Last week, several Advocacy Team members participated in Rare Across America sponsored by Rare Disease Legislative Advocates (RDLA) and met virtually with their Members of Congress. RDLA put forth four asks during this event. Click on the title below to see the one pager.
The STAT Act and the Appropriations Priorities are particularly important to the Cure CMD community because they would accelerate the process of developing and approving new treatments for rare diseases. If you haven't already, we encourage you to write to your Members of Congress asking them to support these measures. You can use this email template to do so.