GO! Bulletin
Advocacy In Action

We week we are featuring an advocate who has been making a difference this session by sharing her story with legislators about Family Networks:
Yecenia Rodriguez.

What did your life look like before the Family Network?

Before the Family Networks I felt very isolated. I had no one to connect locally and my friends and family did not understand how I felt. I went on to find social media groups but I didn't feel that connection. I would sometimes ask questions and I would have a lot of responses and other times no one would comment. Sometimes the comments were negative and not helpful. I didn’t find people in these groups from my own community who would know where to connect with what my families needs were.

How did the Family Network help your family?
Three years ago my family attended a local sensory movie event and I connected for the first time with the Family Network. I can honestly say my life changed after this. I was finally able to connect with other families. The Family Network changed my vision for the future for my son, it opened up my eyes to the fact that he can work and be involved in his local community and advocate for himself. I went from feeling isolated to being included.

What will happen to families without the Family Networks?

I can't imagine what my life would be without the family network.
I don't want other families who are just getting their child's diagnosis to feel what I felt. I want them to feel connected and supported as I did when I found the family network.

What advice would you give to other disability advocates wanting to speak out on issues that are important to them?

We need to keep helping families and communities; however, this can't be done without the Family Network. I know sometimes it's hard to speak up but their could be hundreds of families in the future receiving a new diagnosis. Wouldn't it be wonderful for these families to feel prepared, loved, welcomed, and to have the tools to succeed and know that disability is natural and there is nothing to be scared of? Let's not go back to how we were. Let's speak up and make a difference NOW.

Here is a recent video of Yecencia testifying in an informational hearing about Family Networks for legislators this session: https://youtu.be/o9N-4myaxBg

Family Networks are able to reach families quickly in moments of crisis as has been demonstrated repeatedly throughout the pandemic and when wildfires forced families out of their homes without any warning. Here is a video of how the Family Network in Southern Oregon immediately reached families impacted by the wildfires last year. TRIGGER WARNING: THIS VIDEO CONTAINS EMOTIONAL FOOTAGE OF the OREGON WILDFIRES AND FAMILIES IN CRISIS.

We are continuing our advocacy and asking legislators to restore funding to the Family Networks so they can continue to strengthen families and communities across Oregon.
Advocacy Tools

Meeting with legislators to share your thoughts on what laws and budget items matter to you in your life is one of the most important things that each Oregonian can do. The GO! Project has put together a series of short videos to share information about advocacy. Right now, that video series can be found on YouTube.com. Find the videos by going to YouTube.com and searching for “Oregon DD Coalition.” It will take you to the Oregon DD Coalition YouTube page, which has lots of great offerings. Below is an overview of what you will find there. Click on the title of each video to watch it now:
 
Meeting virtually is like meeting in person–it helps to be prepared. Consider what you want the legislator to see and hear from you in order to get your message across. Plan out how you will deliver your message and enlist support if you need it. Practice making calls with friends or families ahead of the meeting, so that you know your system, and what to expect. This video features Ryley Newport (Oregon Council on DD) and Kaaren Londahl (OSAC).
 
This video includes some of our community’s true legislative all-stars sharing tips and methods from their own experience: Ryley Newport, Ross Ryan (OSAC), and Kaaren Londahl. Spending time figuring out what you want to say and how you want to say it is some of the best time you can spend as an advocate. Start with broad questions to help you find what matters most to you or start with the legislative priorities carefully considered and crafted by the Oregon DD Coalition.
 
Email is always a useful tool in advocacy, but we are likely to lean on it even more during this time when in-person meetings are not possible. Forming clear written advocacy takes some practice. Tune into this video to hear this conversation between Cheryl Cisneros and Katie Rose (Oregon Support Services Association).
JUNE REVENUE FORECAST

One final reminder that the June Revenue Forecast, one of the last key milestones in the 2021-23 state budget process, will be delivered this coming Wednesday, May 19th at 3:15 pm in Remote A. Members of the House Revenue and Senate Finance and Revenue Committees will convene a joint session and informational hearing to receive the June 2021 Economic and Revenue Forecast from the Office of Economic Analysis. This critical information will give legislative leaders the information they need to make final budget decisions and start moving budget bills towards the finish line.
Bills, Hearings and Deadlines


The next two weeks is the final sprint in the legislative session for most policy bills. Committees are working hard to get public hearings and works sessions completed before policy committees close at the end of the month. Below are some of the hearings and bills we’re tracking during the upcoming week. Please see our DD Coalition Priority Bills Report for more information.    

MONDAY — May 17, 2021

8:00 am / Remote ASenate Committee on Judiciary and Ballot Measure 110 Implementation will be holding a public hearing on HB 2935A, a bill that limits the authority of a school district to become a member of a voluntary organization that administers interscholastic activities unless the organization implements equity focused policies that meet certain requirements.
 
8:00 am / Remote CHouse Committee on Behavioral Health will be holding an informational meeting on “Overview of the Youth Behavioral Health System in Oregon,” with invited testimony only from the following:
Chelsea Holcomb, Child and Family Behavioral Health Director, Oregon Health Authority
Carol Dickey, member, Children's System Advisory Council, Oregon Health Authority
Nikobi Petronelli, member, Youth and Young Adult Engagement Advisory, Oregon Health Authority
 
1:00 pm / Remote CHouse Committee on Early Childhood will be holding a public hearing and possible work session on SB 236A, a bill that directs the Early Learning Division to conduct a study on the use of suspension and expulsion in early childhood care and education programs and on efforts to reduce and prevent use of suspension and expulsion.
 
3:15 pm / Remote BSenate Committee on Education will be holding the following:
o  Public hearing on HB 2631A, a bill that prescribes notification requirements for school districts upon receipt of reports of acts of harassment, intimidation, bullying or cyberbullying.
o  Work session on HB 2105A, a bill that directs school districts to provide a child with a disability and the child's parents with information regarding supported decision-making and strategies to remain engaged in child's secondary education and post-school outcomes.
 
3:15 pm / Remote AHouse Committee on Revenue will be holding work sessions on a series of bills dealing with tax credits:
o  HB 2444Extends sunset for tax credit for child with disability.
o  HB 2440: Extends sunset for tax credit for working family dependent care.
o  HB 2442: Extends sunset for additional personal exemption credit for taxpayer with severe disability.
o  HB 2721: Allows dependent care income tax credit to be claimed for expenses to allow taxpayer or spouse to attend school as enrolled degree-seeking student.
 
3:15 pm / Remote FHouse Committee on Human Services will be holding the following:
o  Public hearing on SB 279A, a bill that directs the Department of Human Services, to the extent practicable, to avoid scheduling meetings and appointments involving a child in foster care during school day.
o  Work sessions on:
SB 562: Declares that person may not be disqualified from service as child welfare service provider based on certain traits.
SB 88: Corrects statutory cross-references to community developmental disabilities programs.
SB 280: Modifies provisions relating to criminal records checks performed by Department of Human Services and Oregon Health Authority.
 
TUESDAY — May 18, 2021
 
1:00 pm / Remote F: House Committee on Judiciary will be holding work sessions on the following bills related to protected persons:
o  SB 578ARequires court, under certain circumstances, to appoint legal counsel for respondent or protected person in protective proceeding.
o  SB 190AModifies permissible methods of providing notice of appointment of guardian to protected person.
 
1:00 pm / Remote 170: House Committee on Rules will be holding a work session on HB 2166, a bill that directs the Superintendent of Public Instruction to convene an advisory group to review equity in the education system of the state and to report results of review to interim committee of Legislative Assembly related to education.
 
1:00 pm / Remote D: Senate Committee on Rules will be holding a work session on HB 2168, a bill that establishes Juneteenth as a legal state holiday.
 
1:00 pm / Remote E: House Committee on Education will be holding the following:
o  Informational meeting with invited testimony only on:
SB 487A: Directs Department of Education to conduct study on instruction provided to talented and gifted children and to report results of study to interim committee of Legislative Assembly related to education.
SB 478A: Directs school districts to use inclusive and effective methods for identifying talented and gifted children and communicating with parents about process for identifying talented and gifted children.
o  Work sessions on the following bills:
SB 242A: Modifies definitions of "sexual conduct" for purposes of requirements for education providers related to abuse of and sexual conduct toward students.
SB 53A: Updates terminology and funding provisions related to special education programs provided on local, county or regional basis.
 
3:15 pm / Remote B: Senate Committee on Human Services, Mental Health and Recovery will be holding the following:
o  Informational meeting with invited testimony only on:
“Senate Bill 1 (2019) Implementation and Meeting the Needs of Children and Youth with Complex Needs” (continued from April 27th meeting), with testimony from Robin Henderson, PsyD, Chief Executive, Behavioral Health, Providence.
o  Work sessions on:
HB 2333ADirects Department of Human Services to report information regarding prescription of psychotropic medications to children in foster care.
HB 2102ARequires Department of Human Services to report to interim committees of Legislative Assembly related to human services , by December 31, 2022, comprehensive proposal for department staffing that meets specified criteria.
 
3:15 pm / Remote F: House Committee on Health Care will be holding the following:
o  Public hearings on:
SB 219A: Directs Advance Directive Adoption Committee to submit report to interim committees of Legislative Assembly related to judiciary and health with recommendations for development, adoption and administration of statewide advance directive registry for collection and dissemination of advance directives.
SB 748ARequires Public Employees' Benefit Board, Oregon Educators Benefit Board and private insurers to provide insurance coverage to adult disabled children of insureds under certain circumstances.
o  Work session on SB 699, a bill that prohibits a grandfathered health plan from imposing preexisting condition exclusions.
 
WEDNESDAY — May 19, 2021
 
8:00 am / Remote C:  House Committee on Behavioral Health will be holding an informational meeting on “Overview of Behavioral Health in Education” with invited testimony from:
o  Scott Nine, Assistant Superintendent of the Office of Education Innovation and Improvement, Oregon Department of Education
o  Dr. Beth Wigham, School Counseling Program Specialist, Oregon Department of Education
o  Jessica Ventura, Government Relations Director, Oregon Department of Education
 
8:30 am / Remote A: Senate Committee on Judiciary and Ballot Measure 110 Implementation will be holding a work session on HB 2935A, a bill that limits the authority of a school district to become a member of a voluntary organization that administers interscholastic activities unless the organization implements equity focused policies that meet certain requirements.
 
1:00 pm / Remote EJoint Committee on Ways and Means, Subcommittee on Education will be holding an informational meeting with invited testimony only from Oregon Department of Education Early Learning Hubs and Child Care Resource and Referral Organizations.
3:15 pm / Remote A: House Committee on Revenue will be holding an informational meeting to receive the June 2021 Economic and Revenue Forecast from the Office of Economic Analysis.
 
3:15 pm / Remote FHouse Committee on Human Services will be holding work sessions on the following bills:
o  SB 85A: Modifies family-based group home placements to permit respite time for providers.
o  SB 556A: Specifies that on-site inspections must be in person for health care facilities, home health agencies, residential care facilities, adult foster homes, hospice programs and qualified residential treatment programs.
o  SB 89: Modifies definition of "developmental disabilities residential facility."
o  SB 86A: Authorizes licensing agency to revoke, suspend, impose conditions on or refuse to renew license to operate residential training facility or residential training home under specified conditions and to consider performance and experience of applicant or licensee in other states or jurisdictions.
o  SB 90A: Exempts from public disclosure addresses of individuals with intellectual or developmental disabilities residing in adult foster homes, residential training facilities or residential training homes, unless public interest requires disclosure in particular instance.
o  SB 279A: Directs the Department of Human Services, to the extent practicable, to avoid scheduling meetings and appointments involving a child in foster care during school day.
 
3:15 pm / Remote BSenate Committee on Education will be holding the following:
o  Informational meeting on “Summer Learning Update” with invited testimony only from the following individuals:
Rick Crager, Oregon Department of Education (ODE)
Cindy Hunt, ODE
Michael Elliott, ODE
o  Work sessions on the following bills:
HB 2954: Allows public charter school to implement weighted lottery that favors historically underserved students when number of applications for enrollment exceeds capacity of program, class, grade level or building.
HB 3183A: Requires parents of child who is deaf or deafblind or who is hard of hearing to be provided information about relevant services and placements offered by school district, education service district, regional programs and Oregon School for the Deaf whenever individualized family service plan or individualized education program is developed, revised or reviewed.
HB 2631A: Prescribes notification requirements for school districts upon receipt of reports of acts of harassment, intimidation, bullying or cyberbullying.
 
THURSDAY — May 20, 2021
 
1:00 pm / Remote E: House Committee on Education will be holding public hearings on the following bills:
o  SB 232AModifies requirements of report on Educators Equity Act that is prepared by state agencies.
o  SB 602Removes sunset on requirement that students must receive certain information related to statewide summative assessments.
 
1:00 pm / Remote 170: House Committee on Rules will be holding a work session on HB 2337, a bill that requires state agencies and third party contractors that collect demographic data on behalf of state agencies to comply with rules adopted by Oregon Health Authority for collection of data on race, ethnicity, preferred spoken and written languages and disability status.
 
3:15 pm / Remote F: House Committee on Health Care will be holding work sessions on the following bills:
o  SB 219ADirects Advance Directive Adoption Committee to submit report to interim committees of Legislative Assembly related to judiciary and health with recommendations for development, adoption and administration of statewide advance directive registry for collection and dissemination of advance directives.
o  SB 199AModifies laws relating to form of advance directive.
o  SB 748ARequires Public Employees' Benefit Board, Oregon Educators Benefit Board and private insurers to provide insurance coverage to adult disabled children of insureds under certain circumstances.
INTERESTED IN GIVING TESTIMONY AT A COMMITTEE HEARING? 

In order to prevent COVID-19 from spreading, entry to the Oregon State Capitol is for authorized personnel only until further notice. The Oregon Legislative Assembly has established a process to accept remote verbal public testimony on bills by video or phone during this time, in addition to written public testimony.  For more information, see the helpful information posted online. 
INTERESTED IN TRACKING BILLS OR HEARINGS?

  • Use the Oregon Legislature's Capitol e-Subscribe service to receive bill alerts for individual bills as they move through the legislative process, receive committee agendas, news from members of the legislative body and more.
  • You can also watch or listen to live or archived video and audio of Senate and House chamber sessions and Committee hearings.
2021 Legislative Session Budget Priorities

  • Reinstate Regional Family to Family Networks ($1.3 million GF)
  • Set DSP Wage at 150% of minimum wage (HB 2964)
  • Fully Fund Case Management Entities
  • Develop Statewide Data System

GO! ONLINE for DD Advocacy Videos
We created a series of training videos to support your preparation for remote legislative advocacy. Visit our You Tube Channel or Facebook Page to view them.

  • Introduction to the GO! Project
  • 2021 Legislative Advocacy
  • Why Is Advocacy Important?
  • How To Develop Your Message
  • Making a Legislative Appointment
  • Preparing For a Virtual Visit
  • Expecting the Unexpected
  • What to Do After a Legislative Visit
  • Advocacy Via Email
GO! ONLINE for DD Advocacy Days
Wednesday, June 9th

Join the Oregon DD Coalition’s GO! Project Advocacy Team online On Wednesday, June 9 from 10AM to Noon to learn about:
  • Legislative Budget Priorities
  • Advocacy Strategies

It’s quick and easy to find out who your State Senator and State Representative are at www.oregonlegislature.gov
About the Oregon DD Coalition
The Oregon DD Coalition advocates for DD services on behalf of and with people with intellectual and developmental disabilities, their families, and support organizations in Oregon.

We influence DD service and community support systems and legislation by communicating with a common, consistent voice – creating better opportunities for Oregonians with intellectual and developmental disabilities.

Interested in signing up for the GO! Bulletin or
becoming a member of the Oregon DD Coalition?
 1775 32nd Place, Suite F, Salem OR 97301