In This Issue:

🎈Emotional Health Recognized as Vital Component of JM Care

🎈Happy Father's Day to All JM Fathers and Grandfathers!

🎈What Matters Most to You? - Caretaker & Patient Survey

🎈Walk Strong From Home - Summer Strides

🎈Join us on Saturday at the Family Conference

🎈Upcoming Regional Events, Training, and Online Events



For our complete listing of available resources, click here.

To learn more about our current research projects, click here.

To learn more about the Cure JM Foundation and how to join, click here.

New American College of Rheumatology guidance marks a milestone for juvenile myositis patients, recommending mental health screenings to address anxiety and depression, which affect JM kids at two to three times the rate of their peers. Cure JM’s Suzanne Edison, a key contributor, helped shape this framework, emphasizing holistic care. “It’s exciting to see mental health prioritized alongside physical care,” Edison says, reflecting on the research’s impact. Her work in mental and emotional health for JM patients has been vital to their overall health, advocating for screenings and coping strategies to support families navigating rare disease challenges.

The guidance encourages clinicians to integrate mental health assessments into JM care, offering tools like therapy and support groups. This step forward, driven by Cure JM’s advocacy, ensures kids receive comprehensive care, improving quality of life. Families can access resources at www.curejm.org to learn about mental health support.

Suzanne's efforts continue to inspire hope, strengthening our community’s fight for better JM outcomes. Join us in celebrating this progress for our kids.

This Father’s Day, we celebrate the dads and grandfathers who uplift juvenile myositis families with endless support. From cheering at doctor visits to leading fundraisers, their strength inspires us all. Dads tackle daily challenges with courage, whether it’s navigating treatments or sharing joyful moments with their kids.

Grandfathers bring wisdom and warmth, offering stories and support that strengthen our community. Together, they fuel our mission to find better treatments and a cure for JM. Their dedication reminds us why we fight for every child. To all our JM dads and grandpas, thank you for your heart and hustle. Your love makes a difference. Happy Father’s Day!

Share your JM dad or grandpa story with us info@curejm.org.

As we work toward better treatments and a cure for juvenile myositis, we want to hear from you. Your experiences guide our mission to support JM patients and families. We’re launching a new survey to gather your insights on living with JM, from diagnosis to daily challenges and hopes for the future.

Whether you’re a patient, parent, or caregiver, your input will shape our research, programs, and advocacy. The survey takes just 5 minutes and is confidential. By sharing your insights, you help strengthen our community and advance our fight for kids with JM.

Please complete the survey by June 17, 2025. Together, we can make a difference.

Join our Walk Strong From Home to support JM families this summer! Walk on your own day, your own way: pick a date and time that fits your schedule, or join us for Walk Strong From Home Day on June 29, 2025, alongside our National Walk Strong event at the Family Conference in Chicago.

Gather friends, family, or neighbors and walk your way, whether it’s a stroll in your neighborhood or backyard laps. Every step raises funds for JM research and family support. Together, we’re building a stronger community and pushing for better treatments and a cure.

Sign up today and walk with hope for kids with JM. Share your walk photos with us on Instagram by tagging @curejm and @walkstrongtocurejm.

For more information email sara.echols@curejm.org. Thank you for keeping their future bright!

We’ve reached 40% of our fundraising goal. To follow our progress, click here.

If you live near Chicago and can only attend on Saturday, please join us! Our $50 day rate for June 28, 2025, at the Hyatt Lodge in Oak Brook includes breakfast, lunch, and a full day of programming. Add the banquet dinner for $40 to connect with juvenile myositis families.

Experience our general session from 8:30 AM to 12:00 PM, featuring keynote speaker Dr. Carl June, a pioneer in immunotherapy at the University of Pennsylvania. His groundbreaking T-cell therapy work offers hope for innovative treatments, joined by Cure JM’s leadership and Medical Advisory Board. Engage with experts, meet families, and strengthen our community.

View the full agenda for Saturday, June 28.

Register for the day rate, available now through June 20th, at www.curejm.org/conference. Don’t miss this chance to find support and hope for your JM journey.

2025 Online Meetings, In-Person & Educational Trainings - Save The Dates!

We're excited to share upcoming regional and online events that support our community.

This updated page is your single stop for "being in the know" on upcoming chapter events, support meetings, educational training, and more happening in person and online.

June 2025 Online and In-Person Events:

• June 23rd at 8:00 PM Eastern - Cure JM Mom’s Connect - Are you a mom navigating the challenges of raising a child with a rare disease? You’re not alone. At Cure JM, we are a “family of families,” and we understand that the journey of caring for a child with juvenile myositis comes with unique challenges, uncertainties, and triumphs. Register here.

• June 29th at 8:30 AM Central - Walk Strong Chicago - Join us on Sunday, June 29th, 2025 at the Hyatt Lodge Oak Brook in Chicago for our National Walk Strong event. Register here.



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