This past week, members of the Cure CMD Advocacy team participated in Rare Disease Week. They attended a virtual training conference to learn about proposed legislation that, if passed, would help the Rare Disease community. Then they met with their Members of Congress to advocate for these bills.
Even if you couldn't attend Rare Disease Week this year, you can still ask your Senators and Representatives to cosponsor the bills. Learn more about them:
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Cosponsor the Speeding Therapy Access Today Act, S. 670/H.R. 1730 one pager here
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Cosponsor the Newborn Screening Saves Lives Reauthorization Act, S. 350/H.R. 482 one pager here
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Cosponsor the Better Empowerment Now to Enhance Framework and Improve Treatments Act, S. 373 (Senate only) one pager here
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Cosponsor the Access to Genetic Counselor Services Act, S. 1450/H.R. 2144 one pager here
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Information about Medical Nutrition Equity Act, S. 2013/H.R. 3783 one pager here
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Join the Rare Disease Congressional Caucus one pager here
If you participated in this advocacy event, please tell us about it by completing this short survey.
Thank you for your work!
