As the dust settles from last week's election, now is a great time to plan how you will reach out to your newly elected or re-elected officials at the state and federal level. It can be as simple as an email introducing who you are, who you advocate for, and what issues are most important to you. You can follow them and interact with them on social media. If they hold a virtual town hall, sign up to attend. The main goal is for them to know your CMD story and how they can help you as your representative.
Check out these great resources from our partner advocacy organizations to help you make your plan.
Have you and your family been using Telehealth during the pandemic? If so, we want to hear your experiences! Your stories will help focus our advocacy work relating to Telehealth in the coming months and years.
Check out RDLA's new Policy Primers and learn about policy issues that affect the Rare Disease Community.
Register for Rare Across America happening virtually February 22 - March 5, 2021. During this event, you will meet with your Members of Congress and/or their staffers to discuss issues facing the Rare Disease community.