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When a preemie finally leaves the Newborn Intensive Care Unit (NICU), many families face an unexpected cliff in their support system. For many, the journey doesn’t end at hospital discharge; it’s just beginning.
That's some of the insight found in Center & Care, a groundbreaking new study that reveals the hidden struggles of Black families caring for preterm infants.
Through intimate conversations with 20 Black caregivers, the research led by Dr. Kayla Karvonen uncovers the stark reality families with preemies face, from financial hardships to fractured medical support, while also illuminating meaningful solutions that could transform the experience.
With Black babies being born premature at rates nearly 50% higher than the national average, this study is not about identifying problems, it’s about revolutionizing how we support families when they need it most. Read on to discover the five critical areas where change could make all the difference, and how community organizations are already stepping up to fill the gaps.
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