Are you participating in Rare Across America this month?
If so, we want to hear about it! After your meetings, let us know which Members of Congress (or their staffers) you met with and what your specific ask was. Send this information and photos to Lani Knutson. Thanks!
The February Rare Disease Legislative Advocates (RDLA) webinar will give an update on current legislative efforts on behalf of the Rare Disease community. Register here.
If you are 18-29 years old, apply for The Young Adult Representatives of RDLA (YARR) YARR Leadership Academy, a series of on-line courses offered to a select group of young adults in the rare disease community. Deadline is February 15th!
Have you and your family been using Telehealth during the pandemic? If so, we want to hear your experiences! Your stories will help focus our advocacy work relating to Telehealth in the coming months and years.