The National Federation of Families (NFF) is partnering with Alkermes, a global pharmaceutical company, to help them to learn more about the perspectives of families regarding clinical trials. Alkermes believes that the most important feedback they can collect is from families. They are very interested in the experiences families have had with clinical trials and/or reasons why they may not consider enrolling their children.
NFF is reaching out to family-run organizations nationwide to ask that you share this important survey with the families you serve. This feedback will help to shape future clinical trials for children and adolescents. Please help us to provide a strong family voice.
As always, thank you for the amazing work that you do every day.
Lynda Gargan, Ph.D.
Executive Director, National Federation of Families