Dear UN Cure CMD signed on to support a request that the United Nations pass a resolution to promote greater social inclusion and protect the human rights of the rare disease community worldwide. You can share your story to support this campaign. Learn more here.

UPCOMING EVENTS Attend the MDA Advocacy Institute Webinar on September 30th at 4pm ET. NORD Rare Diseases and Orphan Products Breakthrough Summit will be held virtually October 18-19. Rare New England Conference will be held virtually on October 23.

SIGN ON LETTER Recently Cure CMD added its name to a letter to House and Senate leaders opposing the harmful proposed changes to the Orphan Drug Tax Credit in the current draft of the “Build Back Better Act.”  You share your opposition to your Members of Congress here. It only takes a few minutes!

September is Newborn Screening Awareness Month. You can learn more about Newborn Screening and its importance by visiting the EveryLife Foundation's website.

FIVE MINUTE ACTION ITEMS Ask Congress to Cosponsor The Speeding Therapy Access Today, or STAT Act, H.R. 1730/S. 670 Ask Congress to support the Air Carrier Access Amendments Act (ACAAA). Ask Congress to support the Medical Nutrition Equity Act. The Newborn Screening Saves Lives Reauthorization Act passed in the House and has moved onto the Senate. Ask your Senators to cosponsor this bill.

Know someone who would like to join the Cure CMD Advocacy Team? Email us and we'll add them to the list!

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