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Center for Parkinson's Disease
Fall Newsletter
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Administrator’s Note
The rates of Parkinson's disease have doubled in the past twenty years and are expected to double again in the next twenty. This past August, Dr. Ray Dorsey and Dr. Michael Okun published their second book together - The Parkinson's Plan: A New Path to Prevention and Treatment - in which they outline a detailed strategy to change this trajectory, offering a plan to prevent, treat and slow the disease.
On Wednesday, December 3, and in collaboration with Stony Brook University's School of Health Professions, we look forward to hosting Dr. Ray Dorsey for a lecture, book signing and reception on the beautiful Stony Brook University-Southampton Campus.
We do hope that you will join us.
With gratitude,
Sarah
Sarah Cohen, Administrator
Center for Parkinson's Disease
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Welcome Isabella Echeverria, LMSW!
The Center for Parkinson's Disease is thrilled to welcome Isabella Echeverria, LMSW to our inter-professional care team. Isabella is a social worker who brings valuable experience working with diverse patient populations. She specializes in providing support to individuals and loved ones, as they navigate the challenges of chronic diagnoses. Her addition to our team strengthens our commitment to holistic, person-centered care. We are so excited to have her on board—welcome, Isabella!
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What is the role of Social Work on the care team?
Social workers play a key role on an inter-professional care team by helping patients and families navigate the emotional, social, and practical challenges that often accompany a Parkinson’s diagnosis. They provide guidance with care planning and decision-making, connect individuals with resources and support services, and offer education throughout every stage of the journey. Social workers also help patients and loved ones understand their feelings, explore options, and take the next steps with confidence. Their role ensures that care extends beyond medical treatment to address the quality of life and overall well-being.
"A Parkinson’s diagnosis can feel overwhelming, but you do not have to go through it alone—support is available for patients and loved ones every step of the way."
Isabella Echeverria, LMSW
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Afternoon at the Parrish
October 16
2:00 PM-4:00 PM
Join us for a social gathering at the Parrish Art Museum, designed for our Parkinson's community. Enjoy a relaxed afternoon of conversation, light refreshments and connection in a beautiful setting. For those interested, guided tours will be offered at 2:15 and 3:00 pm.
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Care Partner Symposium
November 8
9:30 AM - 3:00 PM
Join us at Stony Brook University-Southampton Campus to connect, learn and recharge. This event is designed specifically for care partners of people living with Parkinson's disease and will feature guest lectures, a panel discussion and wellness opportunities. In-home assistance available if required.
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Advance Care Planning Workshop
Mondays, Nov 24, Dec 1 & Dec 8
4:30 PM - 6:00 PM
Living with Parkinson’s brings unique challenges, but preparing for the future can ease uncertainty and provide clarity for you and your family. Dr. Sabrina Trammell will guide you through the key steps of advance care planning, helping you make informed decisions about health, finances, and care.
| | | | Community Connections ... | | |
Parkinson's Foundation Podcast
Host Dan Keller, PhD, interviews Parkinson’s experts to highlight the treatments and techniques that can help you live a better life now, as well as the research that can bring a better tomorrow. Monthly episodes focus on a range of topics, including new levodopa delivery methods, exercise, clinical trials, nutrition and more!
For more information click HERE.
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A Young Onset Parkinson's Disease Gathering
Saturday, October 26
Presented in partnership with the APDA and the Parkinson's Foundation, and hosted by the Marlene Meyerson JCC Manhattan, this one-day symposium focuses on real talk and interactive sessions about thriving with YOPD at home, at work and beyond.
To register, please email:
shakennotdeterred.org or call
585-743-1266.
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Stony Brook Medicine Parkinson's and Movement Disorders Center: Research Opportunities
Stony Brook Medicine's Parkinson's and Movement Disorders Center is actively recruiting for several clinical research studies. You may learn more here or contact Sandra Skinner at sandra.skinner@stonybrookmedicine.edu or (631) 444-7513.
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Mind Body Scheduling
Pre registration is required and assures you have a space in class. Connect with Ragan for assistance at: ragan.finalborgo@stonybrookmedicine.edu and visit the APP HERE.
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Senior Planet Tech Support Hotline!
Need help getting into Zoom? Senior Planet from AARP hosts a FREE tech hotline
Learn more HERE or call:
888-713-3495
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