September Newsletter!

Starfish Soiree and Golf Tournament are almost here!

Join Us for a Fun-Filled Day of Golfing – Supporting Chromosome 18 Families!

Tee off for a great cause! We invite you to a meaningful and memorable day at Canyon Springs Golf Club in San Antonio, where every swing supports children and families affected by Chromosome 18 conditions. Also included in your registration is a fun night at the Starfish Soiree that happens the night before the golf tournament. Can't make it to San Antonio? Learn how to sponsor a family hole here.

Glasglow Chromosome 18 Family Gathering

Thank you Families from near and far that came together in Glasglow, Scotland for an international Chromosome 18 Family Gathering! It was a wonderful opportunity to connect across borders, share stories and strengthen our global bonds that make the chromosome 18 community so great. Thank to everyone who helped put this event together and joined in. View photos here.

Regional Napa Family Gathering

A heartfelt thank you to the Fidler family for opening their home and hosting such a wonderful regional gathering in Napa, CA! It was a beautiful day filled with connection and celebration. We're so grateful to all the families who came out to share time together. These event remind us what the Chromosome 18 community is all about! View the photos here

Pickleball Clinic in Denver, CO!

Thank you to all the families and friends who joined us for the Pickleball Clinic in Denver, CO! It was such a fun day of connecting, playing and sharing time together. A big reminder - regional event like this can happen anywhere! Families, if you'd like to host something in your area, let us know and we can help you make it happen. View photos here.

Events

September 27: Pickleball Tournament in Denver, CO

October 9 & 10: Starfish Soiree and Annual Golf Tournament in San Antonio, TX

October 16: Bingo Night!

October 18: Facebook Live

October 26: Cornhole Tournament in Dallas, TX

October 30: Tour & Talk Virtually with founder Dr. Cody at the Research Center

October 30: Family Costume Dance Party!

Every month, Chromosome 18 goes live on Facebook! Watch September's Facebook live with self-advocate, Rebecca Parker as she shares about her life. WATCH HERE

Clinical Research Center

Each month, the C18 Research Team shares important updates shaped by the work they do for Chromosome 18 families—like yours. This month, Dr. Gelfond introduces the new Chromosome 18 Clinical Dosage Map web app, a tool built specifically for our community.

Why does it matter? Because it helps you better understand how genes impact health—turning complex science into useful, family-focused insights.

Watch and learn more here.

Fundraising Thermometer!

The Chromosome 18 Registry has had a amazing 2025 so far for fundraising. Because of your generosity, dedication and belief in our mission, we've already raised $709,225 - bringing us to 78% of our 2025 budget goal! Let's finish the year strong together and make 2025 the most impactful year yet! Thank you for being a part of the Chromosome 18 family!