March/April 2023


"Promoting Health, Preventing Stroke."

A message from the Executive Director


Hello, and welcome to Circle of Rights’ Newsletter.


For more than a decade, Circle of Rights has fought the devastating effects of stroke and other cardiovascular diseases on survivors and their families and friends through public education and advocacy.


With zero staff, a cadre of volunteers and contractors, and the support of government grants and private donors, CoR has given educational presentations to hundreds of residents of the Washington, D.C. metropolitan area in multiple languages, including Gujarati and Urdu, the official languages of India and Pakistan, respectively.


Our presentations are offered free of charge and cover the signs and symptoms of stroke, as well as the risk factors such as high blood pressure, heart disease, diabetes and high cholesterol. We travel throughout Montgomery County, our headquarters, to senior centers and service club meetings, schools and churches, shelters for the homeless and jails. In our neighboring county, the organization sponsored “Beyond Wellness: A Conversation About Stroke” as part of the health and wellness component of Prince George’s Sports and Learning Complex’s Fitness Center’s Open House.


We target all age groups like young women with children under the age of four at the Family Discovery Center (formerly called Families Foremost), an organization that provides adult education and employment readiness programs. Stroke doesn’t discriminate. It is not just for the elderly, as many people presume. I was nine years old when stroke changed my life. This very newsletter is spearheaded by our Young Stroke Group, made up of survivors anywhere from 20 to 60 years of age. This newsletter is meant to spread stroke awareness to as many as possible. Although we are headquartered in Maryland, I am honored to mention that our meetings attract members as far away as California, Louisiana, Michigan, Florida and Maine.


Our plan is to publish this newsletter on a regular bimonthly schedule. Stroke survivors write most of the stories and do the newsletter formatting. Our audience includes survivors of stroke and traumatic brain injury, care partners and caregivers, family members, the medical community, and members of the public.

 

Many people in the United States learn the basics of stroke when a loved one has a stroke. Often, they get a thumbnail sketch of what caused the stroke, and as a result, have not learned the warning signs or consequences of a stroke.  May is National Stroke Awareness Month. My challenge for you: Learn the warning signs of stroke by heart and teach them to another person. We encourage you to talk to us and suggest topics that you’d like us to explore. 


-Sue

Springtime Pot Pie

Springtime equals color! To make the perfect pot pie, make it colorful by choosing carrots, pies, and if you are daring, beets for sweetness!

Click here to see the recipe

Did you add weekly exercise to one of your New Year's resolutions a couple months ago and just haven’t gotten around to it? Or are you wishing to build a healthier body and maybe you just haven’t budgeted for it? We get it. And so does Montgomery County. 


This year, Montgomery County Recreation centers are offering FREE gym memberships to all Montgomery County residents over the age of 14. The pass offers access to fully-equipped fitness rooms, drop in gym activities, and even the game rooms at any Community Recreation Center during scheduled hours. Check out the locations.


To apply, please visit any of the above locations during scheduled business hours with the following:


  1. Proof of residency (a photo ID with an address)
  2. A current utility bill


Please note, youth ages 14-15 with a valid resident youth pass are able to use a fitness room only when accompanied by a parent/guardian with a valid fitness pass. The fitness pass does not include access to aquatic centers.


Click here for more information.

Click for more information

Circle of Rights’ in-person health advocacy presentations resumed in August of last year after being on-hold for two years due to the COVID-19 pandemic. Since August, Circle of Rights has had the opportunity to present at Rockville, North Potomac and White Oak senior centers, and Gaithersburg Presbyterian Church. We also have had the chance to present virtually at Shri-Yoga, yoga to calm and challenge participants, and at the Young Stroke Group. Our Heart Disease and Stroke Presentation, which can be viewed here, is a valuable tool to increase health literacy in our community and to promote our mission of Promoting Health and Preventing Stroke.


Our audience has ranged from five to forty individuals. Two Heart Disease and Stroke presentations were done in-house by our public health contractor Surbhi Sardana; website developer and stroke survivor, Nikita Guest; and operations contractor, Isha Lallsa. Two presentations were made by medical students from the Universities of Shady Grove, spearheaded by assistant professor Karin Russ. In late April, we were excited to have fitness coach Neal Stokes from DreamFit Wellness revisit North Potomac and White Oak senior centers, with Mitch Stengal and Steven Fischer giving the stroke survivor’s perspective. Neal also gave a virtual presentation to the Young Stroke Group. And last but not least, our Gujarati leads, Nishtha Sanghani and Shivangi Ganatra, gave the Heart Disease and Stroke presentation to the Shri-Yoga community, with Shelli Beard sharing her stroke experiences.


Please contact Isha Lallsa at ishalallsa@gmail.com for a full list of locations and times of this year’s upcoming presentations. Please reach out if you are interested in setting up a presentation for Montgomery County Maryland. We will be reaching out to other communities in the near future.


We are currently working on other presentations such as cholesterol, diabetes and blood pressure. In addition, Circle of Rights is thrilled to be expanding our reach into alternate language communities, beginning with Urdu and Gujarati. Our volunteers are working diligently to translate our Heart Disease and Stroke presentation into these respective languages.

Kellee's Korner

Happy Spring! It’s so nice to see lovely daffodils and tulips blooming! The YSG members welcomed new faces during the last two months, including residents from Connecticut, California, and NoVA. There were interesting topics discussed at the YSG meetings including, how to improve sleep, solutions for beating wintry weather depression, sound therapy/vibration, sensory processing issues/solutions for stroke survivors, and how to communicate with stroke survivors who are not interested in attending weekly meetings, but prefer other methods for stroke related education and issues. Dawn, a new YSG member, facilitated an informative meeting, which generated great ideas!

 

Neal ended the last winter meeting on March 28th, and he discussed how we can gain more muscle by eating healthy calories with protein!


Neal offered YSG members some great tips to incorporate more protein in our diets to gain lean muscle mass:

  1. Incorporate protein powder into diets- plant-based protein, hemp, and dairy protein powders are available in stores, or online.
  2. Supplement protein to double or triple protein intake.
  3. Eat nutrient dense meat- food that digests more slowly, and fruits and veggies are great for snacks as well!
  4. Do compound exercises- (2 exercises at once, using arms and legs)- do shoulder raises, and leg raises/curls in your chair.
  5. Neal also mentioned that adding more weights puts more tension to help gain muscle, and using weight machines is safer, we can add weight more safely, and also help us with balance.
  6. Neal's last tip was to make sure we get enough sleep each night, because when we are stressed and are not sleeping well, our cortisol levels rise, which is not good for any of us!


Thanks to Neal for his educational and interesting tips we may all benefit from!

Resources

Prevent Stroke

Centers for Disease Control


Stroke Basic Information

National Institutes of Health

Stroke Facts

Centers for Disease Control


*Careers Fair*

Montgomery County

Survivors Story :  Kamaria T. Richmond

A Q&A with Kamaria T. Richmond

Location: Mitchellville, Maryland

Occupation: Producer and Host of The Stroke Diva Fabulous Show

https://linktr.ee/kamariatrichmond

 

In 2004, Kamaria had a hemorrhagic stroke on the left side of her brain. It robbed her of her ability to read, write, walk, and talk. With therapy, willpower, and the determination to rebuild her life, the aspiring media personality started an online radio show that is now in its 12th year.

 

Q:     What was life like before the stroke?

 

K:     I worked for Nordstrom for almost 10 years. My last position was the East Coast Assistant Buyer for St. John. And I worked at White House Black Market for three months as a Manager.

 

I was active in my church, Unity of Washington, D.C., as a lay-leader and in the prayer ministry. I spent time with family, friends, and my sorors of Sigma Gamma Rho, Sorority, Inc. I loved driving, traveling, dining out, dancing, wine tasting, going to the theatre, museum hopping, reading, writing, and more. I had an extremely active lifestyle.

 

Q:     Describe the day that it happened.

 

K:     I had the stroke in November 2004, a few days after Thanksgiving. I had been having horrible headaches for a few days. I was suffering from symptoms of sarcoidosis[1] and a thyroid condition. I was really sick, I could barely walk. Around 3 a.m. or 4 a.m., I tried to send an email to a friend and could not read or write. I thought I was just tired. I went to bed and woke up 18 hours later when emergency medical technicians broke down my door and rushed me to the hospital.

 

Q:     What was your hospital experience like?

 

K:     The first hospital did not have a neurologist on staff. I was transferred to another hospital and waited for what seemed like hours for a doctor to see me. My family was present during the time of the ambulance arrival and hospital visits. I do not remember when I was told I had a stroke. I knew I had a bleed on the left side of my brain. It was a very scary time. I'm told I took it all in stride. I had no idea what was going on in the beginning of this journey. I was 37 and at that time, it was not common for someone so young to have a stroke.

 

Q:     Describe the challenges that it left you with, and how did you deal with them.

 

K:     I learned how to read, write, walk, and talk all over again with cognitive, vision, occupational, physical, and speech therapy. I still have challenges in reading and writing, vision field cuts/deficits, cognitive ability, and short-term and long-term memory loss. I thank God, family and friends that I have made it this far.

 

Q:     How did this experience lead to the creation of The Stroke Diva Fabulous Show?

 

K:     My sorority sister, Ananda Leeke, created the platform for me to get engaged on social media to help me become a part of what was going on in the world. I had become very isolated. My major in college was Radio, Television, and Film with a minor in Afro-American Studies. So a podcast was the perfect fit. And it became, and continues to be, a part of my cognitive therapy.

 

Q:     Describe the show and how it has evolved over the years.

 

K:     My podcast highlights entrepreneurs, authors, educators, leaders, artists, and people from all walks of life. I interview and share their stories; whatever they are working on, with my audience. The show is live and recorded and I post on social media. Since 2011, I've used the platform TalkShoe.com. Now, I also upload to Anchor/Spotify and use Canva for graphics to post the show on social media. It has been a huge learning curve.

 

Q:     What lessons have you learned from the people you interview?

 

K:     I learn something new with every interview. I am inspired by my guests. Almost everyone has something they are overcoming and they want to share it with the world to make themselves and others better. I think we are all looking to live our best life, but sometimes it takes a little longer when you are faced with a devastating life-altering challenge.

 

Q:     Any advice for new stroke survivors about courage, tenacity, following their dreams or even forging a new path?

 

K:     I am short on advice, except to say, stay positive, stay hopeful, stay prayerful, ask for what you need from your doctors, healthcare professionals, therapists, family, and friends. Tell yourself and believe that you will get through it. It will not be easy. It will take time. But, stay the course. It's never too late to accomplish your dream or even have a new dream. All things are possible. Just BE in the present moment. I thank God for my miraculous life lesson and blessing every day.

 

Q:     What would you say has surprised you about having a stroke? What have you learned from it?

 

K:     I was surprised at having a stroke at the age of 37. Life was busy, fun, sometimes stressful. I had so many hopes and dreams for my future and they were cut short, so I thought at the time. But, I have learned you can overcome any challenge with God, family, friends, and great doctors by your side. I've learned that I am stronger than I ever realized. And, each day is a blessing and a chance to move forward to becoming the best version of myself possible.

 

Q:     What’s next?

 

K:     I started writing a book about my journey some years ago. It is about how social media has helped me navigate the digital world we live in. I'd like to finish it and I would like to keep learning, growing, and getting better in every area of my life.



[1] Sarcoidosis is a disease characterized by the growth of tiny collections of inflammatory cells in any part of the body, most commonly the lungs and lymph nodes. It can also affect the eyes, skin, heart, and other organs. There is no cure. Source: Mayo Clinic

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