Take this FAST ACTION today: Submit an “AS in ACTION” photo of your loved one today!  

If you haven’t yet, submit a photo or video of your loved one with Angelman syndrome today for a chance to be featured on social media in the coming weeks and months.

Some moments to highlight ‘AS in action’: Walking with a gait trainer, eating with a spoon, laughing, swimming, or at therapy!

We are excited to announce the launch of FAST’s new electronic journal, FAST-DART (FAST-Data Analysis, Reviews, and Techniques), dedicated to making all data related to Angelman syndrome (AS) research accessible. This journal will also serve as a platform for researchers to share specific research findings, provide instruction on new and technically challenging experimental procedures, and offer reviews of specific areas of ongoing AS research. This initiative will encourage future scientific collaboration and allow others to build upon the discoveries of those who came before them. It reflects our ongoing commitment to transparency, collaboration, and the advancement of scientific knowledge.

Learn more:

Thank you to all our Angelman syndrome advocates that were with us in D.C. and those who helped from home! FAST and ASF are so grateful for this community’s ongoing support and dedication.  

This year, we had 134 advocates attend in-person, representing 30 states and facilitating 143 meetings. From home, we had 425 supporters send 1280 letters, from an additional 12 states. In total, 42 states were represented, and 559 digital and on-the-ground advocates took action. 

Read more on our advocacy success and the status of last year’s asks:

The EL-PFDD Meeting for AS with the FDA is just 6 days away, on Monday, April 7th. Check out our website for the meeting agenda and join us for any or all of the event!  

View agenda:

We want to take a moment to acknowledge a recently published study that explores mortality risks in individuals with Angelman syndrome (AS). While this is a sensitive topic, it is an important step toward ensuring that individuals with AS receive the best possible care and preventive support. 

With greater awareness, caregivers and clinicians can implement early interventions that may reduce health risks and improve quality of life. 

Read more:

From Washington to Maine, and around the globe,  Angelman syndrome families will be hosting local fundraising events to raise awareness and funds for FAST this year. Join one of these events near you and meet other families in your area. 

Find an event near you:

Need help with an event or are we missing yours? Email fundraising@cureangelman.org today.

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