Vol. 8, No. 7
July 18, 2017
Dear Friends: 

Caregiving is often not only physically and emotionally taxing, it’s often also extremely costly too. C aregivers may face exorbitant out of pocket expenses, and at the same time may be  forced to reduce working hours, take lower paid but less demanding jobs, or retire early to provide care. F orgone wages, lowered pension benefits, and decreased social security benefits are the result of this caregiver catch-22.

There are however some hopeful signs that caregivers may start to get the financial help they need, highlighted in this issue of Connections. California recently joined five other states that protect against balance billing. In Hawaii, a first of it’s kind program was launched to provide vouchers for working caregivers. Finally, the Credit for Caring Act has been introduced by lawmakers from both parties, to provide much needed fiscal aid on the federal level.

If you have questions about caregiving and finances, please contact us. FCA is dedicated to supporting family caregivers, and we will continue to advocate for the financial support caregivers need and deserve. 


Calvin Hu
Education Coordinator
“A happy life consists not in the absence, but in the mastery of hardships.” 
― Helen Keller
FCA Executive Director Pens Op-ed in Support of Credit for Caring Act

In an op-ed for the Hill, FCA Executive Director Kathleen Kelly explains the crucial importance of the proposed Credit for Caring Act for family caregivers. The bipartisan legislation is designed to provide a financial lifeline to working family caregivers. If signed into law, qualified caregivers would be eligible for a tax credit of up to $3,000.

The Credit for Caring Act would be particularly valuable to the millions of caregivers who are providing care for someone who cannot be left unattended. Many of these caregivers cannot afford to pay for care during work hours, nor can they afford to quit their job to become full time caregivers. 
FCA at the IAGG World Congress of Gerontology and Geriatrics

The IAGG World Congress of Gerontology and Geriatrics will bring together over 6,000 professionals in the field of aging, and is the largest international event of its kind. The conference runs from July 23 to 27 in San Francisco.

FCA Executive Director Kathleen Kelly will be giving a presentation on FCA’s recently launched online tool, CareJourney: Design and Use of National Self-Administered Caregiver Information and Support System. She will also be co-chairing a symposium, Do Online Support Programs Click With Family Caregivers? Evaluating Usage and Satisfaction. FCA will also be participating in a poster — Aging and Diverse LGBT Communities: Building Awareness for Cognitive Decline and Caregiving NeedsFor more information about FCA conference attendees can visit exhibit booth 325.

The complete program book can be downloaded  here .
Apply Now for the 2016 Rosalinde Gilbert ‪‎Caregiving‬ Legacy Awards 

With continuing support from The Rosalinde and Arthur Gilbert Foundation, FCA is pleased to announce that applications are now being accepted for the 2017 Rosalinde Gilbert Innovations in ‪Alzheimer’s Disease ‪‎Caregiving‬ Legacy Awardsnow in its 10th year.

A total of three $20,000 awards will be given in the following categories:  Creative Expression, Diverse/Multicultural Communities, and Policy and Advocacy.  Visit caregiver.org/gilbert-awards for information and to link to the online application. The application deadline is  Monday September 11, 2017, 5 p.m. (Pacific Time).  Past applicants are encouraged to apply again.

The Gilbert Caregiving Legacy Awards reception at the Aging in America Conference will be in San Francisco, from March 26 to 29, 2018.  To view our interactive scrapbook of past Gilbert Caregiving Legacy Award winners, click here .
The Foster Family Foundation — Thank you

FCA would like to extend a heartfelt thank you to The Foster Family Foundation, established in Southern California, for their generous donation. Their gift will help FCA support and advocate for family caregivers. 

FCA acknowledges all foundation, corporate, and individual donors on our  website . To donate to FCA, please visit our donation page .
San Francisco Public Library Laptop Lending Pilot Program

Tech’d Out is a new program at the San Francisco Public Library. Cardholders with borrowing privileges in good standing are now able to rent, free of charge, a laptop and wireless internet hotspot with unlimited data, to be used outside the library. Four libraries are currently participating in the program. For more information, please visit the  Tech’d Out website.
FCA CareJourney, Online Service for Family Caregivers

For the first time, caregivers like you—who are caring for adult loved ones with  chronic, disabling health conditions—have access to valuable information, resources,  and support tailored specifically to your unique caregiving situation. It’s free,  completely private, and accessible by computer or mobile device 24/7.

Please visit FCA CareJourney to join today.
Enroll in the SHARE program

FCA is seeking San Francisco Bay Area family caregivers to enroll in the SHARE program. Over the course of five face-to-face home visits, SHARE will help you get the most out of today while planning for tomorrow.  The goals of SHARE include learning effective communication skills, reducing stress, promoting health, and receiving education on long-term care  management. The SHARE program is offered at no charge.

SHARE is specifically for caregivers of adults (close family or partner/spouse), with a confirmed diagnosis of a chronic health condition, 60 or older, living at home, and with intact cognitive abilities.  Eligible conditions for SHARE include but are not limited to: heart disease, diabetes, COPD, arthritis, kidney disease, stroke, or HIV-AIDS. Care receivers with a neurocognitive disorder, a mental health condition, traumatic brain injury, or are in the terminal phrase of their condition, are unfortunately not eligible.

Please contact Michelle Venegas at (415) 434-3388 x 323, for more information.
HOT Weather Tips

Caregivers of older adults, those with dementia, or a chronic health condition will face additional challenges as the temperature rises. An aging body, medications, or a cognitive impairment may inhibit a person’s ability to regulate their internal temperature, or recognize that they are suffering from unhealthy temperatures Please read our article to learn tips on how to keep cool, and how to spot the warning signs of a heat related problem.
One Woman’s Slide From Middle Class to Medicaid

Many of us think with proper planning and responsible choices, the costs of long term care and chronic illness can be managed. Unfortunately, this is not always the case.  Ron Lieber, writing in the New York Times, tells the eye-opening story of Rita Sherman who maintained lifelong good physical health, had  over half a million dollars when she retired, purchased a long term care policy, and benefited from the expertise of a medical social worker daughter, and a financial planner son-in-law. By the time she died, she had exhausted all her money and was eligible for Medicaid.
No More Surprise Bills From Out-Of-Network Doctors In California

“Balance billing” occurs when a patient receives care at an in-network hospital from an out-of-network physician, who then bills the patient out-of-network fees. Balance billing often affects emergency room visits, where patients commonly assume emergency room staff at an in-network hospital are also in-network.  Ann Brenoff, senior writer and columnist for the HuffPost, and critic of balance billing, explains that California AB-72 has come into effect, now banning the practice in California.
Powerful Tools for Caregivers

This free six-part class offers new skills and tools for family caregivers of those with a chronic health condition such as Alzheimer’s disease, Parkinson’s, or stroke.  At Powerful Tools, you will have the opportunity to learn how to r educe stress, m ake difficult caregiving decisions, c ommunicate more effectively during challenging situations, and p revent caregiver burnout.

Pre-registration is required. Please let us know if you have a disability and require specific accommodations. This class is specifically for family caregivers, not providers. 

When:  Wednesdays, August  16, 23, 30, and September 6, 13, and 20, from 10:30 a.m. to 12 noon
707 Thayer Lane, Foster City 94404
Cost: No Charge
Registration: Christina Irving, cirving@caregiver.org, (415) 434-3388 x 303
Camp for Caring

Camp for Caring is a weekend retreat for individuals with Alzheimer’s disease, stroke, Parkinson’s disease, or other brain impairments. Campers spend the weekend (Friday–Sunday) in an attractive outdoor setting in the Cupertino foothills while you, their caregivers, enjoy a much needed 48-hour respite from caregiving. Campers enjoy arts and crafts, singing and dancing, low impact exercises, group games, and hand massages. There is close supervision by specialized staff who provide around-the-clock care, with a 24-hour on-site nurse and night attendants. All meals are included.  

Space is limited. Priority is given to first time attendees. 

When:  Friday, August 25 to Sunday August 27 
Where:  Via West Campus
13851 Stevens Canyon Road, Cupertino 95014
Cost:  sliding scale $125 to $250
Registration:  Calvin Hu, chu@caregiver.org, (415) 434-3388 x 313
Conversations with Caregivers Screening

Conversations with Caregivers is a series of short education videos that offers practical advice from real family caregivers who care for someone with dementia. Produced by the UCSF Memory and Aging Center and Tideswell, Conversations with Caregivers includes topics on accepting the diagnosis, playing along, and activities. 

The screening will include a reception and Q&A. The series will be available to watch on youtube starting July, 27th

When: Thursday, July 27, 5:00 p.m. to 6:45 p.m.
Where:  Rock Hall
Pottruck Auditorium
1550 4th Street, San Francisco 94158
Cost: No charge 
Tools for Effective Caregiving

Tools for Effective Caregiving is a two-part class that focuses on both the needs of caregivers and the person for whom they are caring. Participants will learn hands on personal care skills, home safety techniques, managing caregiver stress, and how to manage challenging behaviors.

Registration is required by August 16, classes partially sponsored by San Mateo County Aging and Adult Services.

When: Saturdays, August 19 and 26, 10:00 a.m. to 2:00 p.m.
Conference Room H, First Floor Conference Center
1501 Trousdale Drive, Burlingame 94010
Cost: No charge 
Registration: ( 650) 696-3660
Kupuna Caregivers Act signed by Governor David Ige

Hawaii H.B. 607, kupuna caregivers program, was recently signed into law. This bill will provide daily vouchers of up to $70 to working family caregivers in Hawaii. The vouchers were designed to help defray the costs of caregiving, and can be used for t ransportation, personal care services, respite, adult day care, chores, or homemaking services. Care recipients must be 60 or older, a citizen or lawful permanent resident, and live at home or with a family member.
Subscribe to FCA’s Caregiving PolicyDigest

Caregiving PolicyDigest is a publication of the National Center on Caregiving, a program of FCA. The newsletter offers a fresh look at the rapidly changing world of caregiving policy―at the local, national, and international levels.

To subscribe, please click here .
We would like to extend a warm thank you to the many generous supporters who make the work we do possible through thoughtful donations to Family Caregiver Alliance.

FCA has led the way in supporting family caregivers for over 35 years.
Your donation makes all the difference!
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235 Montgomery Street | Suite 950 | San Francisco, CA 94104
Phone: (800) 445-8106 | Email: info@caregiver.org
Visit Family Caregiver Alliance’s NEW online solution for secure information, support, and resources for family caregivers of adults with chronic physical or cognitive conditions.  FCA CareJourney provides a personalized dashboard loaded with information that matches your unique caregiving needs.
Visit caregiver.org today and JOIN!
Visit FCA’s website
Family Care Navigator
Caregiver tool for
state-by-state resources
Family Caregiver Alliance’s fee-for-service care management currently serving the San Francisco Bay Area. Click here for further information.
Help support Family Caregiver Alliance by choosing FCA as your  Amazon Smile  charity. 
Help support FCA by using Lyft. First time Lyft users apply the code FCALYFT. Lyft will donate $10 to FCA for each new rider using the code.  

Connections Credits
Calvin Hu
Michelle Venegas  

Kathleen Kelly
Calvin Hu
Lana Sheridan
Michelle Venegas
Leah Eskenazi

Communications and Layout
Francesca Pera

Executive Director
Kathleen Kelly
FCA Board of Directors

Jacquelyn Kung

Dan Lieberman

Jeff Kumataka

Athan Bezaitis
Tricia Dell
Catherine Lelong
Rajiv Mehta
Chris Park
Scott Peifer
Kathleen Raffel
Wyatt Ritchie
Celine Takatsuno
F. Burns Vick