Members of the Cure CMD Advocacy Team are participating in Rare Disease Week on Capitol Hill 2022 events over the next two weeks. Though we can't be in person again this year, we are excited to learn about policy issues affecting the Rare Disease community and to meet with Members of Congress to discuss these issues.
If you aren't signed up to attend Rare Disease Week, no problem! You can still email your Members of Congress about these important pieces of legislation or simply tell your CMD story. Find out who represents you here.Don't forget to use the Cure CMD Fact Sheet when communicating with your elected officials.