January 2018
    Vol 7 Issue 1
From the Editor  
Welcome to 2018! I know 2018 brings a lot of changes in our cancer registry world, but we can handle it! We've done it before and we can do it again. Cancer registrars are resilient and strong - and we are all in this together. CRGC will continue to provide links to information about the 2018 Data changes from our standard setters as we receive them. In addition, I'm a firm believer of maintaining a sense of balance and of calmness as we traverse this new year together. So take a few minutes and enjoy reading the articles we have put together for you and then get back into the work you do that makes a difference.

We start this issue with an article by  Danielle Rodriguez, PhD, MPH of the cancer registry and Kyli Gallington, MPH of the Survey Research Group who provide a look at a new mapping tool and some of their preliminary findings.

And in case you've heard mention of the Cancer Data Modernization Consortium and wondered what it was - we've included a brief article about it and AB2325.

We also share with you a short piece from Dr. Robert McLaughlin who reminisces about what happened 30 years ago and asks for readers input on their memories and how they've been affected when cancer data collection started statewide.

We again provide a specific link to the CRGC website where you can find information regarding the changes coming in 2018. Currently posted are three webinars hosted by NAACCR on 2018 Implementation. We will continue to post relevant webinars and resource information to keep you informed. Please remember to wait until the CCR notifies all registrars when 2018 cases can be transmitted.

Lastly, Rebecca Cassady, Director of Region 5, shares information about an upcoming educational workshop to be held in April.

We hope you find these articles interesting and informative. As always, thanks for all you do to provide accurate, timely and complete data.

Smart Mapping: Predominance of cancer incidence and mortality and proximity to National Cancer Institute (NCI)-Designated Cancer Centers
Danielle Rodriguez, PhD, MPH
Research Scientist and Epidemiologist, CRGC
Kyli Gallington, MPH
Research Associate, Survey Research Group
Analyzing patterns and interpreting data for a wide range of audiences is a critical aim for research professionals. Data visualization methods range from data tables, graphics, maps, to fully-interactive web applications. Kyli Gallington, Research Associate for Survey Research Group (SRG), and I (Research Scientist for CRGC) have a strong interest in diversifying data visualization techniques.

For those who do not know Kyli, she joined PHI's SRG as a Research Associate in 2016. She has several years of experience conducting research and evaluation studies for community-based interventions. Ms. Gallington has expertise in both qualitative and quantitative data collection and analysis methodologies. She has experience conducting statistical analyses using SAS and STATA, and is skilled in geospatial analysis and mapping using Esri ArcGIS. In her current work, Ms. Gallington programs mapping applications and conducts geospatial analysis to select target populations and study samples, prioritize community-based intervention locations, and analyze geographic and spatial patterns in data.

Due to our shared interest, we decided to team up and explore a new data visualization technique using cancer registry data. We will be using Esri's ArcGIS platform. ArcGIS has many different methods to provide contextual tools for mapping and spatial reasoning so you can explore data and share location-based insights. When using GIS platforms, you can create a deeper understanding of where things are happening and how different sources of information may be connected. The tool we will be using to present our research findings is called Predominance Mapping. Predominance mapping is a smart mapping tool within ArcGIs that analyzes multiple variables of comparable data and displays predominant values, enabling patterns to easily be viewed and analyzed. For our purpose, we will be using predominance mapping to explore spatio-temporal patterns in cancer registry data. 

Click here for an example of interactive predominance mapping: 2008 Election VotingWe will be using 2010-2014 incidence and mortality data for the top 5 cancers for both males and females. Incidence rate ratios and mortality rate ratios were calculated by county relative to California rates. Data will be displayed by county and sex. We will also be mapping the location of each NCI-designated cancer center to compare spatio-temporal patterns of cancer in counties with and without NCI-designated cancer centers. Although not all analyses have been conducted yet, we did discover some spatio-temporal patterns that suggest disparities in the predominant cancer site. This suggests more investigation to be done looking at stage at diagnosis, access to care issues, and potentially differences by race/ethnicity.

We are very excited to continue creating this interactive mapping tool to share with the scientific community. Our intent is to create a tool that can be used on the CRGC website for public use. Once it is created, we will write up another article for CHATS to announce its availability. 
Cancer Data Modernization Consortium
Mignon Dryden, CTR
Director, E-Reporting, CRGC

The Cancer Data Modernization Consortium (CDMC) is a membership organization managed by the California Cancer Registry (CCR) and the California Society of Pathologists. Its mission is to improve patient outcomes by modernizing how data is currently collected and utilized. It is working toward near r eal-time reporting of incident cancer cases through electronic submission of all reportable pathology reports to the CCR. As you are aware, AB2325 was passed September 2016 and requires all California pathologists to electronically report cancer cases to the CCR by January 1, 2019. This includes all pathology labs including those housed in hospitals. The CDMC, through its various committees (Policy, Outreach and Communication, Data Analytics and Research Development, Standards and Technology, and Business Operations), advise the CCR on a wide range of issues. Currently it is advising the CCR on how best to achieve real-time electronic reporting and promote broad use of the data.

The CDMC recently held a meeting in Sacramento on January 10th and 11th. The first day was filled with working committee meetings while the second day centered around the CCR's Strategy Roadmap and specific projects that the CCR has begun or has plans to start. Highlights included the implementation of electronic pathology reporting (AB2325); an update on a Natural Language Processing project; Clinical Trials linkage; Rapid Case Ascertainment in LA, and presentations on the use of registry data sharing such as a county HPV project as well as a Hepatitis B & C project. There were also presentations of "Genomic Data"by Laura Chu of Genentech and "Opportunities within Radiation Oncology" by Sukveer Singh of Varian. 

The CDMC will continue its work with the cancer reporting community, likely turning to how best to facilitate clinical trials using registry data at its next meeting.
Data Collection in California - Hits 30 Year Mark!
Robert McLaughlin, JD, PhD
Special Programs Advisor, CRGC
This year, 2018, marks thirty years of data collection in California pursuant to the state statute enacted in 1985 and establishing California's statewide population-based cancer surveillance system as we continue to know today.
In the spirit of the new year and singing Auld Lang Syne to bring forth fond memories, let us know if you remember the implementation of cancer reporting and how it may have changed your work, career, and ability to contribute to population-based cancer science in the service of public health.  We'd love to hear from you!
Thoughts and reflections can be sent to [email protected]; please indicate if your memories can be shared in future CHATS newsletters during this 30th Anniversary Year.
2018 Data Implementation Posted on CRGC Website

CRGC has created a special location on our website regarding 2018 Implementation and Data Changes to help keep our registrar community informed. Currently posted are three webinars, hosted by NAACCR, that we found especially helpful. Check them out when you can!

We will continue to post resources and other webinars on 2018 Data Changes to this site as they become available. We hope that having one spot to look for information regarding the changes coming in 2018 will prove helpful to each of you. It is under CRGC Website/Registrar Resources/Registrar Education.

Region 5 Update
Rebecca Cassady, RHIA, CTR
Director, DSCSP
DSCSP, Region 5 of CRGC will host their Annual Educational Program on Wednesday, April 11, 2018 at the Wong Kerlee Conference Center at Loma Linda University Medical Center.   John Morgan, DrPH, Dan Curran, MS, CTR and Mignon Dryden, CTR will be participating in the program.  The program agenda will be distributed in March 2018.
Cancer Registrar Feedback
If you have questions, comments, or suggestions for Chats contact Mignon Dryden at [email protected].
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