As October comes to a close, let us reflect on the past year and celebrate the upcoming holiday season. November is a very special month, not only because of Thanksgiving, but also because it is designated as National Family Caregiving Month and Alzheimer’s Awareness Month.
The Village Chicago plays an important role in helping families mitigate the challenges of caregiving and memory loss---for your parents, spouses, and loved ones-- through educational events and activities, referrals, and emotional peer support. Our work has never been more needed than today, as Chicago and the nation face an unprecedented crisis in access to qualified and affordable long-term care.
Caregiving is beset with a plethora of obstacles. Workers are paid too little and demand for their services far exceeds capacity; costs for long-term facilities exceeds what most families can pay; and those who are trying to manage care on their own are ill-equipped to recognize and deal with the stress that is impacting their own health and well-being.
We need to move the caregiving crisis front and center so that we can begin to work on solutions as an inclusive, thoughtful community. We at The Village Chicago are committed to promoting practices that help families grappling with caregiving issues and to provide help where we can. Call us. Join us. Support our mission. We need everyone at the table.
Warm Regards,
Darcy L. Evon, CEO
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The Care Crisis In Real Life
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What About Me?
An anonymous Village member story
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“My husband was diagnosed with dementia about 2 years ago. It took me some time to realize that I needed help with his care. I was surprised to find out that it is very difficult to find caregivers to work part time. My goal was to find someone who could spend time with my husband, to engage him and keep his mind stimulated. We finally did find one caregiver – but she was young and didn’t really connect. Now we have found someone older who is doing a great job keeping my husband occupied - talking, listening, telling stories and doing activities.
“But this isn't helping me. For the first time I have all the responsibilities of our finances, household, and health. I feel as though I am always under water. I don’t have time for things like a leisurely lunch with my friends. I do attend the Village’s support group for people caring for loved ones with memory loss because it has been such a great help to me.
“I don’t like to think about what will happen when I really do need more help - I feel I am better off just taking things one day at a time.”
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Caught in the Middle
An anonymous Village member story
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“My husband has dementia and I have been his primary caregiver for 17 years. I am very fortunate in that the progression of his disease has been very slow, and while his short term memory and other cognitive skills are seriously impaired, he is very good-natured and in general a happy guy.
“My primary need has always been for a part time helper to relieve me of some of my care responsibilities and household chores so that I could have a life all these years without feeling stressed, anxious, and under pressure every single day just to keep up.
“Finding part time help is not easy and now cost has become an issue. I know that giving care is tragically undervalued work, and that the people who do it are considered “unskilled” which is completely untrue.
“While the “citizen” in me wholeheartedly supports efforts to elevate the role of caregiver both financially and as a respected profession, the “head of household” in me wonders how I will be able to continue to pay for these services as we both age and need more help.
“Nationwide there are no doubt millions of us who have too many assets to qualify for assistance, but not enough assets to meet on-going caregiving needs. I keep running the numbers and having thoughts like ‘surely we won’t both live beyond 89 or so...’ Not good thoughts.”
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The Big Quit
Flux and change in the labor market was triggered by the pandemic and amplified by the “Great Resignation:”
- Record numbers of people have quit their jobs – in some cases in mid-shift - for a better paying position down the street – 4.3 million in August alone.
- Stimulus programs provided a financial cushion with increases in savings largest at the bottom of the economic spectrum.
- This is not so much a pure labor shortage as a shortage of workers willing to accept unsafe, underpaid, or unpleasant working conditions.
- Despite millions of Americans being displaced from jobs during the pandemic, the number of workers re-employed in the direct care workforce was statistically zero.
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People of All Ages Feel the Impact
Generation X (born 1965-1980) is small, a great baby bust, and they are now caring for the far larger generations that tower over them on either side—often while working full-time.
There is also a childcare crisis, as families grapple with daycare costs that can easily consume 20 percent of their income.
A New York Life study shows that the “sandwich generation” (caring for both children and parents) has become younger and more diverse as a result of the pandemic. Among the respondents, over half of the Millennial caregivers were people of color; 47% men; and 34% LGBT.
The outbreak is taking a greater financial toll on Millennials than other age groups. Fifty-four percent say they’re spending more each month to care for others with 23% spending an additional $200 monthly. Nearly 70% of survey respondents are paying for the extra expenses out of their own budgets.
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Graphic from the report "AARP Caregiving in the United States 2020"
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The Need is Growing
Inexorable demographic forces created by the two largest generations (Boomers and Millennials) are driving the need for more direct care workers.
- Over the next five years, the Bureau of Labor Statistics estimates, more than half the workforce will be caring for an aging adult.
- Millennials are having children at the rate of 4 million per year.
- AARP reports that in 2010 the ratio of possible caregivers to people needing care was 7 to 1; by 2030, the ratio is predicted to be 4 to 1; and by 2050 the ratio will be 3 to 1, hitting Millennials and Gen Z even harder than it has hit Gen X.
- The “sandwich generation” is about to get a lot bigger, and a lot more squeezed.
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1. The Private Sector Steps Up
On May 19, 2021 TIME’S UP launched the Care Economy Business Council comprised of nearly 200 executives from both Fortune 500 companies and small start-ups to push for fixes to the crumbling caregiving sector, saying it is ultimately part of their bottom line. As highlighted in the New York Times, “Business leaders recognize that caregiving can no longer be a personal responsibility for workers to solve on their own. Read more.
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2. Philanthropy Steps Up
While advocates already see childcare, paid leave, elder and disability care and the care workforce as one united issue, funding streams have remained siloed, pitting one aspect of the care economy against another. But COVID-19 has exposed to us all what happens when families lack access to quality, affordable care.
Spearheaded by the Ford Foundation, last May eight leading philanthropic organizations announced the formation of The Care for All with Respect and Equity (CARE) Fund, a $50 million, multi-year investment in building a comprehensive care infrastructure that works for everyone and that establishes both care work and care services as a permanent public good worthy of public and private financing and long term investments. Read more.
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3. The State of Illinois Steps Up
PACE (Program of All-Inclusive Care for the Elderly) is a Medicare program and Medicaid state option that gives community-based care and services to people 55 or older who otherwise would need a nursing home level of care. PACE was created as a way to give individuals, families, caregivers and professional health care providers the flexibility to meet health care needs while continuing to live in the community.
PACE is established at the State level and the State of Illinois has passed legislation authorizing the creation of a PACE program here. The Village is in contact with State Senator Sara Feigenholtz’s office and will provide updates on the status of the program as they become available. Read more.
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1. Plan Ahead
The Care Crisis
by Debra D. Feldman
From my perspective as a Care Manager, today quality home care for older adults is a real concern. Not only has the COVID-19 pandemic intensified the staffing shortage in home care, there actually is a growing demand. Older adults are choosing to remain in their homes with care instead of moving into senior communities. In the past, it was fairly easy to hire a caregiver in 24 hours or less. Today, it often takes a minimum of a few days and working with more than one agency to identify a worker. And when caregivers need to call off last minute or request a day off, a relief worker may be hard to find. Recently, I had a caregiver ask for a day off and even with a few days’ notice, the agency was unable to find anyone to cover. In over 30 years of working in this industry, this was the first time this has occurred. Fortunately, the caregiver was dedicated to her client and changed her plans to remain at work.
Do not wait for a crisis – do some research and plan ahead. As a consumer of home care, expect to spend more time in the search for a caregiver; be prepared to contact more than one home care agency and to pay $35-$40 an hour. Agencies have to pay a competitive wage to keep their employees as well as to entice quality workers to return to the workforce. Be aware that caregivers work for more than one agency, and each agency is only as good as the quality of caregivers they have available at the time of your need. Patience, planning and an open mind will help you meet your goals.
Debra Feldman is an MSW, LCSW, CMC is an Aging Life Care® Manager with over 30 years experience working with older adults and their families to navigate the challenges of aging by helping them adjust, cope and problem-solve long-term care planning issues.
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2. Create a Solid Relationship with Your Caregiver
The Caregiver/Client Partnership
Ausra and Jeff Robison launched LincolnPark FamilyCare (LPFC) in early 2015 with a deep commitment to addressing challenges, opportunities, and solutions for older adults as they strive to remain independent, happy, and healthy. They take a holistic approach to matching caregivers with clients, taking into account such important elements as specific needs, lifestyle, and personalities.
Commenting on the current changes in the caregiving ecosystem triggered by the Covid pandemic, Robison says, “People are rethinking their options. Do I want a part time job? Am I getting the satisfaction I need from my work? Am I appreciated and valued?”
Robison believes it is vital to balance the needs of the caregiver with those of the client – keeping them on an equal footing and caring about both their interests.
He says, “To keep that relationship strong, the most important thing is to recognize that your caregiver is a human being who is trying to do the best he or she can to care for you or your loved one. If they are drawn to caregiving and are good at it, they are always trying to do what is right.”
He goes on to say, “A good client/ caregiver relationship is one where each partner recognizes that they have a responsibility to the other – on the one hand to care for and comfort; and on the other, to respect and appreciate; and for both to acknowledge the boundaries of the relationship.”
As the need for family caregivers grows, building a strong caregiver relationship will become even more important and is the best way to ensure everyone’s needs are met.
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3. Call on The Village for Help
“America’s culture of individualism has created a context where people see the responsibility of caring for their family as a personal burden of responsibility. If for some reason you can’t afford childcare or find the right home or care for your aging parents, it’s because of some failure on your part.
“It’s not your fault. This is a shared, systemic challenge. Care connects us all.”
--Ai-Jen Poo, Founder of Caring Across Generations
The Village has many ways to help families through the transitions of caregiving:
- Our professional staff will get to know you, really listen, help figure out what level of care is needed, how to find it, and stay with you as needs evolve.
- We will provide referrals and recommendations to trusted home care agencies and individual caregivers
- Brain Health/Memory Loss is a comprehensive program that supports members and care partners who are facing memory loss. It includes individualized consultation, referrals to best practice resources, community programs, support groups and education.
- The Ally Program provides a Village-trained volunteer to any member who wants support through a heath care event and beyond.
- The Connector Program links potentially isolated Village members with a compatible volunteer to establish connection through regular check-ins and visits.
For more information, email info@thevillagechicago.org.
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Upcoming Village Events for Caregivers and Their Loved Ones
Join us for these FREE upcoming events via Zoom
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While supporting caregivers and individuals with memory and brain health needs are part of The Village Chicago’s mission year-round, throughout November, we will present a series of free events on Zoom featuring leading experts with new insights and information on family care-giving (click here to learn more).
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Where Is the Affordable Housing for Older Adults?
A free virtual event via Zoom on Wednesday, 12/1 @ 5 PM (CT)
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Join us as a panel of experts explores the ins and outs of affordable housing for older adults. Panelists will include Earl L. Chase, V.P. and Executive Director of Heartland Housing, Gail Schechter, Executive Director of H.O.M.E., Britta Larson, Senior Services Director at the Center on Halsted and Don Bell Housing Justice Field Organizer at Jane Addams Senior Caucus. More details coming soon! To RSVP, click here OR email celebrate@thevillagechicago.org.
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Last Call to Register for Ageless Innovators
The deadline to apply is end of day Monday, November 1
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Ageless Innovators is Chicago's first intergenerational co-mentoring program, co-founded in 2019 by Chicago Innovation and The Village Chicago. Ageless Innovators bridges the generations through reciprocal mentoring to share experiences, skills, and knowledge.
This cohort will run from January-June, 2022. If accepted into the program, you will be paired with a successful innovator of a different generation based on what you hope to learn and teach. There is no fee to apply. If selected into the program, there is a $150 enrollment fee. To apply, click here. Questions? Contact Alex Milinazzo at alex@chicagoinnovation.com.
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Meet 'Chicago’s Great Fire' Author, Dr. Carl Smith
A free virtual event via Zoom on Thursday, 12/2 @ 4 PM (CT)
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Join us to celebrate the rebuilding of Chicago on the 150th anniversary of the great fire of 1871! Dr. Carl Smith, award-winning author of Chicago's Great Fire: The Destruction and Resurrection of an Iconic American City, and Professor Emeritus at Northwestern University, will be interviewed by Village member David Hiller, former President and CEO of the McCormick Foundation and former publisher of the Chicago Tribune and LA Times. You will learn a wealth of new information about the Great Chicago Fire of 1871 and the equally remarkable rebuilding, as well as the place of the fire in the city’s history. To RSVP, click here, email celebrate@thevillagechicago.org, or call 773.248.8700.
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RSVP today for our upcoming in-person and virtual events! For full descriptions and registration, visit thevillagechicago.org.
- (10/28) Weekly Walks Around North Pond | An In-Person Event
- (10/28) Safely Getting Up and Down From the Floor
- (10/28) Short Story Intergenerational Discussions
- (10/30) Saturday Afternoon at the Movies | Love and Friendship (2016)
- (11/1–12/13) The Savvy Caregiver (6-week series)
- (11/2) Medicare One-on-One Counseling with Kate Paz from Mather
- (11/2) Exercise at Home with Jill Stein
- (11/2) The 5 Keys for Caregivers Featuring Dr. Cheryl Woodson
- (11/3) Great Books, Great Conversations
- (11/4) Coffee Chat BYOC
- (11/8) Bridging the Racial Divide
- (11/9) Care Partner Stroll Through the Zoo | An In-Person Event
- (11/10) Guided Tour of City on Fire: Chicago 1871 | An In-Person Event Presented by the Village Men's Group
- (11/11) An Unexpected Caregiving Journey in Alaska
- (11/16) The Choice: Resilience vs Frailty
- (11/16) Memoir Writing with Beth Finke | An In-Person Event
- (11/17) Death Café: An Informal Conversation About Death & Dying
- (11/17) Prospective Member Coffee & Pastries | An In-Person Event
- (12/1) Where Is the Affordable Housing for Older Adults? A Thought Leaders Panel
- (12/2) Q&A with 'Chicago’s Great Fire' Author, Dr. Carl Smith
To RSVP for any event, please visit our web calendar or email us at celebrate@thevillagechicago.org!
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Village Member Pastime Groups
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Are you...
Looking for a new career, about to retire, wondering what's next? Seeking companions that share your interests? Searching for a way to utilize your abilities? In need of occasional help? New to Chicago? Worried about changing needs? An adult child with aging parents?
Village members are part of an inclusive, multigenerational community, connected to others and to the resources that support growth and well-being as we navigate life after 50 together.
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Leadership of The Village Chicago
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Board of Directors
Karen Terry,
President
Judith Gethner
Vice President
David Baker,
Vice President
Angie Levenstein,
Secretary
Richard W. Sullivan,
Treasurer
Kathie Kolodgy,
Immediate Past President
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Donald M. Bell
Patricia Clickener
Charles G. Cooper
Caryn Curry
Thomas C. Eley III
Joan Goldstein
Bruce Hunt
Ira Kohlman
Molly Matthias
Therese Meike
Liz Metzger
Gail C. Moss
Linda Randall
Wally Shah
Carol Stein
Lois Stuckey
Vamse Kumar Subbiah
Janet Walters
Melville Washburn
Joyce Winnecke
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Advisory Council
Neelum T. Aggarwal, MD
Robyn L. Golden, LCSW
Joanne G. Schwartzberg, MD
Mary Ann Smith
CEO
Darcy L. Evon
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The Village Chicago is a social network of friendship, engagement and services for people over 50. We support all aspects of well-being through social engagement, an extensive services and referral network, lifelong learning, health and fitness, intergenerational relationships, work and purpose.
2502 North Clark Street, Chicago, Illinois 60614. 773.248.8700
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