Seek first to understand, then incorporate what you learn
The opioid epidemic continues to wreak havoc on communities throughout the United States. Key highlights from the 2022 National Survey on Drug Use and Health reveal that 17% of the population has a substance use disorder (SUD), but only 24% of those who need treatment receive it. An incredible 95% of those with SUD who are not receiving treatment do not feel they need it. As an emergency physician, I care for people every day who suffer from SUD. Although this is an area which I am passionate about, I frequently have patients deny they have a substance use problem and decline referrals to treatment. We are fortunate in the University of Cincinnati Emergency Department to have the Early Intervention Program and a dedicated Substance Use Disorder team to further explore risks, readiness to enter into treatment, deliver harm reduction and education, and provide linkage to services. Staff from these teams employ motivational interviewing and include peer recovery specialists with lived SUD experience who truly understand what patients are experiencing and are often able to break through to patients in a way that the clinical care team cannot.
In research, we are often even more disconnected from those we are attempting to study. It is imperative that we involve populations of interest from the very start of research projects moving forward. Just as a statistician is a key advisor for methodology, engaging stakeholders after a study has started cannot always correct flaws in the study design. We must go farther than just asking for input and trying to justify why we cannot change our planned project. Instead, it is our duty to listen and integrate the voices of stakeholders into study design, communication about the study and interpretation of the analyses. I urge all researchers to consider the use of a Research Participant Advisory Group to assist with community messaging and ensure that the studies you undertake align with the priorities of the population of interest and that planned interventions are culturally adapted. This is especially important to respond to the distressing trend of an increase in opioid-related overdose deaths among Black residents in our local community.
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