July 2014

As CIBMTR marks our tenth anniversary, we want to thank our dedicated transplant centers' staff for their part in our successful operations. We would not have come this far so fast without the hard work of each data manager.


Transplant center data managers submit data for ~18,000 new HCT recipients annually as well as follow-up data on previously reported transplants. Overall, the quality of the submitted data has improved with CIBMTR auditors finding fewer errors during on-site audits. In addition, greater than 90% of transplant centers are meeting CPI criteria each trimester. 


The research database is foundational to all the research programs conducted by the CIBMTR. The chart below is a look at the breakdown of patients by disease and transplant type in our current database:

  

CIBMTR has become a respected leader in HCT research by providing a unique resource of information and expertise to the medical and scientific communities. Our research is possible because of the contribution of thousands of hours of work from physicians and scientists who collaborate with us to conduct studies that advance the field of HCT. These studies are only possible because of the data that you give to us. Together we are impacting patient survival. Thank you!

QUICK LINKS
  
  
JULY MANUAL UPDATES

2400 Pre-TED
2450 Post-TED
2100/2200/2300 Post-HCT
2016/2116 PCD

Do you know CIBMTR history?

 

Join our celebration by entering CIBMTRs 10th year Anniversary Trivia Contest. 

 

The rules are:

1) Employees are not eligible 
2) One contest entry each
3) Entry Deadline - Aug.15th 
4) To enter click on the link below and answer the five multiple choice contest questions.

 

We will announce the winners in the next newsletter.


 

 

NEW eLearning - Data Back to Centers (DBtC) Overview

 

The Data Back to Centers (DBtC) application can be a very useful tool for centers. This eLearning describes its function, access, and how it works.  Click here to view it right now. (approximately 8-10 minutes in length)
IN THE NEWS
An overwhelming percentage of patients who need an unrelated bone marrow transplant will have a suitably matched, available donor on the Be The Match Registry, operated by the National Marrow Donor Program;(NMDP)/Be The Match ®, according to a new study published in the New England Journal of Medicine.

Read more

 

 

   

 

 

 

 

 

 

 

Question:  How do I determine what is clinically significant to report on the Pre-TED?

 

Answer: 

The Data Management Manual for the Pre-TED (2400) defines the term clinically significant as, . . . conditions that are being treated at the time of pre-HCT evaluation, or are in the recipient's medical history and could cause complications post-HCT.

 

Diseases or organ impairments that are clinically significant to report are based on the HCT comorbidity index (HCT-CI) published by Dr. Sorror (Source: Blood, 2005 Oct 15;106(8):2912-2919). 

 

Since our form revision release in October 2013, the co-existing disease/organ impairment questions were eliminated from the Baseline (2000) form and are only located on the Pre-TED now.  Serious conditions that are clinically significant to report are asked about one-by-one in questions 97-133. Answer those questions prior to answering question 96. Any 'yes' to those questions will indicate answering a 'yes' to question 96 also.

 

If a recipient has a medical history of something other than those conditions listed in questions 97-133, (for example, hypertension) you do not need to report that on the Pre-TED in the "Other, specify" field any longer.

  

Send your questions into CIBMTRTraining@nmdp.org . The answer may be in a future newsletter.