Our Mission
To find a cure and better treatments for Juvenile Myositis and improve the lives of families affected by JM.

In This Issue :


🎈20 Years Strong - A Visual Journey Through Time

🎈Walking Strong Nationwide - National Walk Strong Day

🎈Global Rheumatology Alliance Pediatric Survey

🎈JDM In Play - Survey For Parents

In honor of the Cure JM Foundation's 20th Anniversary, Co-Founder Shari Hume edited this thoughtful video taking a deep dive into our two-decade history.


This video covers our humble beginnings, sustained progress, and exponential growth, all with a keen focus on our mission of advancing research and finding better treatments.


Thank you, Shari, for sharing your experiences and tireless dedication to the mission.

Watch Now

We'd like to extend gratitude and congratulations to all our Walk Strong from Home heroes nationwide and beyond. It is families, friends, colleagues, and neighbors like yours that have united to make progress possible for all affected by JM.


Together, we've joined forces to raise nearly $550,000 for promising research and improved care.


If you or your family have joined the Walk Strong from Home, thank you for your dedication and rallying around your team. Your participation has played a vital role in our mission to improve care and advance research that has the potential to reduce the harsh side effects that come with today's treatments.


We are still Walking Strong to reach our goal of $650,000 for those who would like to participate this month! You can make a gift in July by clicking here to take advantage of the Leetz Family Match.


It is our honor to share this highlight video from our National Walk Strong event in Washington, D.C., on July 2nd, that features representation from states all over the map and even includes international families! More Walk Strong from Home coverage coming soon!

Watch Recap

Seeking Volunteers With JDM and Their Siblings or Friends - JDM PLAY Study

The George Washington University Myositis Center is conducting a study to better understand how juvenile dermatomyositis (JDM) influences a person’s ability to participate in physical activities. The team would also like to observe any differences between people with JDM and their siblings who do NOT have JDM.

 

The study aims to:

 

  • Provide researchers with valuable information about JDM and how it affects people’s ability to participate in physical activities. 
  • Provide researchers with information about fatigue and how it affects individuals with JDM.
  • Give physicians a better understanding of JDM.
  • Support you (or your child) and others battling JDM by helping researchers learn how to approach and develop new and better treatments for JDM.


For more information on the study specifics and FAQs, visit jdmplay.smhs.gwu.edu or contact the study team at jdm@gwu.edu

Learn More

The Global Rheumatology Alliance (GRA) is continuing its campaign to improve care for people with rheumatic diseases around the world, including children!


The 2023 COVID-19 GRA Pediatric Survey aims to improve our understanding of how COVID-19 infections and vaccines have impacted the lives of children living with rheumatic diseases. 

 

The study aims to understand:

 

  • Caregiver decision-making regarding COVID-19 vaccinations for their children
  • Children’s experiences with the COVID-19 pediatric vaccines 
  • Long-term symptoms of COVID-19 infections in children
Take Survey

The Cure JM Family News Is Brought To You By:

Do you have a story you would like to share?

Please contact familynews@curejm.org

Cure JM Foundation

19309 Winmeade Drive, Suite 204

Leesburg, VA 20176

202.596.6267

info@curejm.org

curejm.org

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