Dear Cure CMD Advocacy Team,
How are you doing? I'm exhausted. Between keeping everyone healthy to working full time from home to home schooling our boys to keeping spirits up to . . . the list goes on. I have to admit advocacy is one of the last items on my list these days. However, the need for our voices to be heard has not stopped and, in some cases, the need is heightened.
So if you can find a few spare minutes this week, I encourage you to:
- Write an email to your Federal and State Legislators and tell them your story. Tell them how COVID-19 has affected your family specifically and what they can do to support families like yours.
- Email me and tell me what you want Cure CMD's Advocacy Team to focus on now and in the future. Employment issues? Accessibility? Funding for research? I want to know what's important to you!
- Tell your story on social media using #istayhomeforrare Learn more about this new initiative to inform others of our rare stories and why it is so important to stay home during this time.
Thank you for your support and your action. Please reach out if you have questions.
I hope all is well with your families. Stay safe.
Advocacy Team Lead