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Cheers to 20 years!

2002-2022

2022 Monthly Newsletter

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A note from Matt.....

Everyone has a right to love. No parent will ever be perfect, but if you can handle the responsibilities of being a parent, with or without assistance, you have a right to do so. While most of society takes this as a settled fact, it is not so for parents with disabilities who are assumed to be unfit parents and lose custody of their children. We are proud to be a part of a settlement between Alysha Princess Cesaire and the Florida Department of Children and Families which will replace assumptions with facts and real risks, and change “you can’t” to “what can we provide to ensure that you can.” Hopefully, this will be the dawn of a new day where the Florida dependency system is proactive and ensure that families of parents with disabilities will remain intact and strong. 

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20 years of Impact

Each month we will highlight one of the topics

This month we will discuss voting

click the button below to read more

Voting

We will add another section next month.

Over the last twenty years, we have focused on many important elements of community living for persons with disabilities.


Over the next year, I will reflect on each one of these issues and the progress that we have made in the past twenty years.


  • Voting – Ensuring accessible voting as well as outreach into the disability community.


  • Housing – Ensuring accessible multi-family housing and ensuring that accommodations are provided to ensure that persons with disabilities could use and enjoy their homes like anyone else.


  • Safety – Providing communication tools and training to prevent harm to persons with intellectual or developmental disabilities when encountering first responders.


  • Effective Communication – Defining effective and equal communication access for the Deaf and Hard of Hearing and ensuring that medical needs are met, and employment opportunities are maintained.


  • Freedom of Choice – Providing the ability to have the right to control one’s future is an issue in which all persons have a right, and is often denied to persons with disabilities. This includes protecting the rights of parents with disabilities to have and raise children throughout the dependency process, in addition to ensuring freedom from guardianship services whenever possible.


  • Institutionalization and Medical services – Forced the closure of nursing homes that serve medically fragile children by ensuring provision of adequate services in homes.


  • Animals for Persons with Disabilities – The choice of what to do to assist a person with a disability is that person’s choice, and animals have been used to assist persons with disabilities for years, and it is only growing.


  • Education access – All persons are entitled to an equal access to an education. This includes a program to ensure an adequate education, or appropriate accommodations that measure each person’s intelligence, instead of disability. 


  • Expanding Disability Inclusion in the Legal Profession – Ensuring that, as a profession, the doors to the courthouse are open to all persons with disabilities, and that persons with disability who want to be lawyers are given a fair opportunity to do so.


  • Public Accommodations – People with disabilities have the right to physical access and freedom from unduly restrictive qualification rules so everyone has the right to equal use and enjoyment of all places of public accommodation. 

Cesaire Case

By: Matthew Dietz

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The rights of persons with disabilities to be able to be parents were one of the major forms of discrimination that the ADA was intended to eradicate. For example, mandatory sterilization of persons with disabilities was one of the most egregious forms of discrimination that was ever condoned by the Supreme Court of the United States. In 1927, Oliver Wendell Holmes wrote in Buck v. Bell, that “It is better for all the world, if instead of waiting to execute degenerate offspring for crime, or to let them starve for their imbecility, society can prevent those who are manifestly unfit from continuing their kind ... Three generations of imbeciles are enough.”


Unbelievably, compulsory sterilizations of persons with disabilities continued until the 1960s; however, the stereotype that persons with disabilities cannot be effective parents continues to this day. One of the purposes of the Americans with Disabilities Act was to break down these stereotypes and guarantee all persons to fully participate in all aspects of society, including the ability to be a parent.


Matthew Dietz from Disability Independence Group, and Stacie Schmerling and Howard Talenfeld from Justice for Kids, a division of Kelly Kronenberg, successfully represented Alysha Princess Cesaire in her fight to change the system to make sure that this will not occur to her again and will not occur to any other parent with a disability. We have been working with the Department of Children and Families and have come to a settlement that the Department will revamp their system to ensure that there is adequate training for child protective investigators and procedures in place to ensure that parents with disabilities receive the services required in order to preserve their families.


Alysha is a young lady who lives with spinal ataxia, a physical impairment that is a hereditary disease that affects her brain. The symptoms of this disability include an uncoordinated walk (gait), poor hand-eye coordination, and abnormal speech (dysarthria). She uses a walker and has support of her mother at home. On February 1, 2018, after 14 hours of labor, she gave birth to her son, without an epidural, and was put on oxycontin following the birth. Because of the mother’s disability, a call was made to the Department of Children and Families’ child abuse hotline related to the concerns for the wellbeing of the baby. The report was assigned to the Broward Sheriff’s Office (BSO) Child Protective Investigations Section for investigation, since in Broward County BSO contracts with the Department to conduct child protective investigations. Even though there was no imminent threat demonstrated, and no evaluation of Ms. Cesaire or her disability related needs, the decision was made by BSO that Ms. Cesaire could not bring her son home. 


Prior to contemplating removing a child from the custody of a parent, the state must provide “appropriate and available early intervention or preventative services, including services provided in the home, [so that] the child could safely remain at home,” as well as services to preserve and strengthen the child’s family ties and safeguard the child’s welfare., § 39.001(1)(f), and 39.402(7), Fla. Stat,, these securities to preserve a parent with a disability’s fundamental rights and Constitutional rights were often neglected by the state and their contractees, such as BSO. This did not happen with Alysha.


Within days, BSO filed a shelter petition, asserting that Alysha “cannot walk on her own and needs assistance with performing activities of daily living.” It made assumptions that “the mother is unable to walk independently and has poor muscle control” and that “the mother’s movements are involuntary, and she could seriously injure the child who is vulnerable and needs protection.” The BSO Child Protective Investigator took efforts to remark how Alysha was observed drooling and that based on her history, that there was an implied threat to the safety of the baby. BSO deemed Alysha unfit to be a parent without any investigation of her abilities or any services that can assist her. After stating her rights under the Americans with Disabilities Act, Broward Circuit Judge Alberto Ribas, Jr., found that no probable cause to shelter the infant and ruled that “immediate services can be put in place to alleviate the risk to the health safety and welfare to [sic] the child.” Despite the Court’s ruling, BSO continued with its dependency complaint.


BSO deliberately disregarded the judge’s direction in the denial of the shelter order and the legal advice of the assistant attorney general who issued an opinion that the case should be dismissed. BSO knew that there was no legal sufficiency to continue the case, but the Director of the Child Protective Investigative Section did not believe that Cesaire should have the ability to procreate and memorialized it in writing: 

“if there is such close supervision of this mother, how did she get [pregnant]? And if they thought it was ok for her to be intimate why didn’t they get her on some birth control???”

 

The extent of the disapproval of this course of action was apparent. While BSO was working to further interfere in Alysha’s relationship with her baby and failing to provide services to the family, the child’s attorney ad litem moved to dismiss the petition for dependency. The Assistant Attorney General believed and continually asserted that the case was legally insufficient and lacks a prima facie case that the child is at any risk of harm as defined in the statute and there was no legal basis to continue the dependency action. The State of Florida Assistant Attorney General continued that the actions of BSO may violate the parents’ rights under the ADA.


Despite this opposition to continuing this matter and being explicitly put-on notice that there was no legal sufficiency for the dependency case proceeding, BSO disagreed with the assessments of legal counsel, refused to agree to dismiss the case, and continued to insist that the dependency case continue without evaluating or providing any accommodations for her disability.


Alysha is not alone in Florida, and the violation of parents’ rights stem from the knowing failure to develop tools, offer services, and provide training to employees and contractors of DCF to ensure that the disability-related needs of parents can be met, if possible, prior to removal of a child. Or, in Alysha’s case, to take into account her natural family supports, when determining whether she is fit as a parent.


As part of the settlement, the Florida Department of Children and Families agreed to change their policies and procedures to ensure an equal opportunity to benefit from programs of recipients receiving federal financial assistance including developing policies and procedures and protocol to implement the plan. This includes making an assessment of a parent’s disability by a person with professional knowledge to determine if a disability accommodation is needed and develop directories of experts, accommodations, auxiliary aids and services, and community resources to ensure that programs and services can be provided to parents with disabilities to keep the family unified. DCF will include the following language in DCF’s Child Welfare Operating Procedures:


The Department of Children and Families and their employees, and contracted providers and sub-contracted providers, will not base decisions about child safety actions on stereotypes or generalizations about parents with disabilities, or on a parent’s disability, diagnosis, or intelligence measures alone. These decisions are made through an individualized assessment of the parent with a disability and objective facts relating to the danger threats impacting the child. If necessary and reasonable, accommodations must be provided ensure parents with disabilities can fully participate in the programs and services of the dependency system.


Lastly, to create a culture and assumption of providing accommodations, DCF has agreed to develop and implement training modules to dispel stereotypes about parents with disabilities, to learn to recognize a parent’s potential disability, how to evaluate for a parent’s potential disability and how to develop and implement reasonable accommodations for parents with disabilities.


This settlement effectively changes the evaluation of parents to not focus on the disability as a disqualifying factor in the decision to shelter a child, but instead, focus on what accommodations and community resources are available to assist a parent to be more successful in having a family.


Unfortunately, the case against Broward Sheriff’s Office continues. While the policies and procedures that they must implement have changed, Alysha and her family will never forget the days that she was without her baby after giving birth, and the discrimination that she faced when she was told that she should not be a mother.

Read the signed settlement
Read the article in the Miami Herald
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Miami Inclusion Alliance (MIA)

By: Sharon Langer

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There is always a lot of discussion about Human Trafficking during Super Bowl month. When we discuss human trafficking, we rarely put a spotlight on the complex intersection of human trafficking and domestic violence.


“There is a marked overlap in the pattern of behaviors that both abusers and traffickers use to exert power and control over a victim,” according to the National Network to End Domestic Violence  (NNEDV). Domestic violence perpetrators often use the same power and control tactics as traffickers to groom and control their victims, including psychological manipulation, physical abuse, financial control, substance abuse coercion, and sexual violence, which can include forcing victims to participate in pornography and sharing images. (NNEDV) It is important to remember both domestic violence and human trafficking impact both men and women.


When we think of human trafficking, we most often think of sex trafficking, but it can also be labor trafficking including forced work on farms or orchards, in family-owned restaurants, mom-and-pop businesses, and begging rings. With domestic violence, the abuse usually happens in private, but trafficking, many times happens in public view.


It is not uncommon in federal trafficking prosecutions, for the trafficker to be the husband, boyfriend, or romantic partner of the victim. The fact that a trafficker is married to or in an intimate relationship with his victim, does not take away from the fact that it is a trafficking crime. The most widely understood domestic violence/human trafficking scenario involves perpetrators holding their domestic partners in forced prostitution or forced labor. In some instances, a marriage or intimate relationship may be a fraud instigated by the trafficker from the start. It is common in sex trafficking cases, to have a young victim lured into marriage or a romantic relationship, only to be exploited by their partners through forced prostitution.


Victims at the intersection require the same kinds of trauma-informed services such as safety planning, housing stability, health care, substance use disorder treatment, mental health services, and employment to achieve economic security, self-sufficiency, healing, and well-being that we now provide, in our system of care for domestic violence victims.



The more we learn about and the more we discuss this tragic intersection, the more able we will become, to fashion solutions and provide supports. 

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Benefits Information

By: Lesly Lopez

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Employment support for people with disabilities

If you are disabled and you are pursuing employment, you are not alone. You can find many agencies providing employment support and help you to reach your vocational goal.

 

Vocational Rehabilitation (VR)

Is a federal-state program that helps people who have physical or mental disabilities get or keep a job. VR is committed to helping people with disabilities find meaningful careers.

Examples of VR Services:

•         Medical and Psychological Assessment

•         Vocational Evaluation and Planning

•         Career Counseling and Guidance

•         Training and Education After High School

•         Job-Site Assessment and Accommodations

•         Job Placement

•         Job Coaching

•         On-the-Job Training

•         Supported Employment

•         Assistive Technology and Devices

•         Time-Limited Medical and/or Psychological Treatment

For more information visit Vocational Rehabilitation website http://www.rehabworks.org/

 

Centers for Independent Living

Services are provided to maximize the leadership, empowerment, independence and productivity of individuals with disabilities. The services are intended to lead to the integration and full inclusion of individuals with disabilities into mainstream American society. A CIL is a consumer-controlled, not-for-profit local organization which provides at least four core independent living services. There are 16 CILs in Florida. To find a CIL close to you. Visit http://www.ilru.org/projects/cil-net/cil-center-and-association-directory-results/FL

 

Employment Networks 

Employment networks are available to provide vocational training, job readiness training, resume writing classes, and other vocational services to SSDI and SSI beneficiaries. Some ENs specialize in providing services only to people with specific disabilities (such as developmental disabilities), while others serve all beneficiaries irrespective of the nature of their disabilities. Some ENs are businesses that rely on the EN system as a means to employ people with disabilities for their own businesses. These ENs are alternatives to the state departments of vocational rehabilitation. For a list of ENs doing business in your area, see http://www.chooseworkttw.net/findhelp/

 

Disability Program Navigator Initiative

The Disability Program Navigator Initiative helps CareerSource Florida centers improve employability and increase career opportunities available to job seekers with disabilities.


Major Objectives of the Disability Program Navigator Initiative

•         Increase employment and self-sufficiency for social security beneficiaries and individuals with disabilities; and help individuals understand how earnings may affect their social security benefits and other support programs.

•         Create systemic change to transform the culture of how CareerSource Florida centers serve customers with disabilities.

•         Facilitate linkages to the employer community so individuals with disabilities may access programs and services. For more information please visit http://www.floridajobs.org/office-directory/division-of-workforce-services/workforce-programs/disability-program-navigator-initiative

 

Other important resources:

Disability Rights Florida: advocates for SSA beneficiaries pursuing employment

Services to Individuals

•         Information and referrals

•         Self-advocacy support

•         Technical assistance

•         Investigations into complaints of abuse, neglect and rights violations

•         Dispute resolution support

•         Negotiation and mediation support

•         Advocacy services

For more information check their website http://www.disabilityrightsflorida.org/

 

The Job Accommodation Network (JAN)

JAN is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues. Working toward practical solutions that benefit both employer and employee, JAN helps people with disabilities enhance their employability, and shows employers how to capitalize on the value and talent that people with disabilities add to the workplace. Check their website https://askjan.org/links/about.htm

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The wallet card is a tool to be used by a teenager or an adult with a disability.


Currently, we have developed cards for persons with Autism Spectrum Disorder (ASD) or intellectual disabilities. 

We have finished our new caregiver card.


You can start ordering them online on our website.

Order a Wallet Card Here
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Access The Vote Florida (ATVFL) is a state chapter of AAPD’s REVUP Campaign. REV UP stands for: Register! Educate! Vote! Use your Power!


The chapter is a statewide coalition of organizations and self- advocates that are working to raise awareness about issues that impact persons with disabilities, encourage people with disabilities to participate in the voting process, and educate elected officials on issues important to persons with disabilities.


The video below was created as a virtual presentation for the 2021 Family Cafe.


The video will explain who ATVFL is, what we have done so far, and what we plan to do in the future.


The presentation will encourage self-advocates to join and become involved.


ATVFL Website
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This event is on hold until it is safe to meeting in person again. However, if you are looking for something fun to do, you should check out My Squad. A new program sponsored by the City of Coral Gables. You can text (305) 978-1196 (text preferred) for more information.

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Your Upward Journey


In a nutshell, Your Upward Journey:


It is Easier Than You Think!, a three-part project (book, self-help seminars and merchandise sale).


Click Here for More Information

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