July Newsletter!

Power of 18 Challenge Starts August 1st!

The 18 Day Challenge is about to start tomorrow! Now is your chance to do your part to support vital Chromosome 18 research and have fun at the same time! Are you ready to challenge yourself, see how much you can grow in 18 days, and support chromosome 18 research all at the same time? Join us from anywhere in the world and let’s take on the 18-day challenge HERE

30th Annual Family Conference in Niagara Falls, Canada

2025 conference was amazing! We had over 410 people attend and 450 people join us for the Starfish Dinner and Dance. Thank you to our Canadian committee for hosting everyone in beautiful Niagara Falls, Ontario.

In 2026, conference will be back in San Antonio, TX at the Westin San Antonio North, July 12-15, 2026. Hotel reservations will open at the end of the year and we hope to see you soon! View the full conference stats here.

Huge Thanks to Rick Guidotti from Positive Exposure for capturing so many special moments and families. Password to Rick's album is - amazing

Conference Photos

Rick Guidotti - Positive Exposure Conference Photos

Events

August 1-18: Power of 18 Challenge!

August 2nd: Danny's Squad 4th Annual Regional Fundraiser in Broomall, PA

August 18: Facebook Live

August 21: New Family Resource & Info Call

August 24: Chromosome 18 Family Picnic in Glen Ellyn, IL

September 14: 3rd Annual Family Potluck at Pool Party in Napa, CA

September 18: Pitt Hopkins Awareness Day

September 25: Tour & Talk Virtually with founder Dr. Cody at the Research Center

Every month, Chromosome 18 goes live on Facebook! Watch July's Facebook live with the staff at the annual family conference! WATCH HERE

Clinical Research Center

Thank you to our families who participated in the Clinical Research Center tests and videos! We have 5 families enrolling in the research study, 4 FSHD2 Screening Videos completed by Dr. Karkar and 8 Scratch-n-Sniff Smell Tests were completed. To learn more about enrolling in the Chromosome 18 Research study, please email mccarthyc@uthscsa.edu

GIVE TODAY

Panera Fundraiser - Charlotte, NC

A Huge Thank You to Mike & Kristen Yerys who hosted a Panera fundraiser and raised almost $500 by bringing along some friends for a fun get-together. Pictured left is one of the amazing families who attended (top), and Mike Yerys, one of the hosts (bottom right). Thank You to Panera, the Yerys family and everybody who came out to support this event.