Current challenges associated with the COVID-19 crisis could result in a closing of 3/4 of nonprofits in existence prior to the pandemic. For most organizations there has been a decrease in funding, loss of volunteer support, and a reduction in funding for research not related to COVID-19.
So why support Hope for HH? We are the ONLY nonprofit in the world dedicated to finding answers and supporting YOU – the patients and families affected by HH. Without this organization, there would no longer be advocates dedicated to pushing professionals to not let HH be one of the many topics that will be put aside for the next year!
The good news is we are an all volunteer organization that operates virtually. However, we still have operating expenses that have to be paid. We also desperately want to continue our efforts to provide up-to-date resources and fund cutting edge research whenever possible. We cannot do this alone! We need your help to continue the fight on behalf of this community!
Hope for HH was founded in 2009 by 5 mothers of kids with HH. Over the last 10 years, we have driven change in how HH is diagnosed and treated, defined HH as a complex syndrome, and supported critical research in HH imaging and genetic causes of HH. There is still so much left to do! Here are some things you can do to help us make a difference and keep the science focused on an appropriate treatment for everyone and perhaps one day, a cure for all.