain. It’s as if your loved one has become a stranger in residence. It gets even more complicated and troublesome when what we really want is for them to be restored to their “original self.”
Is it wrong to wish for that? Do we just stop trying? How long before we admit the futility of our efforts? Can we set aside our desire for a familiar connection and work with this “new normal”? We will need to let go of the longing for warm regard, mutual goals, and plans for the future. We are confronted with apathy, a certain disconnection, and brain fog from our care receiver as they become disconnected from a life once lived.
Working to “empower” the care receiver is to create expectations. According to one caregiver, “We tend to work so hard to break through that fog, to get someone to experience vitality again. Sometimes being the cheerleader ends up with your pom-poms in a heap on the floor." We come face to face in the throes of grief regarding what is lost and what may never be.
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