PANDAS Network regrets to have reported incorrectly in last week's newsletter. Correction: Dr. Don Gilbert has
volunteered
to NOT speak about PANDAS at this weekend's AAP Conference in Florida.
At this weekend's AAP (American Academy of Pediatrics) Meeting, SEPPA and community partners in the U.S. are attending the American Academy of Pediatrics meeting next week to educate 15,000 doctors about PANDAS-PANS. PN Board Member, Heather Korbmacher, has been an excellent aide to the writing of talking points for the members of SEPPA as they face pediatricians nationwide in this national event
.
LINK HERE
Since July various efforts have been put forth to counter a negative commentary against treating any child with pandas-pans despite the suffering of the child, according to Gilbert, et al in the Journal of Pediatrics.
Efforts to influence reconsideration of a CME video created by Dr. Gilbert are being reviewed by the CME medical committee as noted here:
American Academy of CME (medical education) committee investigating bad faith in the Gilbert CME video is being reviewed. Thank you to
Beth Maloney
for posting this letter for us to read.
READ LETTER HERE
Dr. Swedo and the consortium are finalizing an extensive rebuttal to the Gilbert, et al opinion paper against pandas. This rebuttal will be delivered to the
Journal of Pediatrics
in response to this opinion paper
.
