The Cure CMD Advocacy webpage was recently updated and now includes lots of advocacy resources.
Last week, several Advocacy Team members participated in Rare Across America sponsored by Rare Disease Legislative Advocates (RDLA) and met virtually with their Members of Congress. RDLA put forth four asks during this event. Click on the title below to see the one pager.

The STAT Act and the Appropriations Priorities are particularly important to the Cure CMD community because they would accelerate the process of developing and approving new treatments for rare diseases. If you haven't already, we encourage you to write to your Members of Congress asking them to support these measures. You can use this email template to do so.

If you attended Rare Across America last week, we want to hear from you! Please complete this brief survey.

Thank you for sharing your CMD story with your Members of Congress!
  • Rare on the Road is designed to teach you how to advocate for yourself and the Rare Disease community. Registration is open now!

  • Attend RDLA's March webinar to learn about current legislation efforts in the Rare Disease community.

Know someone who would like to join the Cure CMD Advocacy Team? Email us and we'll add them to the list!