September 2019
Dr. Joanna Lyon presented on the possible association between the human ABCB1 gene and PTLDS, a research study funded by a grant from LDA. Photo Credit: John Lynagh for LDA
Dr. Phillip Strandwitz presented on t he Gut-Brain-Axis – Potential Therapeutic Targets. Photo Credit: John Lynagh for LDA
Lyme Disease Association, Inc. (LDA) and Columbia University jointly provided the “ 20th Annual Scientific Update for Clinicians & Researchers: Lyme & Other Tick-Borne Diseases” on September 21st and 22nd in Philadelphia. Over the past two decades, the conference has grown to be an essential event for the Lyme disease community. Every year doctors, researchers, patients, caregivers, exhibitors, and advocates gather to learn the latest in science-based research relating to Lyme disease and other tick-borne diseases.

This year’s sold-out conference included 23 faculty members with speakers consisting of clinicians and researchers from across the U.S. and Canada. Attendees were presented with new findings in the areas of Lyme and tick-borne disease testing, diagnosis, and treatment. Topics included ...

Dr. Brian Fallon reads letter from Congressman Chris Smith to sold-out audience. Photo Credit: John Lynagh for LDA

Saturday evening, Lyme Community Advocates honored Pat Smith, the LDA Board, and Dr. Brian Fallon for their service
Congressman Chris Smith, Co-chair of the Bipartisan Congressional Lyme Caucus, honored Pat Smith and LDA with a letter of gratitude and congratulations for reaching a remarkable twenty-year milestone. The letter was read aloud to the sold-out audience by Dr. Brian Fallon at the LDA/Columbia University Lyme & Other Tick-Borne Diseases: 20th Annual Scientific Update for Clinicians & Researchers . Read Letter
LDA Board: Jeannine DerBedrosian, Ruth Waddington, Dr. Brian Fallon (Columbia), Richard Smith, Pat Smith, and Corey Lakin. (not pictured, Tim Lynagh)
Lyme Leaders Recognize LDA for 20th Lyme Conference
Advocates from a dozen states around the country met at the LDA Annual Lyme Leaders Meeting, a gathering of the organization's LDAnet umbrella partners, which includes various independent organizations that work together on state and national issues. Each year, the group leaders meet on Friday night before the LDA/Columbia conference to discuss what their organizations have accomplished and to hear about national issues from the LDA and other organizations. This year, advocates included Dr. Brian Fallon to recognize the LDA's 20th annual Lyme & Other Tick-Borne Diseases Conference.  
Advocates gathered for the Annual Lyme Leaders Meeting Friday night before the 20th Annual Scientific Conference. Photo Credit: Monica White for LDA
The Department of Health and Human Services (HHS) Tick-Borne Disease Working Group (TBDWG) held the 10th public meeting via webcast on September 12, 2019, from 9:00 a.m. to 3:00 p.m. ET.

Subcommittee members were announced, and the Working Group received reports from the eight subcommittees, including the one that is co-chaired by LDA President, Pat Smith.

Photo courtesy of LymeDisease.org
The next (in-person) public meetings will be held January 28 & 29, 2020 in Washington, DC, and March 3 & 4, 2020 in Philadelphia, PA

On Saturday, October 5th, Sussex County Community College and The Tick Squad will host the NWNJ Lyme & Tick-Borne Diseases Conference from 9 AM – 3 PM at the SCCC Performance Arts Center. The event is free and open to the public.

Pat Smith, President of Lyme Disease Association, Inc. (LDA), and Keynote Speaker for the event will cover Lyme disease statistics, including what is known in the state of NJ. She will address different types of ticks, the diverse diseases they carry, and how they transmit these various diseases. Pat will also provide an update on current federal issues and legislative actions, including developments with the Tick-Borne Disease Working Group (TBDWG), of which she is a committee member.

Researchers at The Rockefeller University Center for Clinical and Translational Science are conducting a paid study to learn more about the immune systems of people who have been previously infected with Powassan virus ...

Update on Disulfiram
Dr. Brian Fallon presents on Disulfuram at 20th Annual LDA/Columbia Lyme Conference

At the 20th Annual LDA/Columbia Lyme Conference, Dr. Brian Fallon reviewed biologic and clinical measures that have been used in Lyme disease clinical trials in the past and described new biologic and clinical measures that should be considered for future clinical trials.
Disulfiram, used as a treatment option for patients, is one of the clinical studies being investigated currently.

Dr. Kenneth Liegner at the 2019 LDA/Columbia Lyme Conference

Dr. Kenneth Liegner was interviewed by Harrison Schoenau on September 8th, 2019, answering questions from the Facebook group,  Disulfiram for Lyme Support Group . Vi ew a Transcript of the Interview, courtesy of Dr. Kenneth Liegner.

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