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As we head into the Passover and Easter holidays, I am thinking about how much of our lives are reflected in history, ritual and family. One of my favorite things about the Passover holiday is about the seder or the service which means ORDER in Hebrew. In our messy lives it is helpful to have the comfort of knowing what is coming next.

Navigating health care – if you are doing it for the first time or while encountering poor health – it can be confusing and the opposite of comforting, which is why having someone by your side can be a huge help!

At HealthAdvocateX, we are committed to helping individuals and families, professional advocates and allied professionals and providers include health advocacy in all aspects of health and health care. We hope you will take advantage of our programs this month!
Wishing You A Beautiful and Meaningful Spring Holiday Season
(Happy Passover/Happy Easter)!
Be well, 

Robin Shapiro and the Team at HealthAdvocateX 
Community Conversation - April 2023

When: Monday, April 10, 2023 11am – 12pm (PT)
Where: Online via Zoom (Register Here)
Cost: FREE!

In honor of National Health Care Decisions Day (April 16, 2023), we will be discussing the importance of advance planning and basic skills that can help any patient be safer. We have invited patient safety leader and expert Ilene Corina, founder of the PULSE Center for Patient Safety and Education. In addition to hearing updates about COVID-19 from Dr. Dale Reisner, MD, we will hear from Ilene what she has learned about individuals and families who are engaging in important advocacy work to help protect patients
Speakers Include:
Ilene Corina is the president and founder of Pulse Center for Patient Safety Education & Advocacy a community based patient safety organization. She started Pulse in 1996 as a monthly support group for patients and families who had experienced medical injury following her own personal experiences.
Dale Reisner, MD, Healthcare Quality Improvement Consultant and former Medical Director (OB/GYN Quality and Safety) at Swedish Health Services
Our Next Case Review is April 13:
An Aging Icon is also a Vulnerable Senior
Case Review – April 2023 
An Aging Icon That Was Also a Vulnerable Senior 

Case Review is a FREE benefit of HealthAdvocateX Membership (for Professional/Partner Members). To participate, send us an email at info@HealthAdvocateX.org. 

When: April 13, 2023 | 4pm – 5:30pm (PT) 
Where: Online via Zoom 

A 70 year old woman fell down a flight of stairs. A Pandora’s box revealed misdiagnosis, financial fraud and caregiver coercion. 

  1. Determining and understanding the needs of personal review and evaluation by advocates with each client. 
  2. Helping a client understand the needs required by their healthcare and financial agents. Then with this knowledge, helping them choose these agents. 
  3. Helping a client determine the different options of living and lifestyle for them and then helping them choose the best option. 


The Case will be presented by Caryn Isaacs, Private Professional Patient Advocate who finds ways for Aging Icons to continue their life mission regardless of aging or illness. 
Caryn Isaacs has over 40 years of experience helping people to navigate the health system as a former representative of business and labor organizations.
As a leader in the Clinton era health reform movement, Caryn recognized early on that it was becoming increasingly difficult for patients to find a single source of information about health care options, legal issues and financial planning. Caryn’s company GetHealthHelp.LLC specializes in communication between all the players including family and friends or addresses the lack thereof, people known as Elder Orphans.

Caryn Isaacs tells stories and facilitates interactive programs that empower people to zero in on the obstacles and opportunities to reach goals that they never thought possible.

Here’s what people say about Caryn “When they say there’s nothing that can be done, it just means that they don’t know what to do, Caryn always does.” You can see more about Caryn Isaacs and view some of her videos, blogs and stories at GetHealthHelp.com and soon at AgingIcon.com. You can also see her on Facebook, Instagram, and LinkedIn, plus hundreds of Google spots where Caryn is interviewed as the expert in her field.
XCenters Will Launch in 2023 – With Transgender Friendly Care XCenter
In 2023, HealthAdvocateX will be launching a new initiative called ‘X-Centers.’ The concept behind these centers is to provide credible, understandable and actionable information on a variety of topics through the lens of health advocacy. We want to highlight X-Centers as a Center for Excellence, where ‘X’ stands for every individual’s experience, a reference to the superscript X in our name, HealthAdvocateX.

We are excited to be partnering with Malynnda A. Johnson, PhD, Associate Professor and Director of Graduate Studies for the Department of Communication at Indiana State University, who is conducting research and developing training materials to improve trans friendly care with medical providers and patient advocates. Her goal is to incorporate actual experiences from the Trans population as well those who may have been or are advocates for patients.

For Advocates
We will be launching this X-Center with a 4-part Live (and On-Demand) training module that will also be available for BCPA continuing education. If you are an advocate interested in learning more or if you are interested in being listed as a trans friendly advocate resource, please contact us at info@HealthAdvocateX.org.

For Transgender Patients/Family Members
If you would be willing to be interviewed as part of the project or would be interested in learning more about transgender advocacy please let us know. She can be reached via email at Malynnda.Johnson@indstate.edu
ICOPA On Demand
This on demand course covers recorded sessions from the ICOPA Conference (April 28-30, 2022). The whole conference is available as a bundle, and there is no option for individual session purchases. For ICOPA attendees who have already paid a registration fee, we are offering special pricing. 

Board Certified Patient Advocates (BCPA):
These sessions are available for BCPA CEs (9.5 CEs). Your purchase includes access to the event recordings that originally took place on April 28-30, 2022. It also includes materials related to the presentation (slides, Q&A, etc.).

In order to receive your BCPA 9.5 CE credits (with two counting as ethics CEs) as per PACB requirements, you must complete a post-assessment for each session. Instructions for how to access the recording and assessment will be provided via email after completing registration. Certificates will be delivered via email upon purchase. Completed and signed certificates must be sent to the Patient Advocate Certification Board in order to obtain credit.

Click the button below for more information on the individual sessions as well as the objectives and CE instructions
Are you looking for a way to extend your opportunities to educate the public about health and patient advocacy? HealthAdvocateX licenses two presentations and offers a ‘Train the Trainer’ package for these two topics:
  • The ABCs of an Effective Doctor Visit
  • Taming the Medicine Cabinet

Each Train the Trainer Package includes:
  • PowerPoint presentation and script for the topic represented, which will include an introductory slide for the presenter approved to give the presentation
  • Electronic copies of materials including:
  • Handouts of Scenarios/Role-Plays
  • Self-Learning Quiz (where applicable)
  • Feedback From
  • Flyer Template
  • Presentation Description

To license the presentations and register for the training:
- Sign and Return the License Agreement/s - (ABCs of an Effective Doctor Visit & Taming the Medicine Cabinet)
- Pay for the Presentation Train the Trainer (we will invoice you as soon as we receive your signed license agreement(s)).

Do you have questions about this? Email us at info@HealthAdvocateX.org
Many advocates have been contacting us as you are trying to finish up earning your CEs for the year. We have more than 20 CEs currently available with bundled pricing available for two conferences:
  • Health Advocacy Now: Lessons From the Pandemic 2021 Conference (11 CEs Available)
  • Whole Person Advocacy: Integrating Mental Health 2020 Conference (10 CEs Available)
  • Health Literacy: The New Vital Sign (1 CE Available)

For more information and to have access to these CEs, visit: https://www.healthadvocatex.org/ces/ 

HealthAdvocateX Calendar
April 10: Community Conversation - April 2023 (Register Here)
April 13: Case Review - An Aging Icon That Was Also a Vulnerable Senior
Programs & Presentations
Although HealthAdvocateX speakers can give presentation on many topics, here are a few of our popular presentations: 

  • Advance Care Planning (In partnership with Honoring Choices)
  • Taming Your Medicine Cabinet
  • The ABCs of an Effective Doctor Visit
  • Patient Know More...Patient No More!
  • The Emerging Field of Health Advocacy 
  • Safe & Sound in the Hospital: A Short Course in Patient Safety 
  • Volunteer Health Advocate Training: Understanding the Role & Skills to Be Effective

To schedule a speaker for your community, please submit your request here: https://www.healthadvocatex.org/presentations/

Have a topic you wish we offered? Let us know - let's talk!
Inclusion, Diversity, Equity and Access (IDEA) Statement

Approved by the Board September 21, 2022
Inclusion, Diversity, Equity and Access (IDEA) Statement

Our mission is to help people transform into active participants and partners in their own health care. To make this possible, we must advocate for inclusion, diversity, equity, and access (IDEA) for all individuals.
We recognize that:
  • Racism is a public health issue that impacts various intersections and communities differently.
  • Each person is unique and therefore experiences health care differently.
  • Every individual deserves health advocacy regardless of their race, ethnicity, language, nationality, gender, sexual orientation, gender identity and expression, spiritual practice, financial status, education, geography, disability, mental and physical status, age, weight, substance use disorder or other factors. 
  • Our organization is uniquely positioned to raise awareness on IDEA in health and health care.
We are committed to:
  • Raising awareness about the importance of IDEA in health and health advocacy in all aspects of care.
  • Expanding diverse representation within our organization, expert presenters, and educational offerings.
  • Intentionally messaging our values, sharing IDEA expectations for ourselves, affiliated advocates, and partnering groups.
  • Creating space for respectful dialogue about representation, equitable access, and inclusive practices in health care and health advocacy.
  • Educating our community and participating in opportunities about IDEA events and exercises to keep these issues in the forefront of our work.
  • Implementing systems to ensure IDEA is pervasive in our organization.
We will reflect on our accomplishments with humility and grace. We will recognize our limitations and remain open to what we may not see or realize so that we can improve and or repair any harm. 

Land Acknowledgement

HealthAdvocateX is headquartered in Seattle, Washington. We acknowledge that we are on the traditional land of the first people of Seattle, the Duwamish People past and present, and honor with gratitude the land itself and the Duwamish Tribe. We invite you to join us in acknowledging and thanking indigenous people for their ongoing stewardship wherever you are located.
Land Acknowledgement Challenge

Will you help us? We invite YOU to research and submit the name of the people, your location and how you would word your own personal land acknowledgement. Our Board will be selecting and reading land acknowledgements from across the country at our Monthly Board Meetings. You can submit it here: https://www.surveymonkey.com/r/hadvx-land-acknowledgement

Do you have something you would like to share with the HealthAdvocateX community?

Please submit ideas to info@HealthAdvocateX.org