AUGUST 17TH, 2022 NEWSLETTER

Dear Cure,

Thank you for reading and for being a part of the FAST community. Our accomplishments would not be possible without the continued generosity, passion, and support of members like you.

Beginning this week, we’ll be sending you a regular newsletter to keep you informed about upcoming programs and events, research developments, and other updates from FAST community members.

If you have updates you would like to be included in next week’s newsletter, please email us at info@cureangelman.org. Thanks and enjoy!

Chief Science Officer Allyson Berent wrote a blog in response to thoughtful questions from UPD/ICD community members. Don’t miss the insightful Q&A:

If you or a loved one has specific questions for FAST, please email info@cureangelman.org. We’ll try to post the answers regularly on our website.

Members of the Haymaker Swim team swam in a Swim-a-thon on Wednesday, July 7. Prior to the event, the swimmers asked friends and family to sponsor them (either per lap or a flat donation). The team — which includes Myla and Maddie Kovacs, whose brother, Caleb, was born with Angelman syndrome — raised a total of $2,765 for FAST!

Thank you to everyone who participated!

Have you heard? Parents and grandparents of individuals living with Angelman syndrome can apply for a ticket giveaway, and parents can apply for an event scholarship, for the 2022 Global Science Summit & Gala!

The 2022 Global Science Summit & Gala is the largest gathering of Angelman families worldwide. This unique two-day event will take place on December 2–3, 2022, at the Diplomat Hotel in Miami, Florida. Attending is a wonderful opportunity for the Angelman community to connect with researchers, network, learn about the astonishing science and pharmaceutical advancements, and raise money to fund research that will move new treatments for Angelman syndrome forward.

FAST is pleased to announce five new members to the FAST Advisory Council (FAC). These new members will volunteer their time to advance FAST's ongoing needs, including scientific and medical communications, fundraising, business, and organizational assistance, data management, advancing public policy, and many other support areas. The FAC's work will better allow FAST to serve this community and meet our goal of finding a cure for Angelman syndrome.

Thanks for reading, Cure! We’re looking forward to providing more regular updates throughout the fall and winter, and hopefully seeing you at our gala in December.