Read the Data Office Newsletter online: View as Webpage
AUGUST 2019
A Message From Leadership
Greetings,

I hope you all are enjoying the summer!

The UMMS Data Office 's data offerings continue to diversify and broaden as a direct result of feedback received by you and your research colleagues over the years. We heard that you needed cancer staging and treatment data, death date and cause of death data, pharmacy-dispensed data, and patient survey data, among other needs. These data types enrich the existing clinical and demographic data we already expose for research, and we look forward to helping you access these new data feeds, based on regulatory and compliance approvals. 

Additionally, we are always looking to make the data pull process easy for our researchers, so contact us for a 1:1 data consultation, visit us at Researchpalooza on Thursday, August 15, or come to one of our upcoming Lunch & Learns-- our next lunch is scheduled on Wednesday, September 25.

Scroll down for more information about these special events, available data for research, data & security, and our self-serve tool, EMERSE.

More questions about our services? Contact us  with your ideas and questions. Here's to a great fall!

Sincerely,
Erin Kaleba, M.P.H.
Director, Data Office
Reminders
  • Have questions about a self-serve tool, need a custom data pull or need help with our privacy guidelines? Click here to launch the new Data Office Customer Portal and put in your request!

  • Do you need standard language for manuscripts (method, reference sections, etc.) or grant proposals (resources or environment sections)? Contact us!

  • Have you recently submitted any manuscripts in which you received data from DataDirect, EMERSE, or our Data Office analysts? We want to know about it! Email us.
Available Data for Research
Get Access to Immunization Data
While patients do not get all their vaccines administered at Michigan Medicine, the health system gets data from MCIR (Michigan Care Improvement Registry), a statewide immunization registry. The MCIR data is integrated into MiChart to supplement internal immunization data and complete the patient's immunization records and can be extracted with a Data Office custom data pull .

Questions about immunization data or custom data pulls? Email Arina Bierdz at  [email protected] .
Training & Events
Next Up: 'Catch Us' at Researchpalooza on August 15!
We are excited to be a part of this year's   Researchpalooza   on Thursday, August 15! The Data Office "goes fishin'" for data every day for researchers, offering access to more than 16 years of patient clinical data. 

Stop by and see how the Data Office and Central Biorepository go fishing together and reel in the highest quality data and biospecimens for your research! Find us at tables 40 and 41 , where you'll be able to meet the teams, learn more about how to access data and biospecimens for your next study, as well as test your knowledge of the teams with our special "Match and Win" game for a chance to win awesome prizes. PLUS, enter for a chance to win a fishing-themed gift basket!

Thursday, August 15, 2019
11:00 AM - 2:00 PM
Tables 40 & 41, Circle Drive in front of Med Sci I

Click  here   to learn more about this fun event featuring 110+ exhibitors from labs and offices of the UMMS and across campus. See you there!
This Fall: Data Office Lunch & Learn
Enjoy lunch on us and learn more about available data resources at U-M in the latest installment of the Data Office Lunch & Learn series:

  • Stacey Meredith: Cancer Registry Data (MetriQ)
  • James Bologna, MBA: Michigan Medicine’s Quality Analytics

Wednesday, September 25, 2019
12:00 PM - 1:30 PM
NCRC Building 10 - Research Auditorium
Data Privacy & Security
Safeguards for Accessing HIPAA-Regulated Data
U-M provides services that can meet the security, privacy, and compliance needs of our customers. However, individual departments are responsible for their environment once the service has been provisioned, including their applications, data content, virtual machines, access credentials, auditing of accesses to systems, and compliance with regulatory requirements applicable to their particular field or industry.
 
Appropriate safeguards should be used when accessing HIPAA-regulated data:
 
Permit/restrict access to protected health information regulated by HIPAA . Examples:
  • Security awareness training program for all staff
  • Procedures to regularly review records of information system activity (e.g. audit logs)
 
Limit access systems in which PHI is stored, as well as any physical media that contains or is used to access PHI . Examples:
  • Retaining facility maintenance records
  • Establishing policies for disposal of electronic PHI and the media on which it is stored

Limit access to PHI to appropriate individuals . Examples:
  • Automatic password lockout
  • Assigning uniqname or number to track user identity
  • Capturing and reviewing log information related to authentication
 
Get more information about sharing your data safely   here . More questions? Contact Devon Newman at   [email protected] .
Self-Serve Tools
EMERSE Trends
The self-serve tool EMERSE has a new feature called "Trends," which provides a way to look at overall counts over time and get a sense of which way the counts are heading. For example, the screenshot to the right shows the number of patients who have notes mentioning "genetic testing" from 2009 to present (2019 is lower simply because the year is not over yet). Trends is available from the results screen from an "All Patient Search," using the "Find Patients" button.

Access to EMERSE for research purposes may be obtained through the Data Office. For access to EMERSE for non-research purposes or if you have any questions, contact Dr. Dave Hanauer at (734) 615-0599 or via e-mail at  [email protected].
The mission of the  Data Office for Clinical & Translational Research is to foster the translation of data into research that improves clinical outcomes by bridging the gap between personal health data and clinical research. 
To better navigate the complexities of the U-M biomedical research enterprise, visit the Research Project Lifecycle . This interactive tool provides an overview of the resources available to you, not only within the Medical School Office of Research but also across the University of Michigan.