December 2022 eNews

eNews: Holidays Edition

Wishing peace, joy, and good health for you and your loved ones this holiday season.

Friend, first and foremost, thank you.

Thank you for being a part of this dedicated and passionate scleroderma community.
Thank you for standing with us throughout a difficult year when we tragically lost our beloved board member and scleroderma champion, Bob Saget.
Thank you for inspiring us every single day - it's because of you that we remain laser-focused on finding a cure.

And thanks to the many world-class researchers, clinicians, scientists, and experts with whom we partner, the Scleroderma Research Foundation accomplished much towards that goal in just the past year alone. Here are a few highlights:

More than $2.2 Million invested in research this year to advance the most promising scientific discoveries

Launched the first-ever virtual Patient Forum, featuring some of the world’s leading scleroderma investigators

Generated awareness & connected those living with this disease to research participation opportunities & resources

The SRF remains as committed as ever to accelerating the progress of scleroderma research—and we won’t stop until we find a cure.

With so much gratitude and with best wishes for the holiday season,

Joanne Gold

Executive Director

SRF News

Scleroderma Research Special Coming to TV

Information about scleroderma and why we need research is coming to broadcast TV!

The Scleroderma Research Foundation will be featured on Behind the Mystery, airing on The Balancing Act on Lifetime, February 20^th and 28^thfor Rare Disease Awareness Month. Dr. Lori Chung (SRF-funded researcher of Stanford University), Melissa Tarentino (Cure Crew member, dx 2014), and Susan Feniger (SRF Board Member) share their respective experiences with scleroderma and why they're excited about the progress of research today.

Save the date and spread the word, so that everyone can learn what scleroderma is and why we need a cure.

Introducing SRF's Director of Philanthropy

Meet Kate Ceredona, our new Director of Philanthropy.

Kate is a development professional with over 9 years of experience raising major support for both higher education and health care related causes. Originally from Massachusetts, Kate relocated to Los Angeles to pursue a MA in Sociology from UCLA. Through her research, Kate explored the lived experience of those suffering from chronic illness, a topic inspired by a family member diagnosed with multiple sclerosis.

Kate represents the SRF from Los Angeles. Any questions about making a gift, or just want to say hi? Reach out to her at kate@sclerodermaresearch.org.

Save the Date: 2nd Annual SRF Patient Forum

Mark your calendar for June 1, 2023—"Collaborating for a Cure," the SRF Patient Education Forum will be an online virtual event with all new information about scleroderma and research! You'll learn about advances in treatments, disease management, and more.

Stay tuned for information on how to register in the coming year, and in case you missed this year's, you can watch it at the link below.

Watch the 2022 SRF Patient Forum

SRF Resources

A Gift from Us to You

As 2022 comes to a close, all of us at the SRF want to express our gratitude for our community of supporters. Your dedication makes accelerating research and advancing treatments possible.

In thanks, we would like to offer a free estate planning resource from our friends at FreeWill . Creating your will is essential because it protects the people, assets, and communities you love most. And, it's straightforward—this warm and intuitive tool guides you through the process with ease in 20 minutes or less.

On behalf of everyone at the SRF, thank you for your dedication to building a world free from scleroderma.

Create Your FreeWill

There's Still Time to Double Your Impact!

Incredible news—together we have raised more than $50,000 for our year-end scleroderma research campaign, unlocking a dollar-for-dollar matching gift from a generous donor.

This donor was so inspired by your generosity that they extended their matching gift threshold and will now match all donations up to $75,000 through the end of this year! There's just 10 days left to get your year-end gift matched, so donate now to make sure your impact is doubled.

Donate Today

Why Your Support Matters to Kierra

Thinking back to her early symptoms, Kierra (dx 2020) remembers how “my body felt like it was breaking down and I couldn't figure out why.” After consultation with rheumatologists, she was diagnosed with scleroderma.

Learn more about why funding research is so important to her.

Kierra's Story

More Ways to Support Research This Year

AmazonSmile

Support research while doing your holiday shopping! When you shop through AmazonSmile, Amazon donates to the SRF.

Use AmazonSmile

Double the Donation

Check to see if your employer will match a donation you make to the SRF—potentially doubling or even tripling your impact!

Learn More

Corporate Partner Spotlight

Thank you to Janssen Pharmaceuticals

We are very grateful for the support of Janssen Pharmaceuticals over this past year. Their generous partnership helps us provide vital information and resources to help the scleroderma community learn about this disease and their important role in participating in research.

www.srfcure.org

Ways to Give

Donate Today / Employer Matching / AmazonSmile / Planned Giving