Coordinating care for your child with special healthcare needs can be a full time job. There are often multiple medical and educational appointments and meetings to juggle, as well as completing all of the necessary paperwork. Additionally, parents typically have other responsibilities such as work, finances, other children and their own health and well-being. Using a tool called “Care Mapping” you can better understand how to balance all of your responsibilities AND improve communication with your child’s healthcare and education teams. In doing so, parents often find that members of their child’s teams are able to assist with these responsibilities
A study of Family Voices of Minnesota’s CONNECTED Parent to Parent Peer Support Program revealed that parents receiving our services reported a 44% increase in their confidence accessing community services such as medical assistance, home care and recreational opportunities.
Carolyn Allshouse, a Meg Comeau, MHA, b Rylin Rodgers, BA, c Nora Wells, MSEdd
“Keeping all children and families at the heart of our health care financing policy decisions at all levels is the only way to have an American health care system that works for both the healthy and the most vulnerable.”
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