Community Newsletter  
Late Summer/Early Fall 2016  
Focus On Our Patients
Mark Mintz, M.D., President, CEO & Founder 
 

Mark Mintz Photo
In light of CNNH's ten-year anniversary this past December, we have spent more time than usual reflecting on our Core Values and our organizational Mission . While we may have altered the wording, the essence remains the same: patient care . Making a difference in the lives of each patient we serve is why we started CNNH and why we are committed to its ongoing success. Additionally, we recognize the ongoing selfless dedication of family caregivers. 



CNNH Parent Champion Advocates for Chemical Safety...for Neurological Health
Law Passes to Ensure  Scrutiny  of Chemicals Used in Household Products

On June 22nd, President Barack Obama signed into law The Frank R. Lautenberg Chemical Safety for the 21st Century Act!! This law calls for the review of chemicals currently found in household products and for increased scrutiny over new chemicals before entering the marketplace, in addition to protecting vulnerable populations such as children and pregnant women. Senator Frank Lautenberg initiated the legislation - which replaces the Toxic Substances Control Act of 1976 - prior to his death in 2013. 
Lisa, Marc and Harrison
Marc, Lisa and Harrison Huguenin in Washington D.C.


The staff at CNNH are particularly excited and proud of this law because it was championed, in part, by a CNNH parent, Lisa Huguenin, Ph.D.  Dr. Huguenin holds a doctorate in Environmental Science and Human Exposure Assessment, but she advocated for this law on behalf of her son, Harrison. 



CNNH Patient Champion!
Learn About Bill & Melissa Reed's Story of Hope  and  Perseverance
  Bill and Melissa Reed
CNNH was formed to provide a unique model of care that makes a difference in the lives of the patients we treat, one person at a time . We are also continually inspired by the courage, perseverance and spirit of our patients and their families. They are our true champions: 
CNNH Champions!

In this newsletter we would like to share the story of a courageous couple - Bill and Melissa - who have refused to give up on hope, life, family and love after Bill sustained a traumatic brain injury. Each day they embark on a journey to push forward and stay focused on their motto in life. They are true CNNH Champions.


The CNNH Patient Experience Just Got Better
Patient Care Services Representative Now Available

CNNH is committed to providing outstanding customer care and satisfaction as part of the overall patient experience. To ensure that each patient has access to a representative for administrative questions and concerns, a Patient Care Services representative has been appointed. Kathleen Nace, who some may know as the Director of Creative Arts Services and a Neurologic Music Therapist, will now also support patients in administrative matters.



CNNH Parent/Patient Advisory Committee
Group Comes Together to Understand Patients' Needs and Concerns 

A group of parents/patients gathered for the first CNNH Parent/Patient Advisory Committee meeting this past August. The group, currently composed of parents of older and younger patients with a variety of diagnoses, gathered to discuss ways that patients and their families might support one another and strengthen the CNNH patient community. 

A survey will be sent to all CNNH patients to gauge their interest in some of the ideas discussed. If you are a patient, please keep a look out for the communication and share your thoughts with the committee.



CNNH Gets Social 
people_social_icons.jpg
Keep Informed About What's Happening
  
Stay up to date with special awareness days, free Webinars, staff profiles and more through our social media outlets.  Join us to learn what is happening in the field of brain health. Our medical team and expert clinicians are always contributing tips and suggestions, including these posts: 




Now healthy neurohealth tips are just a click away.

CNNH is active on Facebook, Twitter, Instagram and Pinterest. You can also find us on YouTube, LinkedIn and on the CNNH Neurohealth Blog.

Like us on Facebook      Follow us on Twitter      View our videos on YouTube      Visit our blog      View our profile on LinkedIn     View on Instagram 


Our NEW Website Has Launched!
Accessing information is now easier than ever!
  

The CNNH website is full of information related to:
  • ...and more!

With so much valuable information to access, the new website provides a clean and organized platform to navigate information. We hope you like it! 

Also, coming soon the website will feature a patient portal and a physician portal. Both features are currently under construction but stay tuned!

Please take a tour of the new site. If you like the changes or if you have any suggestions, please feel free to share them with us at info@cnnh.org.


Like us on Facebook      Follow us on Twitter      View our videos on YouTube      Visit our blog      View our profile on LinkedIn      View on Instagram 
Ongoing Research

The Clinical Research Center 
of New Jersey

Autism Study

CRCNJ is now enrolling patients in blüm, a Phase III clinical trial for CM-AT, a potential first-in-class treatment for autism. CM-AT is developed by Curemark , LLC, a drug research and development company focused on the treatment of neurological diseases.
CM-AT is based on Curemark's recent research that showed enzyme deficiencies in some autistic children result in an inability to digest protein. The inability to digest protein affects the availability of amino acids, the building blocks of chemicals essential for brain function.
 
CRCNJ is one of over 20 sites across the country conducting the blüm Phase III clinical trial of CM-AT in autism.
 


NYU Infant Cognition Lab

Autism Study
Do you have a child with Autism Spectrum Disorder and a baby under 6 months old? Help us recognize early signs of Autism and learn more about your child's development. 6 visits to NYU / Compensation provided / Funded by NIH




Welcome Lawrence Laveman, M.D.
Developmental and Behavioral Pediatrician Joins CNNH
  
CNNH is proud to welcome Lawrence Laveman, M.D. to its staff of expert physicians . Dr. Laveman is  Board Certified by the American Board of Pediatrics with a specialty in developmental and behavioral pediatrics. 
  




Welcome Dale Starcher, Ph.D.
New Director of Program Development 
  
CNNH is proud to welcome Dale Starcher, Ph.D. to its leadership and clinical teams . Dr. Starcher has a doctorate in psychology, with certification in school psychology. He has an extensive background across four domains: psychology, education, administration, and program development. He is the author of Mindfulness-Based Counseling for Self-Regulation (2010).

Click here to learn more about Dr. Starcher's broad background and what he will be contributing to CNNH.






CNNH Happenings - Upcoming Events and Recent Team Distinctions
 
Visit www.cnnh.org/events to keep up-to-date with all of our upcoming events and other community activities. 

LECTURES AND PRESENTATIONS
October 6th
"Developmental Milestones"
presented by Lawrence Laveman, M.D. of CNNH
hosted by Garfield Public Preschool
Bergen County, NJ
6:00pm

October 23rd
presented by Michelle Humm, Ph.D. of CNNH
conference hosted by Learning Disabilities Association of NJ
Rutgers University - Livingston Campus

November 15th
"Autism Decoded: Autism and the Genetic Revolution"
presented by Ronald Barabas, M.D. of CNNH
hosted by Camden County College
6:30pm


PUBLICATIONS
Mark Mintz authored Evolution in the Understanding of Autism Spectrum Disorder: Historical Perspective. The Indian Journal of Pediatrics, 2016, DOI: 10.1007/s12098-016-2080-8.

Dr. Mintz was a co-author for The Child Neurology Clinical Workforce in 2015: Report of the AAP/CNS Joint Taskforce. Neurology 2016, In Press.

Dr. Mintz was a co-author for Child Neurology Recruitment and Training: views of the residents and child neurologists from the 2015 AAP/CNS workforce survey. Pediatric Neurology, 2016, In Press

Laura Szklarski and Kim Catterall presented the following as a poster at the ASET 2016 Annual Conference, August 18, 2016, in Pittsburgh, PA. It will be published as:  Szklarski L, Mintz M, Catterall KHigh Density Electroencephalography (HD-EEG) and Desensitization Techniques Improve Compliance Without Sedation Or Restraint For Children And Adults With Behavioral Challenges, Neurodiagnostic Journal, in press. (Poster presented at ASET 2016 Annual Conference, August 18, 2016.)


TEAM DISTINCTIONS AND APPOINTMENTS
Dr. Mark Mintz was appointed to the Executive Committee of the Consortium of Private Epilepsy Centers.

Dr. Mintz was appointed as a Fellow of the American Academy of Neurology (FAAN)


EXHIBITS
September 24th
Mt. Laurel, NJ
hosted by Brain Injury Association of NJ




CNNH Happenings - Past Events (February - August 2016)
 
Visit www.cnnh.org/events to keep up-to-date with all of our upcoming events and other community activities. 

EVENTS HOSTED AT CNNH

March 15, 2016 - 
Support Group
ADHD Caregivers Support Group
7 to 8pm, CNNH - Voorhees

March 29, 2016 -  Support Group
Brain Injury Caregivers Support Group
7 to 8pm, CNNH - Voorhees

April 5, 2016 - 
Forum on Special Needs Challenges
7:30 to 9am, 
Hosted by NeurAbilities at CNNH - Voorhees


LECTURES AND PRESENTATIONS
April 20, 2016
"The Future of Neuropsychiatry"
by Mark Mintz, M.D. (Invited Lecture)
British Columbia Neuropsychiatry Program Grand Rounds
University of British Columbia, Canada

May 17, 2016
"The Impact of Sleep on Children with Special Needs"
by Ralph Gallo, M.D. of CNNH - WEBINAR
hosted by The Family Support Center of NJ

July 19, 2016
"Depression in Children and Adolescents"
by Sara Shane, PsyD, LPC of CNNH - WEBINAR
hosted by The Family Support Center of NJ

August 24, 2016
presented by Michelle Humm, Ph.D. of CNNH -  WEBINAR
hosted by Tourette Syndrome Association of NJ 


CNNH had two abstract  submissions accepted for presentation at the 14th International Child Neurology Congress, held in May in Amsterdam. The first was based on data from the Governor's Council for Medical Research and Treatment of Autism research study:
 
"Buccal swab analysis reveals a high prevalence of mitochondrial respiratory chain defects in children and young adults with Autism Spectrum Disorders"
 
Authors are Mark Mintz, Laura Szklarski, and Pnina Mintz of CNNH, and Michael J. Goldenthal, Agustin Legido, and Shirish Damle of St. Christopher's Hospital for Children, Philadelphia, PA. 
 
The second was based on data we have collected in describing clinical manifestations and potential treatments of molecular defects in calcium transport into and out of cells, entitled:

"Calcium Channelopathies: Genotype-Phenotype Correlations to Neuropsychiatric Disorders"

Authors are Mark Mintz of CNNH, Julia Fruh, University of Basel, Switzerland, and Richard Boles and Christine Stanley of Courtagen Life Sciences, Woburn, MA. 

*** We would like to recognize  Julia Früh, a summer medical student from Switzerland, who joined the CNNH team to conduct research as part of her medical school curriculum. We thank her for her contributions. *** 


PUBLICATIONS
Dr. Mintz was a co-author for:

Stimulant Medications and Cognition, Behavior, and Quality of Life in Children and Youth with HIV . Pediatric Infectious Disease Journal: January 2016.


EXHIBITS
May 24th

May 22nd
in support of Alpine Learning Group in Bergen County

May 11th

April 16th

March 21st
Bergen County School Nurse Association

SPONSORSHIPS
June 8th


NOTEWORTHY
Dr. Mintz was an invited participant for  "Neurology on the Hill" in Washington, D.C., February 29-March 1. This advocacy program sponsored by the American Academy of Neurology involved  face-to-face meetings with members of Congress and advocating for the critical role of neurologists in health care reform. Dr. Mintz was the only neurologist from NJ this year and met with Congressman Donald Norcross, and legislative staff for Senators Cory Booker and Robert Menendez, Congressman Frank Pallone and Congresswoman Bonnie Coleman.
 


 
Dr. Mintz was accepted as an Advisor for the  2016 Palatucci Advocacy Leadership Forum , held May 12-15. Dr. Mintz is a 2004 graduate of this American Academy of Neurology program that provides advanced leadership-development training for neurologists to become advocates for their patients and profession at local, state and federal levels. 


Community Corner
 
There are so many wonderful organizations in our community working to serve individuals with special needs and their families. For an update of what is happening at CNNH and in the community, please reference the community calendar on our website . Together we can make a difference!



Voorhees, NJ  
·  Rutherford, NJ

Wall Township, NJ 
·  King of Prussia, PA
 
P: 855.852.8150     F: 856.784.1799
"The staff members at CNNH are unparalleled in their professionalism and passion to see our children succeed. I searched a long time to find a place like this for my children. It's a rare organization that can boast of such dynamic clinicians and diverse services."
- Jacqui E., mother of two sons with autism